Shi…you’re hilarious. I’m handing out Mojitos all round from the galley if that’s ok?? If you don’t like it I’ll drink it!
Had my first Herceptin on Friday…very dull long day. Didn’t feel too bad, although lots of steroids today for my first docetaxel tomorrow…feel a bit spaced out…eek…not looking forward to it. How lovely to spend another day in hospital… Not.
i also seem to have ramped up on hot sweats at the mo. It is so lovely to have a few days away from the heat before it builds up again. I’m in the south east where it’s due to be 30 again next Friday…day 5… That’ll be pleasant.
Seems like some of us are already looking forward to the end of the chemo. Can’t wait for it to be over but just need to focus for now. Hope all of the sore mouths feel better soon. I’m going to be on alert for that as I seem to get affected by that. difflam at the ready!
Hope you all have a good Sunday and I’ll be in touch next week…hopefully not whinging too much.
Don’t know if it’ll help ladies but feel bad that just drinking water and staying off tea and coffee has helped with the hot flushes, it seems to calm mine down well ??mojitos ???all round excellent choice and who’s up for a quick ???In the aisle to hips don’t lie by shakira ???Shame we’ve not got dj Karana on board she used to upload the music to our thread, I don’t know how to do it ??? ???shi xx
Seems some of us have already had ops and some still to come - maybe we can support each other through that next stage as it comes?
@jemPD that sounds dreadful I hope u feel better soon. Glad they let you out of hospital because sometimes it’s quite hard to get out!
I haven’t suffered so much from sore mouth - ‘only’ on FEC and it seems to be worse with the other meds. However in the last few days it’s been worse - I think because my white blood count is v low because I haven’t had the GCSF injection. It’s bearable and lots of mouthwash is helping. However does anyone have any advice for increasingly worse sores on the corners of my mouth? If it carries on I won’t be able to open my mouth to eat! @Shi re music, I watched Almost Famous yesterday - feel a bit of Tiny Dancer down the aisle could be a good start? ???
I am going for my first docetaxel today. Tropic…have you.managed to sleep after dexamethosone, I killed it with 3.5 hours tonight!!
Not looking forward to today and especially after reading about some.of you ladies suffering with mouth problems but at least we will know how to treat it if it happens.
Good luck today Tracey sending u a hug xx how is everyone doing. My first T has hit me to be honest I am constantly tired and only have the occasional day when I feel ok. I have rashes on my both hands and my heels on my feet are constantly like pins and needles. I have bloods tomorrow and fifth cycle on Friday but don’t feel like I’m getting over this one yet. I sailed through the first three cycles so I think this one has hit me like a bolt out of the blue. If all goes to plan my last cycle will be Aug 24 and then three weeks off then 15 rads so keeping positive and looking forward as the end is near all my love to everyone xxx
Thanknyou JemPD and Tanya,
Just got home from 1st T, afternoon session…
No idea how I will feel but at least I have all your experiences to know what is normal and what to expect.
Sorry Tanya that this has hit you hard, I am sure the nurse will discuss it with you at your bloods appointment tomorrow. I am hoping to return to work next week which has been my pattern on FEC but ibwill see how this goes with different side effects.
Forgot to ask my fellow cold cappers - on FEC I had the cap on 30 mins prior, during and 45 mins post chemo. My nurse yesterday said I only needed it on 20 mins post T, have you all had this same advice, he couldn’t really give me logical reason just said it was protocol.
Yes Jempd 20 mins after Docataxel is what i was told. I just used a paper theatre cap under the cold cap and didnt wet hair or use conditipner.I have ordered 2 hairbands to try to cover top of head where its thin. Thank god i still have hair as they wouldnt let me use the cold cap the first time i had Docataxel. I just feel self conscious of the top bit where i had a matt cut out. Just hope it looks ok when it grows back.
I have been ok on my 2nd Docataxel apart from my mouth is very dry and bleeds when i brush my teeth. I am now going to the loo twice a day after going every 2 days. I use chewing gum and lollies for my mouth. Not sure what I can do re going to the toilet alot though as last time it wore me out and ended up going home from work at 10 as was so tired after going to the loo 3 times. It got painful too when i went to the loo and bled on 1 occasion so i stayed off work the next day and rested.
Hope everyones doing ok.
Jacqb hope your chemo goes ahead tomorrow. I doubbt i will see you again now.x
Thank you Linda
All ok for tomorrow, last of my docetaxel combo, we will be on different paths now so will not meet at the hospital but I will be keeping up with everyone here. This forum is such a blessing. ?
I have had similar problems on T. I feel that the chemo and antibiotics have conspired to give me IBS! It can get very tiresome and painful. Sudocrem is my friend ? if I have to have FEC, I hope it’s a little easier ?
All best wishes
Jacq xx
Hi Linda
I had the same problem as you after one of the first times I washed my hair it matted up on top of my head. Even though my daughter spent ages painstakingly combing it a lot of hair came out and after a few cycles a lot of skin was visible.
I had 2 FEC and 4 T and as you know I’m done now. Although I’m in week 2 so still shedding some hair the bits that went on top and around my ears have started to come back. I have at least a cm of growth in parts. So hopefully yours will start to grow before you get to the end of chemo x
Just been told someone at work has shingles although she is off today. She works in a different building from me but on the same site. If she is at work as feels ok to come in even if she still has shingls should I be here? x
Hi Linda
It’s so hard to know what to do for the best. I know from experience how sick the herpes/shingles viruses can make you. Where are you at in your cycle? If at nadir I’d say stay home. Hope your are doing ok.
Jacq xx
They are not infectious but back at work although she feels crap I am not taking steroids now so I guess its ok. Apparently once scabbed over its not infectious.She found out yesterday she had it but didnt get a sick note as not infectios.x
Linda sorry that you have to worry about ahingles on top of everything. Can you give your nurse a call? If not what about the helpline on here- I’d just get advice to put your mind as ease.
Sounds great you are back at work - hope se are being kind to you, esp loo situation,
Jacq - last docetaxel - again hope side effects are ok.
Tracey and Tropic_al - hope all is well with you after your 1st Docetaxel.
Sarah - hope mouth sores not too bad - I’ve suffered badly, tonsillitis and mouth sores are not good - can’t taste anything at all, however can swallow again so on the up?
Enjoy the In prep for Geece!! ?
Hi all Just wanted to say hope everyone is doing okay . After the 4th cycle last Tues 24th I feel like hit a wall. My treatment stays same throughout ( Hecp/ perjecta/ docetaxal/carboplatin) but since the chemo i have felt so nauseous and sick … been sick a couple of times , had anti sick meds changed . Yesterday was first day out of bed and dressed so turning corner hopefully but as I sit here now it feels like those first weeks of pregnancy sickness . So frustrating as I was beginning to think i could cope with these cycles so feel very low. Add to that should have been driving through France on my hols today … nevermind … two more cycles to go … only hoping i get a bit of a good week next. Obviously summer hols with kids off is not great time for me to be sofa lying . I know once chemo over then op is on so it just feels like this long road that I just want to stop and say hang on here . My oncologist also told me last week it was her last appt with me as she was retiring that week … rationally not a problem but feel like she understands me and have to start again with new . Sorry ? for being negative… i wanted to say all your posts do keep me going . Keep it up xx Ps if my diet has consisted of heinz veg soup and oxtail soup so if you see my stressed husband lunging in the supermarket for the last can !! ?
Back again…day 4 after first docetaxel and Herceptin, permuzutab was last Friday. Long days as always. This cycle has hit me harder than the FEC and I’m so tired and achy right from the first few days. So hot again here up to 30 degrees which isn’t helping. Monitoring my temp which is quite high on the borderline today, but hopefully it’ll drop again and I’ll avoid a trip to hospital tonight. Can’t take paracetamol for aches just in case. Hate the uncertainty. Have a sore throat so starting fluconazole and Difflam early tonight to try to stop any issues there. Totally different feeling than when on FEC.
For the cold cap girls it is at least better on T as yes only 20 mins afterwards instead of 90 mins I had on FEC…such a relief. Have still lost quite a bit of hair on top but maintaining the bandana look and hoping to persevere on to the end after this effort. The first 10 mins are horrible now that my hair is thinner but just about bearable.
We’re all doing so well…keep on going ladies. I’ll be back feeling better tomorrow hopefully.
Day 5 post 1st T - can’t sleep past 3-4 hours of intermittent sleep. The lack of energy is draining. I have a white coated tongue but no ulcers thankfully. The taste changes aren’t pleasant. I have managed to eat yoghurt, mashed up boiled egg and soup since Monday.
Chest, pelvis and thigh pain started last night but not unbearable. Monitoring my temp regularly.
Resting, dozing, reading and more resting, just gotta roll with it until it passes.
I continued to cold cap and it was okay after the first 15 minutes despite the thinning on the top of my head, like Tropic, I will continue to use it as i have persevered thus far.
Hope you are all managing side effects and coping with the returning sunny westher ladies, we got this ???
Hello ladies. I also had my 1st docetaxol last Friday. And since Sunday have not been great. The label on my steroids said for next chemo so didn’t take them when I should of very confusing labelling. Rang triage and to just keep an eye. Temp been fine but bone pain starter yesterday and is horrendous. So taking ibrobrufen and lost of rest!! Mouth was sore for few days but has passed now. 1st time for me to feel so unwell so can’t really complain just need to ride it out.
Hope all side effects pass soon for everyone
Hugs
Leanne
Xxx
Leanne, Tropic and Tracey so sorry you are all suffering from se of the dreaded docetaxel. I’m day 10 now post 1st docetaxel and a nasty dose of tonsillitis. Last night was the first time I had smiled?, keep going there is an end to the bone pain. Know what you all mean about mouth and tasting nothing- ice cream has helped me. I’m trying to decide which meal I would like when my taste buds return- what will you have? For me sea bass in a lovely sauce.
Have read a few posts on earlier threads and there appears to be a consensus that the 1st docetaxel is the worst- I’m holding on to this for us all.
Tropic - sorry you ended up at a and e- not the most pleasant experience.
We are nearly at Greece, this warm weather is just helping us acclimatise!
Take care Jem xx
- again hope side effects are ok.
In prep for Geece!!