Hi all
I’m with Lucy - I think this weather is getting us all a bit cranky. I know if it doesn’t dry up soon I will go round the twist - I haven’t been cycling since the 17th!!!
Dilys - let us know how today went, been thinking about you. I went out for the evening after my first FEC but then I was out and about for the entire 5 months of chemo - I think they were pumping water through me really. So, already you are 16% done with chemo - that’s double figures, congratulations.
D
Hi everyone
Thanks for thinking of me today. Much appreciated. Got back half an hour ago. The main adjective that springs to mind is BORING. Feel ok so far but not sure when or if anything might kick in. They are very nice there and did warn me about the colour when you wee! Think next time I can get the bloods done the day before and they can prepare the stuff, so it shouldn’t take so long. Felt very sorry for my husband. I can always amuse myself listening to everyone else, but he can’t do that as he is very deaf (new hearing aids coming next week we hope). Got sandwiches and endless cups of tea provided, which was great.
So, so far so good. The next few days will be the acid test I suppose! But one down and only five to go, as you say Dahlia. Just hope I can emulate you.
Lots of love to all
Dilys
xxxx
Hi Dilys
It’s good to hear that you are back and everything was ok. Like you say one down and only five to go. It doesn’t sound too bad when you say it like that does it!
With Love
Lollie x
See Dilys you said you couldnt do it and you did it, just take it as it comes, take it easy and let it do it’s work we are all proud of you and like Lollie says,say it one down and five to go that is what I used to do…once you get to 3 it will really go quickly, let’s hope you sail through it and all our strength is with you, take it easy…
love to all of you
Lucy
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Dear Lucy and Lollie and everyone
What would I do without you? I hope my experience will also be some help to Pauline who will be back from a rainy week in Butlins to start next week. Not feeling bad yet…!
Lots of love
Dilys
xxx
Hi Lollie
I dont know why they are putting on the pressure at work, it’s not like they are paying me, I am just ignoring it really far to much to think about and it’s only a job, it has really opened my eyes with this illness of how people treat you…I hope all goes well with your job hunting until then take it easy and enjoy the time you have off…
Love Lucy
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Hi Dahlia
No way! Decided ages ok to give up on the cold cap. No one in evidence there having one anyway although there were some boxy things with wires on the wall… If there is one thing this site has taught me it is to let your hair go with grace! And it had taught me many things!.. Still feeling fine and have had a few glasses of wine! I am sure you will al here if it goes pear shaped but right now am planning a huge Tesco trip tomorrow. Like you said Dahlia I am feeling a bit hyper right now and can’t quite want to go to bed. Poor bored but relieved OH crashed out a couple of hours ago!
Lucy - a job is but a job. There is so much more to life. I think I am lucky with my now ex-colleagues who are, many of them, staying in touch to the point I could cry! Happily that is. And a couple of lovely people I met in hospital.
Sleep tight everyone and see you soon.
Lots of love
Dilys
xxxx
Dear all
I hope that you are all well, went to the hospital this morning boob is now fine, got to have my last chemo on FRIDAY the 13th, how wonderful, they now say I also need 5 weeks of radiation treatment oppose to what they originally said 3 just because I have an implant in, why cant they get there fact right in the first place…sorry I am moaning…yes a job is a job and the job is going to have to wait judging by this morning…I am glad you are fine Dilys but I dont think you are suposed to drink alcohol straight after chemo it says so in my chemo book and on my sick meds, I hope you will be ok doing that…
oh well winding myself up now about what is to come
Love to you all
Lucy
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Dear Lucy
What a date to have chemo! But at least that will be that. Radio sounds tedious but ok. I am still fine. Can’t quite believe it really. Tired though and goingto bed now.
Love to you all
Dilys
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Hi Dilys and all
I am so glad that you are still fine, the tiredness usually really kicks in about 7 days after the chemo, my first one although really sick I was out and about a few days after full of life, the more I had the more tired I became I feel better prepared and more full of life going into the last one, rather than going straight into it…yes rads will be tedious all that travelling everyday nearly 3 hours, I could be on a plane going somewhere nice in that time, how people do that everyday just to get to work is beyond me.
At least preparing for the worst anything over that is a bonus there is nothing else. Let’s hope Pauline fairs the same.
Tried to get a quote for holiday insurance to go to Tenerife when this is all over I was quoted nearly £300 on one of these so called recomended websites for 7 day’s what a joke…that is the equivilent of one person’s holiday for a week…I am very stuborn and said I am not paying to make someone rich out of my illness and I am not going now.
I did after all get a nice email from work telling me not to worry just to get better so that made me feel better and a few people have been emailing me from there which is nice…
oh well off out to mums friends for the reiki and reflexolgy that I normally have before chemo…
have booked to see Colin Fry in November so I may hopefully see what my future holds
Love
Lucy
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Dear Lucy and everyone
Good morning - at least the sun is out today. Hope this manages to cheer us up. And glad you have a nice e-mail from work at last. I am so glad I don’t have that pressure as I was leaving anyway. Mind you the income drop this month is going to be a bit of a facer as I was expecting to get something else. Ho hum. I am still feeling ok and slept like a log last night. I feel a bit guilty in a way, but hope it lasts. Spening the weekend immeresed in the British Grand Prix so hope the rain hlds off for the qualifying the morning and the race tomorrow. Bit of an obession in our house as my husband is an ex Grand Prix mechanic (hence the deafness!).
Who is Colin Fry? Sorry to be dim!
Loads of love and courage
Dilys
xxxx
Hi All
Dilys, I just wanted to say how pleased I am that you are feeling ok. Long may it continue.
Lucy, my husband was going to buy tickets for Colin Fry for my birthday but I wasn’t sure I wanted to go. Fear of the unknown I think!! You’ll have to let us know how you get on. I sort of wish I had gone now. Anyway, on to holiday insurance. I have got a policy with Aberdeen Insurance Services who charged me £18 for 2 weeks in Spain and I took it while I was still having treatment. The only thing is that if you have to claim for anything directly related to breast cancer they will increase the excess to £250. Other places don’t seem to want to know while you are still having treatment. Their phone number is 01472 826672. They were really friendly and helpful too. Give them a try.
I had rads over 5 weeks as I had an immediate LD reconstruction and it was not as bad as I thought and the time went really quickly. I think you have a gentler dose over 5 weeks so it is less likely to cause a problem to the recon or soreness to the skin. I had rads to the lymph nodes as well and my collar bone area and back were sore but not the breast. I am sure you will be fine too.
Anyway, must go as my daughter is picking me up soon for some retail therapy.
Love to all.
Love Lollie x
Dear All
Back from a very wet and windy trip to Butlins but really enjoyable all the same.
Dilys I was thinking of you all day Thursday and am glad that so far you have been okay. Enjoy the grand prix, my husband watches it all, funnily enough he is also very deaf - nothing to do with being a mechanic - so I understood your comments about waiting around. Lewis Hamilton is brilliant isn’t he?
Lucy I am so sorry you are feeling so blue at the moment and hope everything goes okay for you on Friday.
I am off to the hospital on Monday for pre chemo then I start on Tuesday, a day earlier than I originally thought. At the moment I am at that stage you were Dilys where I am dreading it and just want to sit and cry! Anyway as Lucy’s Mum said, better to do it than not - what a wonderful Mum she sounds.
I hope everyone else is okay and enjoying this bit of sunshine we have today.
Love and hugs to all
Pauline
xxx
Hi Lollie, Dilys, Pauline
I love you guy’s so much…you always make me feel so much better and like Lollie say’s Dilys don’t you dare feel guilty about feeling well…I would rather it didnt make people feel so ill and I wish I was one of them, I’m sure one day they will make a sick/symptom free chemo and the sooner the better so people don’t have to suffer… my dad will be glued to the Grand Prix I used to watch it but don’t watch much telly since having BC, not sure why I don’t really…
Colin Fry is a clairvoyant I beleive, mum wanted to go so I got her tickets, she won’t go without me though…
Thanks for the information Lollie about that insurance company, I was so angry yesterday I think that is why I burst into tears I just thought we have all been through enough and then when you come to do something nice it gets taken away from you…I just thought I am not going to make people rich from my illness, I sort of had a vision of vultures and a carcas from it.
Pauline…you will be fine, just look at Dilys and no one was more frightened than her, I found to let the emotion out helps enormously, so I scream, I shout, I cry and I get angry too, you have to let it go otherwise it just builds up, once you get the first one over you know what to expect although none of mine were ever the same each one was different, I am hoping my last one doesnt mimic the first that would be a nightmare, everyone is different, just let it do its job and trust me it will be over in no time at all once you reach number three and get that over with it flies by for me it always came round too quickly…
oh well ladies enjoy the rest of the weekend with your families
Love as always Lucy
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Hallo All
Welcome back Pauline! Hope you had a good time in Butlins despite the wind and rain? Sounds as if you did. Am so pleased to say that so far it hasn’t been bad at all. Just hold my hand virtually and pray hard and you will be the same! I didn’t have pre chemo so do let me know if there is anything I should know! Will be thinking of you on Tuesday but in touch before then. My husband should get new hearing aids next Wednesday which could be great! I do really understand that one!
Lucy - clairvoyants? I am better at blind optimism myself. But good luck anyway Years ago my mum took me to see Billy Graham and we remained glued to our seats!
Lollie - thanks for the comfort for the future. Like you I have no idea how I would manage without you all.
Much love my dears (and where is Dahlia?) Joining the Tour de France I hope, and loving it.
Dilys
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Dear All
Dilys, so glad to hear you are still okay - you must be able to feel me not holding, but gripping your hand? Will let you know about the pre chemo, but I am sure
there is nothing you don’t know, like we said before different areas, different ways.
My husband had some very expensive digital hearing aids a couple of years ago, he thought they were the best thing since sliced bread. He then got an ear infection a few months later and hasn’t worn them since because they need “readjusting”! Men eh! Hope your husband is more successful with his.
Lucy I am so glad you seem to have perked up again and yes I am sure I will let all my emotions out, I never used to but have learned now it helps me.
love to all
Pauline
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Dear Pauline
Grip away! I am still fine thank goodness and fns the anti-nausea tablets today. It is very weird as you keep thinking smething must hapen, but nothing so far. Oh knw JUST what you mean by the hearing aids and men. Mine has been thrugh two lots already - first were stolen, second lot just has one functioning badly now, and the third ones I am just praying will be ok on Wednesday! They are just so expensive, aren’t they?
Isn’t this sunshine great? They say it is going back to the rain again tomorrow so I hope we all enjoy it while it lasts.
Lucy - how are you today? Hope you are still more cheerful.
Lots of love
Dilys
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Dear Dilys
I am so glad you are still okay, I find myself tentatively looking for your post with fingers crossed. Let’s hope you continue this way.
Today I am feeling more upbeat than I did yesterday, but I expect tomorrow I will take a dive again as Tuesday looms ever closer!!
Yes I think the rain is back tomorrow, I did read somewhere that the weather is continuing like this until September - hope they are wrong we will be
back to winter practically by then!
Lucy I too hope you are okay today, hopefully you are doing something enjoyable.
Dilys did you order the hats?
lots of love
Pauline
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Hi All
I have typed this once already but lost it before I posted it! Try again.
Pauline, good to have you back but glad you had a good time in Bognor despite all the rain. It’s lovely to have a couple of days of sun isn’t it. Yesterday, I went along the seafront at Eastbourne and it was so lovely. I hope they are wrong about the rain lasting till September. As I have finished treatment and am not working for a couple of months I was looking forward to a nice summer. Oh well, never mind. I am glad you are feeling a bit more upbeat today but it is quite normal to be a bit apprehensive. I am sure you will be fine though, just like Dilys. I will be thinking of you on tuesday and hope all goes well (Just in case I don’t get on here tomorrow!)
Lucy, I hope you are feeling a bit better today. You are nearly there now with your treatment and that holiday sounds great. I booked my holiday just after I finished chemo and it has been lovely having something to look forward to.
Dilys, so glad you are still feeling ok. I see Pauline is asking if ordered the hats. I can’t remeber, have you got a wig yet?
Hope you are all ok.
Love Lollie x
Hi ladies
glad you are all ok, yes I am fine…looking ever forward like Pauline to chemo…NOT, just hope the delay doesnt make my hair fall out again my head feels like sand paper now so my hair is definately starting to come back…the weather has been fab today but too hot to go out in whilst having chemo, once it is over I will be out and about in it so I hope it doesnt rain til Sept…
Lollie can I ask how did you find rads? I am scared about being sick or getting the trots as I have to get the tube into London and they said this could be a side effect?
yes I really am going to check out that insurance policy and think about going away, mum said she would pay the insurance but I am stubborn and will not pay someone for my illness…
Love to you all
Lucy XXXXXXXX