message for dollybird.
message for dollybird. I read your post under another heading. I know exactly how you feel I was the same. It felt like there was a drip drip of information, it was all bad. I was shocked to get bc in the first place, I hadn;t taken hrt breastfed 6 kids ate sensibly. I was so ignorant of bc. I had a 4.5 cm cancer and 4 nodes infected with vascular invasion. I wasn’t told about the vascular invasion until I asked 4 months after dx. I I too had a bone scan and there were two suspect areas. One in my skull and one in jaw. The jaw one was from a tooth extraction in Dec 2006. I had x rays of skull and had to wait three weeks for results. This, they said was enlarged sinuses. I had to ask for these results and the onc said oh, theyre still on the computer. Having waited three weeks I was literally shaking with fright by the time he came back in the room. I couldn’t even feel relief as was so down by then that nothing seemed to matter. I have finished chemo on the 1st of May and waiting to start rads. I hope it is just wear and tear on the bone scan. Take care let us know how you go on. you will get loads of support here some of the ladies are so knowledgeable. I never have to 'phone bc nurse as get most of my advice from this site. Without this site I would be on 'phone nearly every day! Love Eileen
Reply for Eileen765 Hello Eileen,
Thankyou. Just getting your reply has lifted my spirits. To know that someone else has been in almost the same situation is quite comforting, not that I would wish this on anyone.
I too thought this would NEVER happen to me and I still feel that it is unreal and any time now someone will tell me it’s all been a big mistake and I can go back to being the person I was a couple of months ago.
I have never smoked, never had HRT, breastfed my three children for well over six months each. I have a reasonably healthy diet and am not overweight. Maybe it’s the fair few glasses of wine etc. consumed over the years? Who knows?
I also had a small vascular invasion but didn’t know what this was or what it meant.
The bone scan showed other areas of wear and tear in the lumbar region and in my hips but this other area must look different. Further X-rays were taken of my spine on the same day and these obviously didn’t rule out the possibility of secondary BC. I dare not let myself hope that it’s not bone METS but all the same I’m longing for better news!
How did you get on with the chemo Eileen? Did you opt for the trial (TACT2)? How are you just now? I expect the RADS won’t be as daunting as the chemo and will you be having tablets later?
I do hope after your next lot of treatment that you will be very well for many many years.
Thanks again, love, Dollybird. x
I too had loads of wear and tear due to quite severe arthiritis due to broken leg and ankle ten years ago. I also have it in my spine. I was really scared when I had to have further x rays. The onc said the bone scans pick up every little thing and they have to check everything out. I am sat in bed sulking today as I don’t want this bc I hate it and if I had eyebrows and eyelashes I would go to the pub and get blathered. I had three fec and three taxotere they were awful but time has flown. Lethargy is the worst symptom for me as I was very active despite arthiritis( I swam 4 times a week which realy helped) I have been really lucky on this site I have chatted to about 4 other ladies who have been at the same stage of treatment as me and we have really helped each other. I am 4 weeks away from last chemo and I still get tired easily. This is to be expected but I always was very impatient. I want to wake up jump out of bed and get on with my life. I have loads of friends and big family but would never talk about bc like I do to the people on this site. Here I can moan whinge and say things that would upset family and friends. I hope you get as much out of it as I have keep in touch Love Eileen
Missing Post? Hello Eileen,
I’m wondering where you found my first posting as I can’t see it anywhere?
I’m not sure how evertything works yet with the forums so maybe I did something wrong?
I hope this message finds you really well today and looking forward to the rads being out of the way.
I have my appointment for the MRI scan in Glasgow. 7th June so should not be long before SOME treatment of SOME sort. Really don’t want any if I could get away with it !
Love for now, Dollybird. x