Hi All
Pauline, how lovely for you to be able to fit a week in a week at Butlins before your treatment starts. I do hope you have a lovely time with your daughter and grandchildren. Let’s hope the weather improves for next week. We will look forward to hearing all about it when you are back.
Lucy, I hopeyou are feeling a bit better now and the infection is clearing.
Love to you all.
Love Lollie x
Hi Lollie
Bit by bit we get back! Lovely to hear from you and hope you are fine. Listening to the rain pouring down outside as I type. Really hope it clears up for Pauline next week.
Much love to all and going to bed soon - ish (age showing?) so more on Sunday
Dilys
Hi Dilys
Thanks for the message and lovely to hear from you too.
I have been going to bed early too. I really am hoping to start stayng up a bit later when the effects of radiotherapy wear off though.
Love Lollie x
Hi Ladies
I am glad to see that you are all doing ok and keeping each other going, I don’t have much to say for a change, it feels kind of weird, like I am stuck in limbo at the moment…I hope you are all enjoying the weekend
Love Lucy
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Dear Dilys, Lollie and Lucy
Thanks for your good wishes for next week, whatever the weather I am determined to have a good time!
Dilys, I will be thinking of you so much on Thursday my love, and I can’t tell you enough how much I want it to all go well for you.
Lucy I will also be hoping you are feeling better soon and get to hear what is next for you.
All my love and hugs
Pauline
xxx
Dear Pauline, Lucy and Lollie
Thanks so much for being there. It has been a better day than we could have hoped for. We loved the French Grand Prix. And I have promised myself to stay with you all. I have been reading other threads about chemo and had a real wobble this afternoon. I am terrified and really don’t want to do this thing next Thursday. It so helps knowing that you are all there. But I am still scared witless. Will pull myself together shortly and get on with it. But it is such a bu**ar isn’t it?
Pauline - have a great week away and enjoy it! I will be leading the way for you and me. Let’s hope we do well. Lucy darling - hope you are feeling ok and better by now. And Lollie - hope the radio is going ok. Right now I can’t wait to be there! I can’t believe I am suddenly being such a wimp.
Love to you all
Dilys
xxxx
Hi
Dilys, I can understand how you are feeling but you are certainly not being a wimp. Chemo was not as bad as I thought it would be and was doable. Also, you might not get some of the side effects that you have read about as everyone is different. Please try not to worry too much (easier said than done, I know). I will be thinking of you and checking on here regularly to see how you are getting on and if there is anything I can help with just let me know. We are all here for you.
Pauline, I hope you have a lovely time in Bognor.
Lucy, I hope you have had a good weekend and are feeling a bit better. Whatever happens, chemo is nearly over for you so you are nearly there.
Love Lollie x
Dear Dilys & Pauline
Pauline have a lovely holiday next week…
Dilys, now is no time to wobble,you will be fine just relax and try to take it as it comes, mum said to me once, Lucy think in the long term if you don’t continue with the chemo and you get it again some where that they cant cure just because you didnt have it how an earth are you going to cope with that,the trauma and the pain, that really woke me up Dilys and from that day on I just went with it, mum is a realist and I knew she was right…
love you loads Lucy
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Dear Lollie, Lucy, Dahlia and everyone
Thanks for the support. It does make me feel better, and you are all of course quite right. Just hope I can be as brave as you all when I get there, and that the side effects stay away. Worrying beforehand just doesn’t help. Funny the way it just comes over you in a wave sometmes, when mostly I cope with it fine. At least tomorrow I am going with a friend to Hampton Court Flower Show which will take my mind off it beautifully, even if it does rain!
Lots of love to you all
Dilys
xxxxx
Hi Dilys
I hope you have had a good day at Hampton Court Flower Show and it hasn’t rained too much. You said in your last message about us all being brave but I have to say that I really don’t feel brave at all. Like Lucy says if you think in the long term, if you have all the treatment that is offered then you have done all you can to beat this disease. That thought kept me going.
Lucy, are you ok? We havn’t heard from you for a couple of days. I hope you have been feeling better and getting out and about.
Love Lollie x
Hi Lollie and Dilys, Dhalia and pauline and Candy
Yes I am fine, I have been out and about trying to get some sanity back into my life, still feeling sickie and tiredish but I think that is going to be a while before that subsides after all the poisoning, visited my work today on the way to obtain an MOT for the car…I felt a bit like people where looking at me as a show, I guess it is in my mind, after all what do they think I would look like, 2 heads???
I guess it will be better when I have hair and eyelashes again, I hope that you have all had a good day, I hope you didnt get too wet Dilys I live about 20 mins from H Court and gee did it thunder and rain at about 16.45…
oh well trying to keep myself up feeling slightly in limbo at the moment not knowing if I am going to have the final chemo or not and worrying about not having it as much as having it if that makes sense…
Love to you all
Lucy
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Dear Everyone
Yes I did indeed have a great time yesterday and we didn’t get too wet. I know what you mean abut that thnderstorm Lucy - we had literally just got on the train at Hampton Court so we watched it in the shelter! Other than that we were very lucky. She is such a good friend and it all made me feel normal for a while.
It is so so good to have you all there. Woke up in a panic this morning thinking today was the day but of course it is tomorrow. I am going to try blind optimism until I am proved wrong. It has got me this far! I shall just be virtually holding all your hands. Ad of course I shall just be leading the way for Pauline.
Much love as ever
Dilys
xxxx
Dear All
I hope that you are all well today? Dilys, I just want to wish you well for tomorrow and remember take it as it comes, don’t fight it just let it do it’s job…what time are you having it tomorrow? will be thinking of you all day.
I get a bit fed up of reading the doom and gloom on here sometimes, sorry guy’s that’s why I havnt been on here for a few day’s, but I will be checking regularly Dilys to see how you are doing…
Love
Lucy
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Hi Lucy
Am feeling ok about tomorrow. Have a look at the thread about undergoing treatment. Sounds hopeful. Lucy darling I will be holding on to you tomorrow at 10.00 am when it all starts. I had a bad few days but am now going with the flow. Are you ok my love? Have worried over you so much.
Lots and lots of love
Dilys
xxxx
Hi Everyone
I have just got back from a day out in Eastbourne and had a lovely day and even the rain stayed away. I think we were lucky though as I see parts of the south have had torrential rain again.
I just wanted to wish you all the best for tomorrow Dilys. When I had my chemo I had quite a long wait each time and on my first session I found it quite stressful waiting as I wasn’t expecting it. I am not sure if it is the same at your hospital but the reason for the wait is that they don’t make up the chemo until you are there and this takes quite a while. Anyway, I just thought I would mention it so you could be prepared just in case. I will be thinking of you all day tomorrow.
Lucy, I know what you mean about the doom and gloom getting to you. My family think I am on here too much but I still find the support given by everyone is invaluable. When do you find out if you will be having your last chemo on friday?
Love Lolliex
Hallo Lollie
Thanks so much for that. I have no idea what to expect except that they seemed very kind. Might explain other people talking about long waits though. We have a purse full of pound coins for the car park! And I second that about spending time on here. Computerate illeterate husband thinks I am mad! My sister in law rang today wanting me to ring a stranger about chemo. I feel I have enough support from you all, and others.
Lollie - thanks again. And Lucy, you take care and let us know how you are.
Much love
Dilys
xxxx
Hello all,
Just checking in, i’ve been a bit down the last few days and haven’t been on here. Good luck with those of you starting on this chemo journey, i wish you well and hope you don’t suffer too badly.
I had my last Epi today ( no more canulas!!! ) i start on the tablets in two weeks time, surely they can only be better.
I had a bit of a panic attack in the doctors room today, husband was not impress (not very patient ) but managed to get it done.
I’m off to lay down now as not feeling too good, love and best wishes to you all, i hope every thing works out on friday for you Lucy.
Candy.
Hi Candy
Glad it was your last epi. Sleep tight my love. Tablets just have to be better. We will get there somehow but isn’t it all a right pain?
Love
Dilys
xxxx
Hi Ladies
I hope that you are all ok today, I darnt read other posts on here at the moment, as like you all, it is slightly getting me down, perhaps it’s the weather or something making us all feel like this… Glad that you have finished the Epi Candy, I get to know tomorrow what is going to happen with mine, it has been nice having that extra time to recoup in between if I still have to have it, it has been nice to feel quite normal again taste wise etc…I hope that you are ok Lollie, I know what you mean about being on the net I get comments like are you still on there, what else are you suposed to do its not like you feel like running a marathon, I feel like I am turning into a real grinch at times…to top it all I got an email yesterday asking me when I would be returning to work, my doctors cert signs me off til the end of August… honestly…
hope that everything has gone ok for you today Dilys and that you feel ok…
Love
Lucy
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Hi All
Lucy, just read your post about your works e mailing you asking when you will be returning even though you have a doctors cert. Sounds like they are putting a bit of pressure on you which isn’t fair when you have enough other stuff to deal with. I was made redundant about 3 weeks after diagnosis after 10 years working for the same company and although I was unhappy about this it has been nice to be off and not feel any pressure or guilt about not being at work. Anyway, as I am 2 weeks past radiotherapy, it won’t be long till I shall have to be looking for work again. In some ways I want to get on with looking for a new job now but I think I need a bit of time to recover so my doctor has signed me off till August. Good luck for tomorrow.
Dilys, I hope you have got on ok today. Let us know how you are. I’ve been thinking of you today.
Lots of Love
Lollie x