Dear All
Lucy I am so sorry and will keep my fingers firmly crossed for you tomorrow. And thanks to everyone for their support over my husband! Much appreciated. He is actually in a bad mood today but there you go! Trevor the cat is fine, as is Sophie the female cat who is gorgeous but much more self contained than Trevor. I had a bit of trouble getting on here but realised finally there is a sign in box. Also thank god there seems to be a spell check added which is a boon for the careless typist! (Except it doesn’t seem to be working!)
Hope you hear something soon Pauline. And wow, Lollie, that seems a lot f time spent in radiotherapy. I will try not to think about that until the time comes.
Much love to all - quiet day today and nothing much to report.
Dilys
Hi Dilys
I found it a bit difficult to post when I first got on here…I don’t think I will be having the chemo, my partner and family are all against me having it, I have posted to ask what if I dont have it…so I will let you know
Love
Lucy
XXXXXX
Dear Lucy
I am so sorry. I am with you all the way my love. I can’t believe you have stood all this only to find the last hurdle so awful. I will hoild you in my heart tonight and until we hear from you again. Love you so.
Dilys
xxxx
Hi Lucy
Just want to say that I hope all goes well with your consultant tomorrow. I’l be thinking of you.
Love Lollie x
Dear Lucy
Love you. Everything crossed for you my love.
Dilys
Hi Ladies
Thank you very much for your kind support, I have geared myself up to have the chemo today, but will find out when I get there, I know last time my onc said there was some doubt over whether I would have it or not, I did get a couple of answers back to my question and it seems it would make little difference if I didnt have it…I just keep thinking my God it is nearly over and all I can think about is planning a holiday, I took one of my Lorazapam tabs with my antibiotic last night and it seemed to knock me out, not that I am complaining, I feel on a high this morning not sure why…will let you know later what the outcome is…
glad that everything is going well for you all and that your husband is doing well Dilys.
I just keep thinking what will be will be. Everything is planned out for a reason…oh well I have lost the thread abit since not being on here for a while will have to get back into it again soon…
takecare all
love as always
Lucy
Hello Lucy,
I hope you are feeling a bit better today and your chemo goes as you have planned. wishing you well for today.
I’m not too good with computers so its taken a while to post, this new way seems a bit confusing but i suppose i’ll get used to it!
Love Candy.
Hi Ladies
Would somebody please let me know if this appears on the thread.
I posted yesterday, but not at all sure it arrived.
Many thanks
Pauline
xxx
Dear Lucy
On tenterhooks to see how you do today. Sending you all the strength in the world.
Much love
Dilys
Hi Ladies
I am ok, well I say that, I have a local infection in my implant boob apparently, I have had quite a bit of the saline reduced in it, NO chemo today and it is debatable whether I will be having any more, the nurse was a bit disapointed as she was trying her upmost to make me have it until my consultant said NO! as my normal onc is on holiday I saw another and she also said NO after she had read the notes as my oringnal onc he has already said it is debatable whether I have it or not, my partner to was getting very grumpy with it all. I thought he was going to explode at the nurse…I have to go back for an assessment next eeek to see where I go and how the infection is< i dont have to go into hospital at this point that was my biggest fear, more than of chemo…my consultant said to me Lucy you really dont like hospitals do you…what does he think!!!
thanks for all your thoughts and strength they got me through this morning
Love you all
Lucy
XXXX
Dear Lucy
Oh god that does sound painful. Are you back on the antibiotics? May be just may be this is the end f cemo for you though? Which has to be good?
Have a rest and try to have a good weekend.
Much love
Dilys
HI Dilys,
It has been more uncomfortable than painful, I just felt the needle a little bit when he drew off the saline from the boob, yes I have the antibiotics I was already taking and my consultant has given me another week supply and said if they dont work he will have to change them for something stronger, he is such a lovely man I am so lucky to have such a good consultant. He really puts you at your ease and mum and my partner said he always goes over to speak to them in the waiting room and shakes their hands.
I had gone thinking maybe I would have chemo today but they were adamant that it wasnt going to be, I will have to wait for my Onc to come back from holiday to see what he thinks about it all.
I was just concerned that it may be rejecting it self but that is highly unlikely apparently…
how are you now? I know you didnt have chemo and quite rightly so…do you start it this week?
oh well hope you all have a nice weekend…
Love
Lucy
Hi Everyone,
At last I am back - you have no idea the trouble I have had getting back on here for the new forums, it just wouldn’t let me in, said my user name and password were not acceptable!!! Anyway spoke to a very nice man just now and finally I am here. I was worried I would disappear for ever from here and you would never know what had happened to me!!!
So sorry to hear about your plight Lucy, it was so frustrating reading it all and not being able to post, but you know my thoughts were with you every minute.
I believe you said last week your implant was not right, maybe that was the beginning of the infection. I have read on here about people getting their chemo reduced by 25% so I would guess that not having the last one would be the same principle really. hope next week they can give you some more definite answers.
Dilys how is your boil, is it going down? Also thank you very much for that web page, the advice under basics was well worth reading and I also thought they had some lovely hats, etc.
Well I phoned the hospital today and have to report on Tuesday 10th July for pre chemo advice then I start the dreaded deed on Wednesday 11th July. I am to have 3 FEC, 3 Taxotere followed by 5 weeks radiotheraphy and one year on herceptin. Oh joy!!! Said to hubby, I am so looking forward to loosing my hair, my nails, putting on weight and anything else it chooses to throw at me! You wouldn’t wish that on your worst enemy would you? Anyway in for the haul and am preparing the fighting spirit, which you lovely ladies have sent my way.
So Dilys it seems that you and I are on much the same course but I shall just be a week behind you. I am holding out my hand to you now, here we go.
In the meantime, as I have a week off I have decided to go to Butlins with my lovely daughter and two lovely grandsons. We are off Monday and back Friday.
Do hope you all have a good weekend.
Love and hugs to you all
Pauline
xxxx
Hi Dahlia
Yes I know what you are saying, I will always be wondering whether I have 5 or 6 to be honest with you, I am that sort of person…at the moment itis not clear what will be happening just that I can have it at the moment, I took my Lorazapam all ready for today thinking I would be having it, but anyone looking at my boob can tell that there is something wrong it, it looks like a traffic light and that is after it has started to go down.
when I was first went to my GP i was told it was a cyst, then a surgeon sent me away saying the same, thank God for my consultant now, because if it wasnt for him I dont think that I would be here today…
the only thing I take consellation from is the fact that it hadnt spread to any nodes…
Love
LucyXXXX
Hi Pauline
how funny about being shut out of here…I found it a bit of nightmare and I think other people are still trying to get to grips with it…I just wish the infection would go apparently my bloods are fabulous it must be the spoonful of black treakle I have been having YUK!!! I am frustrated as I feel it has put me back a few strides I just want to get it over and done with.
enjoy your weekend and your holiday
Love
Lucy
XXXX
Hallo Pauline and everyone
So glad you have things sorted and we sound as if we really are going hand in hand! Same regime and length of treatment as me. Well done and I will let you know how I get on next Thursday. Feel me grabbing your hand? And yes the boils are disappearing rapidly thank goodness. Try not to copy me in that one, won’t you? Which Butlins are you going to then? Not another one with Bognor connections surely? Glad you liked that web page. I am going to stir myself and get ordering this weekend. I know it is all going to happen but keep thinking I may have a few weeks till it really kicks in!
So much love
Dilys
xxxx
Dearest Dilys
Yes another Bognor connection! We have been going to Butlins at Bognor every year for the last 7 years - the grandchildren just love it. Mind you the eldest is 13 now so I doubt there will be that many more trips, I expect it won’t be “cool” to go away with Mum and Nan soon!!
What happped to your trip to your brother’s, I thought you said you were going for the weekend recently? We quite often go to West Wittering on day trips - when the weather is decent - as it’s not too far for us. Have you ever been, it’s not far from Bognor?
I have grabbed your hand and don’t intend to let go until this is all over.
Hope Hubby is okay, and get that ordering done this weekend.
much love
Pauline
xxxx
Dear Pauline
I was feeling poorly and didn’t go that other weekend in the end. But do enjoy the Butlins stay! Yes I know of West Wittering. When we are with my brother we tend to stay in Bognor (sea is enough of a joy for me!) or go to Bosham or Emsworth or Littlehampton which I love personally. We were thinking of moving there when I retired but feel so tightly bound to the hospital here right now that I can’t contemplate it for a while.
My eldest step granddaughter is 8 now, and the other one is 18 months. All I can say is that I love them dearly and wish that they and their mum were really mine. I am so lucky to have them bu proxy, as it were.
And yes I will order! I can feel your hand in mine now my love.
So much love
Dilys
xxx
Dear Dilys
I know what you mean about moving at the moment. We were seriously looking at it about 6 months ago then all this happened. Trouble is you get so used to one hospital it will be difficult now to move even after the treatment.
How lucky you are to have such a wonderful step family, it’s so refreshing to hear as quite often step families can be trouble. Enjoy them my love.
Hope you have a good weekend, the weather is awful though isn’t it.
Do you know why on the title of our posts it says last comment by moderator? I couldn’t see one?
lots of love and hugs
Pauline
xxx
Dear Pauline and everyone
Yes I am indeed blessed with my husband’s family. In addition to the lovely daughter, her husband and the grandchildren I adore his sister. We have just spent the day with her, and she has been a star over all this bc trouble. Last time I was there I had not long been diagnosed and we spent the day chatting in her lovely garden in very warm sun. Today of course we were indoors! Isn’t it horrible weather?
Never mind tomorrow we will be holed up indoors ordering scarves, listening to the Archers and watching the French Grand Prix. And doing the ironing in my case!
Lucy - hope you are feeling a bit better now. That sounds so sore with the implant. Mine still feels like a hoof planted on my chest, so hope it is going to be worth it in the end.
Lots of love and kisses
Dilys