Hello ladies!
I’m five days post docitaxel number 5.
My first docitaxel was definitely worse for throat, mouth ulcers and bone pain, although the bone pain is ramping up now.
The mouth ulcers were horrendous for me on the first docetaxol but barely errupted on this one.
However, my throat feels more “coated” and taste is not what it was.
The fluey symptoms have been worse for me this cycle, although the positive is that they kicked in on day 4 rather than day 3!
But the fatigue…oh my goodness, completely whacked all the time.
Spending a lot of time horizontal as the smallest things are tiring me out…even walking to the post office earlier I found myself having to remind myself to put one foot in front of the other!
It’s a long tough journey, but each cycle is one step closer to the end, and my last cycle is due on 20th August.
Suddenly, the end is in sight, whereas when the chemo was all marked out and planned way back in April thd finish line seemed such a long way off!
Second planning appointment at Radiography on Monday, which is also another step forward.
Hello everyone, it sounds like you are all having a tough time on the Docetaxol. I also found the first the worst for many of the side effects but stay strong and keep ticking off the days. It will come to an end soon and the results will be worth it xx
Hi everyone sorry to hear the dreaded T is causing everyone worse see. My second T was today and after bloods and clinic on Tuesday my dose today was reduced by 20./’ to give my body a rest my second lasted for 19 days on last cycle and the rash on my neck hands and top of my legs were a delayed reaction. I now have antihistamines to take daily to try to avoid this again. I’m hoping se won’t be so bad this time fingers crossed. My hair has started to grow back this week,I asked today if this is normal and was told that some women experience this and that it’s not uncommon for your hair to grow back through T so I’m not shaving it anymore and see how it goes, has anyone else experiencing this. Well last T on 24th so nearly there and radiotherapy appointment booked for 8th for scan and tattooing so getting there slowly but surely xx lots of to you all keep strong we’re nearly there. Tracey hope your feeeling better soon x
Thank you everyone for the supportive comments during T, yesterday was worst day ever. I actually cried with the bone pain at one point. Managed to sleep on and off for 24 hours and I have woken with less chemo foginess and my tongue is not so coated today.
It is definitely the time to take one day at a time during this. I too, after reading your comments am hoping that this first one is the worst.
Stay out of A and E tropic and keep monitoring that temperature xx
Have just found out Holland and Barrett dont sell mauka honey 15+ anymore from the real food company so where should i get it from now? Am abit concerned it may not be someting i should have if unpasteurised? Can anyone advise re this please? Ta.x
Hi all
Se are starting to get a bit better although I’m still in bed at this time ? didn’t sleep at all last night.
Everyone is talking about radio after their chemo. I haven’t been told I’ll have to have it. I had bilateral mastectomy and diep reconstruction back in March. Has anyone els had same and having radio??
@tanya. My hair is also growing back. I think because I had extra 2 weeks between cycles 3 and 4 due to holiday and sun helps hair grow fast. But I also heard it can grow with T so haven’t shaved to see how it goes. It’s looking very grey at moment tho and I was dark
Hi I hope se effects for all have been good to you today. It’s been busy here but was good to feel ‘normal’ again.
Never thought I’d be excited that I need to shave my legs ?.
Leanne - the plan is for me to have rads as I had small margins after my mx. Did you have good margins? If so I’m guessing why you won’t needs rads.
Linda re Manuka honey- if you put ‘which Manuka honey is really good for you’ into google an article from Daily Mail is really informative. I have M and S Manuka honey.
Take care, we can off another day- Greece get ready we’re on our way ?
Sitting up in my hospital bed in Velindre. Got a temp of 38 last night, no obvious signs of infection but I am here on iv antibiotics for the night. Hopefully bloods will be back to normal and home in the morning.
Never a dull moment on this chemo journey but so glad to be able to share it with all of you lovely ladies.
Sorry to hear you e been admitted Tracey, I’ve got everything crossed that it doesn’t happen to me for the third time. My oncologist reduced the dose of T by 10% for my fourth cycle so you never know. ?
Hope you get home today.
All best wishes
Jacq x
Thank you Jaq and Jem. I am now home with a normal temp and neutrophils climbing. Unsure of the cause of infection but glad I got it checked out. Nice to be home and rest xx
ladies so pleased to hear you are ok and you got yourselves checked out ???nice and safe, I’m just coming down the aisle as captain costas has opened the spa at the back of the plane for those that have had a casa nhs wing walk and you’ve to follow me there for a bit of a pamper and special captain costas cocktail of ???we’re winning with a cherry on top duty free trolly round soon as you will be completely big into land soon, don’t forget to ring those bells ???shi xx
Hope you’re all well today…especially you Tracey…rough few days.
my weekend was spent feeling a bit rough, mainly the mouth taste and feel from the docetaxel making me feel a bit sick I think. Food tastes have changed completely so now not really enjoying it at all which is a shame as I am a girl who loves her food! Feel a bit more energetic today on day 8, first antibiotic day so hoping I’m on the up…although I was up at 5 because I was too hot so snooze time in a while!
This cycle seems to be going so much slower than the others…hoping the next ones are not too bad.
Attempting to do a bit of work today…have a good day ladies.
Thanks Tropic, starting to feel better today, it has been a tough week.
Great news Linda, makes the side effects more worthwhile hearing good news like this.
Taste changes are irritating and trying not honest my favourite foods as some ofnypu have recommended so that we don’t go off them after chemo is finished.
Still getting bone pain but so much more manageable.
Fatigue is challenging but rest, rest, rest and plan the party with Shi xx
Hi Tracey I seem to remember you are on herceptin/Perjeta? I’m also on that combo and I’ve just finished chemo. I am being treated at Velindre. I had a mammogram and ultrasound last week and the consultant said the tumours have gone down to nothing (from 2.8cm). They said they are having great results from Perjeta and have decided to give me a lumpectomy now instead of a mastectomy! Have you had your halfway scan yet? That is always a good pick me up in chemo. Glad to hear you are feeling better x
to you all keep strong we’re nearly there. Tracey hope your feeeling better soon x
off another day- Greece get ready we’re on our way ?