Hello All
I need some help had docetaxel last wednesday, ist one, but 4th chemo,had 16mg steroids tues wed thurs then 8mg friday 4mg sat 2mg sunday then no more, had sore throat yesterday also having lenograstim injections for 5 days from sunday as neutrapenic. Awake most of last night even with zopiclone rang cancer ward 5.10am they wanted me to come just felt to ill to travel 15miles with weather as well.GP came out this morning have really bad thrush in mouth cannot swallow except through straw has given me Nyplastin i think, also soluable paracetemol.
Is there anything else i can do.Cannot believe the pain it is at this time of night you panic, just want pain to go away
Katiej
sorry you are not too well Katie.
Try using a non alcohol mouthwash I find that helps. If nystatin does not work ask GP for a systemic anti-fungal such as fluconazole
Linda
XXX
I realy feel for you its horrible isnt it, i had oral thrush and throat infections throughout my chemo , i used Difflam mouth wash and difflam spray for the back of the throat used up to 8 times a day as perscribed by my onc i also had a supply of Fungilin Lozenges to suck which realy helped . It realy does make you feel miserable because it is so painfull and is hard to eat or drink, i found ice lollies helped a lot, i would often get up in the night for an ice lolly and i also used a straw too for drinks, jelly is also good and cooling. for your throat, i used bongella for mouth ulcers numbs the pain a bit , hope this helps a bit it will get better i promise .I used the mouth wash constantly even when the thrush had cleared up as a prevenative .
Good luck and i hope it clears up soon
Lots of hugs
Lindiloo xx
Dear Katie
I can’t add any advice to the above messages - just to say that I had oral thrush after each Taxotere found that Fungilin lozenges cleared it up really quickly.
I do hope you feel better soon.
Anthi x
HI Katie,
Sorry you are having such a horrible time.I used all the things that the girls have mentioned, but I did gargle 3 times a day with a soluble asprin and it did help the soreness. Hope it gets better for you soon.
Love
Jillx
Hi
Thanks for allyour help. Had t go into hospital next morning got very panicky as could not contol the pain only came out last night.My neutrafils were 0.06. Put me on oraform and soluable paracetemol, two lots intraveneous antibiotics.Was put on Lenograstim last sunday for 5 days but oncologist extended it to today.So they were a bit shocked neutros were that low but luckily i had read it on this site other people have had the same thing… Have come out with tablet everyday for 10 days for mouth thrush, augmentin antibiotic orally 625mg for 8 days oraform taken with a syringe into mouth 5ml plus soluable paracetemol 1000mg ( found that one with out the other just did not work) but two together brilliant . So try to hang on to taking oraform every six hours if cannot cope take it without paracetemol.Still not on solids yet but not sipping through a straw.Also started with thrush down below last night so have got caneston cream and used 500 pessory last night when i got home. Was told off for not going to hospital sooner but thought stupidly that i would get over it. Was treated brillantly.Am writing all this for info when i wrote the other night did not think i would get any replies but thanks so much the support is fantastic.
Love and best wishes to you all
Got home for the last one of the Choir !!! just have loved that programme anyone else been watching it.BBC2firdays 9.00pm
Kate xxxxxxxxxxxxxxxx apologies for spelling
Hi Katie,
Gosh you poor thing sounds like you have been having a rotten time. Glad the hospital have got you on the medication to give you some ease with the pain. Rest as much as you possibly can, get your strength back up. Take Care and Thinking of you. Keep us posted.
Love and a huge Hug
Jillxxx
HI Jil;
Thanks for that posting am sleeping for england at the moment think it is the oromorph, but if i had not read this site about the dxsf i think that is it, would not have known your neutrafils can still go to nought with the injections this is why this site is such an essential part of my life my neurtors are now 7.75 whgich is ubelievable long may they stay there
Lots of love to you and best wishes and once again thank you everyone for all their support
Kate xxxxxx
Hi Kate
How are you feeling? Hope you are feeling a bit better , thinking of you and wishing you well
Lots of Love
Jillx
Hi Jill
Slept for england again today b ut tonight is first night am not going to take oromorph just soluable paracetemol. Feeling a lot better thank you so much for asking think i will go out for a walk tomorrow. How are you and what stage are you at/
Lots of love and take care
Kate xxxxx