Ann - I find I am at my most tired between days 6-9 as that is when red blood cells are at their lowest point. From day 10 I tend to pick up but I am more tired than usual pretty much most of the cycle. You may not be the same of course but don’t worry if the energy levels don’t come back too soon.
Hi dodo14 AKA Jo , RE that concert: if it was me,I’d GO GO GO xx good luck
Hi Dodo / Jo - i would definitely go if your feeling up to it - mine is also an outside gig in Finsbury Park, I will be on day 16, the forecast is good so I’m going to take it easy - lay out a picnic blanket and not get too close to the front - I’ve been taking public transport throughout my first cylcle, just using LOTS of anitbac hand gel and not getting near to anyone whose coughing so I figure its just the same. I will be taking some anitbac wipes and avoiding the loos!!
My second event which will fall 2 days before my next dose is a festival - I’m only going for one night, have got a wristband for posh loo’s that get cleaned after every go and am camping in a very posh ‘tent’ with its own bed & electricity (I believe they call it glamping!!)
I spoke to my onc about both of the above and she was all for it as long as I was extra careful about hygene and didn’t go if it was pouring down with rain. She said as long as we use our common sense and of course don’t go if feeling at all unwell why not - it can only lift the spirits.
xx
Ann, days 5 6 7 were my bad days ths time no energy whatsoever but now I’m feeling good but have put weight on so hip is hurting 
Marie
Thanks for your encouragement Aly and Mills - As long as I feel ok and it is not pouring with rain I think I will go for it. Be shattered on Monday morning though and hospital appointment at 10am!
Teresa how did your hospital appointment go today?
Just a quicky - anyone had that G-CSF or something like that ?
Karen
Hi Karen
Yes the filigrastin injecgtions I have days 4-10 are G-CSF. They help produce wbc’s. Seem to work well.
Evening moonies
Paclitaxol - 2/12 day 7
Coping ok with the side effects… still have my hair 
But struggling a bit with the whole weekly thing. Probably because its another dose in the morning? I don’t know, it’s good that the doses are lower but weekly seems like a lot right now. Guess I’m very tired.
Taken multi vitamins this week but I think they’ll take a while to kick in (if they make any difference atall). I’ve put on weight and just feeling a bit bleurghhhh tbh
Sometimes the whole triple negative thing gets to me, seems a bit isolating in some ways…
Anyway, hope you’re feeling better Anne and you’re not missing the sun too much whilst confined Karen…
Will be back tomorrow after dose number 3 xx
Hi ladies,
Never have I been so anxious…Been getting myself all hot and bothered…
The results have come back as no spread from the scans, feeling very relieved, thank you for asking Jo x
Ladies have a good evening, who’s due another dose this week?
Teresa x x
Great news Teresa. It is a worrying wait but such a relief when they confirm no spread. x
I notice you were diagnosed 1st May - do I take it that you are having chemo before surgery like me?
evening moonbeams, wore wig to work for the first time today and got lots of nice comments (and not just from people who know!) so feeling more confident about it now!
karen, , I’m having these too, I had 2 before my 2nd chemo as bloods were low then had them days 6-10 after no 2 to hopefully make sure they are ok for no 3. They are not painful, I had them in my stomach, they did want me to do them myself but hate needles so district nurse came every day to do them!
Theresa, great news
Anne, any sign of the goal yet?!
xxx
Teresa Sounds like good news- I hope you are pleased. We have enough on our plates without having to sweat out test results.
Jo and Karen - I expect we are all going to want some of that G-CSF before we are through!
FEC-T 1/6 Day (ummm…)13- Tomorrow I am going shopping for the first time since my treatment. I’ve been doing the on-line ordering from Tesco and sending people with baskets out to run errands for me but tomorrow it is Retail Therapy time, With ED who’s here with brood. Might buy us a round of Magnums. (chocolate not bubbly- the children are all under eight). Latest SE is the sandpaper in the knickers feeling. Not nice, but Zinc and Castor oil cream is working really well on that.
Oh penny not had the sandpaper feeling! today I’ve welcomed the runs hope it’s the antibiotics or the fruit I’ve eaten, and not my colitis playing up.
Marie
Hi Jo
Similar treatment plan as you, for grade 3 FEC T chemo first in the hope to shrink as much as possible.
Followed by lumpectomy, with clearance of the nodes. . . .then followed by radiotherapy. Taking each step as it comes. . .monitoring it as it goes. What’s your treatment plan?
Zuzy, well done you…must of been a bit nervous wearing your wig to work for the first time.
Very pleased thank you Penny…love your expression ‘sandpaper in the knickers feeling.’
Teresa x
Ps. . Penny
Try yogurt fresh Magnums, absolute heaven x x
Hi ladies, FEC -T 2/6 day 5
( tired and grumpy and can’t be bothered with chores! )
Namaste i am sorry you are one the weekly thing. It sounds tough. I am sending you a cybe hug! Wish I could help. I don’t actually understand triple negative myself but I believe there is an active topic about it on here some where?
Tereasa, great news!
Karen I have 7 days gsf after each cycle. Its easier then you think. Boosts your white blood cells I believe.
Dodo and Aly, its great to have something to look forward to. Have lots of fun!
Marie, I am almost bald now. . . I shall post photo when it’s all gone. We will look like sisters! Hope you are ok?
love to all
Rachel x
Sorry I missed lots of posts whilst writing mine!
zuzy, so glad for you re wiggy.
tereasa, I am grade 3 aggressive too but had ops first? Weird how differently hospitals treat us!
penny I hate to ask re sandpaper! Hope it eases.
and poor Marie, I hated the diarrhoea but think you can take Imodium
xx
Sand paper? try a bunch a grapes lol all you ladies are doing really well. im having a crisis about my hair. thoought i would be fine with it but look like a skinhead and know it will be worse when bald. i can’t seem to find anything i like to cover head without looking like an extra from pirates of C, fortune teller or carmen maranda. anyone know where i could try and find some baker boy hats? All the best to all of you and i will read threads better and catch up later, Sarah x
FEC T 2/6 Day 14
Teresa - We are on very similar treatment plans. I too have grade 3 ductal and am having chemoto try and shrink it and avoid a mx. I was initially very nervous about that order of things but have relaxed more now. It seemed to me best to get rid asap as it hadn’t spread but I understand their reasons. I too will then have suregry followed by radiotherapy, but I also need herceptin now as am HER2 +. That will start with treatment 4 or 5 apparently and last for about a year! Also I notice we are both 42 and have a daughter so very similar indeed!
Zuzy - Great news about wig. I have worn mine a few times out now but still feel very conscious about it.
Penny - Ouch that doesn’t sound pleasant at all.
Feeling pretty good today - am going to attempt half hour of exercise now…wish me luck.