Hi Sarah,
bohemia headwear do baker boy hats. I have ordered some stuff from them and its all good so far but I havent tried bb hats yet!
Glad some of us are up to exercise today Dodo! good for you. I hardly slept a wink last night as remaining hair seems determined to make its departure as irritatingly as possible…it’s like I can feel every strand falling Out! I want to shave it but as only day 6 I am not sure using clippers today?!
Have a good day and hope all moonbeams enjoy some sunshine.
x
Jo and Teresa same here for treatment plan. Only I’m ER+ which is why I’ve been on Letrozole for 6 months before the Chemo. Didn’t appreciate the SE’s of Letrozole as they creeped up on me…just appreciating them now I’m off it “for the duration”. Less joint pain, more energy (must be the steroids), but more migraine (every cloud with a silver lining usually means a little rain must fall…). Oh yes and today I notice my eyelashes are going. That’s odd as my hair is still on, as they say. I am dreading going back into the waiting room (for USS and probably also MRI) between cycles 3 and 4 which is what the CS wants to happen. I will feel more secure about it than I did before I started Chemo but am thinking about saving some distracting events or projects for then.
Teresa! Yoghurt Magnums! (or should it be Magna? My husband used to teach classics…) Failed to find them at the Co-op, instead we had lush meringue et fruits rouges flavour and I was really pleased that my Francophone grandchildren could read the wrappers. Things usually taste better in French. The red fruits seemed to be cherries and strawberries and they were real. So I got some of my 5 a day…Glad I’m getting my taste back a bit.
Aly- I had a look at the cost of music festivals and decided to give it a miss. I will listen to clips from WOMAD on Radio 3 outdoors and pretend I’m there. Next year maybe. Meanwhile, we have put up a tent on the field next door and my grandchildren and parents will be camping there tomorrow for the rest of the week! As for me I am deeply engrossed in sorting out all my mother’s old photograph collection and having a laugh at it. Very distracting and fun.
Penny - I was told I would have an ultrasound at half way point by CS but the onc says only when they think sufficient shrinkage. It is a worrying time.
I’m back home - yeaaaahhh , knotted sheets and spades were not necessary! Blood levels back in normal range!
I totally understand the hair bit, past couple of days I’ve left trail of hair everywhere, not much left but its so sore , gonna fetch the clippers out later and take control again
Jessie dog despite her escape is sulking and preferring grandma and grandad :(. Oh well I must smell of hospitals
I will write a longer post later
Keep smilingmoonbeams
Karen
C
Glad you are back home Karen. Are you getting the injections now?
I’ve only had the one butgot the impression it was a long lasting one, chemo delayed a week, lower dose also
Did you get awful back pain with the injection? My lower back was v painful last night
Karen
X
Karen, i got pain in my bum and thighs after the first one, was agony! Took nurofen and it went away, apparently it shows it’s working, just wish they had warned me!
Karen welcome home now keep those feet UP! As for Jessie, my kids always used to ignore me after I had been away. Even when they were in their teens!
Thanks Rara, will have a look. Glad your home Karen, you must be sooo pleased. think i’ll go hat shopping at the weekend, any sugestions? will try clair’s and accessorise. Take care all x
Glad to see your home Karen, nothing beats being in your own bed x
Jo and Penny, very similar except I’m a triple negative sub-type, which makes me pretty nervous, but I will be here to pass the 5 year mark and many more… . . .
Anyone of you ladies live in Surrey, I’m being treated at East Surrey Hospital.
Teresa x x
Karen there are different types of injection and there is a long lasting one so that must be what you had. I have to have 7 days worth of injections days 4-10. By day 9 and 10 I have terrible pain in my thighs, arms and lower back. It does clear with ibuprofen and only lasts a couple of days. They said it is the bone marrow releasing the wbc in a burst.
Rachel thaks for the tip about hats. I have bought a rather nice sunhat which is like a bandana at the back. I may wear it to the concert on Sunday.
Teresa I don’t really understand what triple negative means - why does that make you nervous? I like in Hertfordshire so fairly close.
Teresa, I live in Sutton, just down the road (sort of!) Perhaps we should try to meet up sometime? Although i’m not triple neg I understand your nervousness, you’re doing everything you can though and the chemo will be destroying the little blighters!
Dodo, Triple negative tends to be more aggressive than other types, it’s very responsive to chemo but not responsive to hormone therapy or herceptin so after surgery/chemo/rads no further treatment available.
Ann, any foal news?
Good luck anyone having treatment today, I really have lost track of everyone!
Xx
FEC 1 day 6, and time to celebrate with me.
I am a grandmother. 5 days over due, but at 2am a huge bay colt arrived. Sadly I could not be with her but my best friend who is is also my vet held a hoof throughout.
God bless lactulose. - sorry but had to share !!!
Feeling better today. Days 3/4/5 have been rotten.
Good luck to everyone at it today.
Ann xx
hiya world - I am back on pc !!
Congratulations Ann on being a grandmother, do we have a name ?
I too have lost track with everyone - so apologies if I dont ask everyone specifics at this point I still need to catch up, having a mobile to use while in hospital isnt the easiest (or cheapest!) way of trying to read, I basically posted and read the last message or too
I think everyone one of us are wonderful, we are kicking cancers ****
I think my injection must have been a long lasting one as there has been no further mention of daily doses etc, my lower back was so so painful that night so I knew it was working overtime and so pleased the count had gone from 0.27 to 5 overnight
I am sort of taking it easy today, just pottering around and typically its dull, not venture outside yet as last night I made the decision to get oH to remove the last remaining strands of hair, he said I could cry as much as I needed at the time but be proud from now, I dont have Eleanor Wigby until Friday so having to use scarves etc, which I really do feel that everyone must be staring at me, not dared venture out as yet. As someone put it before I really do now feel like a cancer patient
I will catch up reading all the posts very soon
take care everyone and huuuuugggggeeeee hugs to all
Karen
x
Congratulations Ann and glad you are feeling better now.
Thanks for explaining triple -ve Zuzy - what hormone is yours receptive to?
Ann congratulations! Sounds beautiful. Name?
Ann congratulations - so pleased it all went ok.
Teresa and Zuzy - Im East London so an easy (ish) trip / train ride to Surrey or South London?
No news to report other than by the look of the shower plughole this morning I won’t be needing a razor or waxing for a while 
Also womens hour this morning had a discussion on the latest news about Tamoxifen for those of you who are going to be taking it post treatment - you should be able to download it on BBC i-player - I haven’t listened to it yet but sure it’ll be interesting.
Hope anyone have treatment this week is doing ok.
Aly x
Hi everyone- hope the new arrival is doing well Ann and welcome back to Karen- sounds like a really long haul in hospital. teresa- I am sure we all feel nervous at different times about different things- does anyone else find themselves getting unhelpfully obsessed with the side-efffects or potential problems of the next stages- raiotherapy, drugs etc as if those of chemo weren’t enough to be going on with? In connection with this Aly I listened to Woman’s Hour and of course got anxious about the SE’s of tamoxifen and the possibility of having to live with them for 10 yers now! It feels like tamoxifen will turn me into something else again that I don’t want to be. Yet again it is impossible to predict if you will be one of the poor folk who have trouble with it. I also wind forward to further breast surgery altho that’s a way off too. Has anyone else had a reconstructrion? I had LD flap not anticipating rads or chemo so hope the recon survives the rads. But it will definately need work as it is not the right size/shape- Do others shift from one worry to the next or have a way of dealing with it?
On the other hand- beautiful June day here and I def. prefer being able to wear a sunhat on my nearly bald head. Can’t face my wig somehow and scarves make me feel much more ‘cancer patient’ so keep the sun shining!
Love to all
Barbara
Afternoon moonies…Teresa, I don’t feel so lonely now, I didn’t realise you’re TN too. Not that its’ something to be pleased about of course but I do fret sometimes knowing this treatment is ‘it’ so to speak. I’m in Sussex so being treated at the Sussex County in Brighton… weekly paclitaxol for 12 weeks 
(on a trial)
Anyway, congrats Ann for the new arrival… yes, we need a name (moonbeam has a ring to it). Glad you’re feeling better Karen. Hopefully things will go better from now on now they know your reactions to the treatment.
Hope everyone’s managing and enjoying the sunshine if you have any. I’m optimistically waiting for a delivery of sun hats 
xx
I ordered a lovely sun hat cum bandana from Bohemia headgear (courtesy of Rachel). It arrived today and is great. It has a visor and completely covers so you can’t quite tell. Think it will become a favourite - and I can also wear it on top of my wig for an even more natural look.
Aly - take the benefits of no shaving/waxing as a positive - mine are still growing. My eyebrows and eyelashes seem to be holding in there too which I amvery happy about. Long may it continue.
Barbara - I find myself thinking about surgery all the time. I am havong chemo first in the hope it will shrink making it a lunpectomy rather than a mx but part of me thinks just take it all off so it can’t come back. Did anyone opt for an mx or double mx even though this wasn’t deemed necessary? I know some people do…