Hi I was diagnosed following a manogram - tiny calcifications across breast 8cm area so mastectomy and diep flap stomach reconstruction It was 93 days from results to operation because it delayed by the NHS strikes twice. It was "receptor positive and Her2 negative "so additional treatment may not be required . However when they removed the SNB it has multi focai micromastitus in it - it was on the discharge notes !
The surgery was in London so under a different hospital trust but now the surgery has been done I am being transfered back the the hospital trust near me / breast cancer team. no one can tell me anything at the moment but apparently there is mdt meeting on Tuesday ( 2 weeks today since I has the reconstruction surgery ).
I am worried and concerned and it seems there is not a lot of info on micromastitus and last posts here on the subject seem to he from 2008/ 2009
What a shock. It’s never a good thing to be kind of unique in this unfortunate world and I do sympathise as I’ve never found anyone with my precise diagnosis and progress. I recently was told I had a blood clot “in a quite unusual location” and my response was “Tell me anything that has been ‘usual’ about any of this!”
Anyway, obviously I’m in no position to help you but I would strongly encourage you to ring the Nurses’ Helpline (number top right). The nurses are all very experienced and knowledgable and excellent listeners and, if anyone can help, it will be them. If they can’t, they will signpost you. You could post your question in the Ask Our Nurses forum but a phone call is quicker and much more productive in my experience,
I wish you all the best for a good outcome - but there is no predicting what this cruel disease can decide to do so, much as I wish to, I can’t say don’t worry.
I understand that this is a concerning and challenging time for you. I’m not a medical professional, but I can offer some general information that might be helpful. It’s important to discuss your specific situation with your healthcare team, as they will have the most accurate and tailored information for you.
Micrometastasis refers to the presence of small clusters of cancer cells in the sentinel lymph node (SLN) or lymph nodes. It is a term used to describe very early and tiny metastatic spread. The significance of micrometastasis can vary depending on various factors, including the type of cancer and individual patient characteristics.
Here are a few points to consider:
Multidisciplinary Team (MDT) Meeting: The MDT meeting is a crucial step in your care. It involves a team of healthcare professionals, including surgeons, oncologists, radiologists, and pathologists, who review your case and discuss the best course of action. This meeting helps tailor your treatment plan based on the specifics of your situation.
Receptor Status: You mentioned that your cancer is receptor-positive and HER2-negative. Receptor status can influence treatment decisions. Receptor-positive cancers may respond well to hormonal therapies. Your MDT will likely discuss the appropriate treatment options based on the receptor status and other factors.
Follow-up Treatment: Micrometastasis in the sentinel lymph node may influence decisions about additional treatment. This could include further surgery, radiation therapy, or systemic treatments such as hormonal therapy. The MDT will consider various factors, including the extent of micrometastasis, to determine the most appropriate next steps.
Communication with Your Healthcare Team: It’s essential to communicate openly with your healthcare team. Write down your questions and concerns so that you can discuss them during your appointments. Your healthcare team should be able to provide more information about your specific case and the recommended treatment plan.
Supportive Care: Dealing with a cancer diagnosis and its treatments can be emotionally and physically challenging. Don’t hesitate to seek support from friends, family, or support groups. Many hospitals also offer support services, including counseling and support groups for cancer patients.
Remember, advancements in cancer research and treatment occur, and your healthcare team will guide you through the most current and appropriate options for your situation. If you have specific questions or concerns, it’s crucial to discuss them with your healthcare providers for personalized advice and information.