I was 32 when I was diagnosed with stage 2 BC, hormone-positive mucinous carcinoma, underwent lumpectomy, 8 rounds of chemo and 20 rads. It came completely out of the blue and with no history of BC in the family.
I finished the chemo and rads in June this year and I have just started tamoxifen, prescribed for the next five years. I was a soldier getting through the first half but I am struggling moreso with getting used to the every day routine of tamoxifen and side effects.
Mucinous carcinomas normally occur in post-menopausal women and so it is really difficult to find other survivors who are younger. I am keen to meet more younger women with a similar diagnosis to share the experience.
Hi Louise ,if you ring the breast cancer care helpline they have a “someone like you” service where they can put you in touch with a person in similar circumstances ,there may be someone on their list with similar diagnosis .
I am 35, 36 in a few days actually! Diagnosed with mucinous carcinoma 2 days ago after biopsy to a 2cm lump discovered whilst on holidays… I am still numb, upset, confused…
I have my op booked for the 8th of Sep. Sumpectomy with SLNB… As yourself, Mine is also Grade 2 and no BC in the family…
Would love to stay in touch, maybe you can guide me through this journey? Sounds like you are well ahead of what it is the race of our lives :smileysad:
Hi ladies I was 31 when diagnosed with bc hormone receptive and no family history. Am struggling with the life after treatment rather than the before treatment even after a long diagnosis. Have recently started anastrozole and zoladex (anti hormone treatment) and looking to share experience also with younger women. I had a mastectomy earlier this year with delayed reconstruction. After also losing my mother sadly 2 weeks after all treatment finished I have opted to not have and reconstruction.
Think this is a great place to share experiences and support
Hi Louise, I was diagnosed with mucinous carcinoma in my left breast in June last year just before my 45th birthday, grade 2, stage 1, I had a lumpectomy & 3 weeks of radiotherapy, lymph nodes clear.
I am taking tamoxifen, I had some side effects in the beginning but apart from night sweats I have been fine so far.
What treatment did you need?
I realise this is a bit delayed from your post but I also had mucinous carcinoma at 33 (14 years ago) and had 6 rounds of FEC and 18 rads. I took Tamoxifen for four years and did find the side effects lessened over time. Now that I’m having hot flushes again, I’m reassured to know that they pass!
I hope you are getting used to the tamoxifen now at least and feeling better. Do get in touch again if you’d like any more info.
i came across this and am too is diagnosed with mucinous carcinoma, stage 1a. i am 40 years old and based from my searches, this type of rare cancer is common among older women. i had smx on my left breast just met my onco yesterday, i was advised to go on a chemo and hormone blocker. technically i’m cancer free since my surgeon removed all the cancer and all negative for my lymph nodes. i am thinking of not going through an adjuvant chemo and just take tamoxifen.
i am still struggling with the decision because of fear of it coming back. i want to know, the percentage and possibility of mucinous recurrence since based from what i read, it is one of the less aggressive cancers.
i want to know about your experience battling this cancer.