Hi everyone I’m new to this forum, I had stage 1 grade 2 bc last year and recovered after treatment, I’ve not felt right for about 10 weeks, reduced appetite, off tummy etc, had blood tests and a couple of enzymes were raised so had an ultrasound and it says multiple suspicious lesions throughout liver, ct scan booked for Monday but I’m pretty sure that’s for confirmation of liver mets. I’m really frightened and shocked, I’ve been foolishly googling and looking at sites that say liver mets has a poor prognosis, I just need some help as I’m not coping x
Hi , I’m really sorry to hear this , it such a worrying time , I had stage 1 BC in 2019 , the year later my sister in Law was diagnosed with stage 3 and she has recently been diagnosed with liver mets .
The waiting is always the worst time and I’m sure once you know what you are dealing with and start treatment , if needed , you will feel better .
Until they tell you it is , it’s not !! I just wanted to respond so you know you are not alone , I’m sure someone else will be along soon with some excellent advice , take care
Sending lots of love
Hi Ejane I’m relatively new here. My story is a carbon copy of your previous BC . Stage 2 in 2017. Onkatype test results low risk of reoccurrence. In July I had abdominal discomfort and had an ultrasound that showed multiple lesions. Since then I’ve had scans , liver biopsy and now on hormone / targeted therapy- Kisqali, zoladex and anastrozole. Finished 1st cycle and so far so good. Research on this combination therapy seems good and I’ve been advised to treat this as a chronic illness . Back working and living my best life. Good luck with diagnosis. Waiting around is the most difficult time.
Hi EJane
Firstly I want to say how sorry I am to see you have SBC & particularly liver mets, and I can tell from your post that you are understandably scared.
Can I share my story with you - I was diagnosed de novo SBC in Dec 2012 with bone mets when I was 44. By Oct 2014, so 8 years ago, I added liver mets. Never have I asked for a prognosis or looked at any statistics- the oncologists don’t know for certain & stats are out of date as soon as they’re published. I never expected to be still around nearly 10 years later but after over 60 MRI & CT’s, 5 liver biopsies, surgery, radiotherapy, participating in a clinical trial at the Marsden, and 17 different drugs I am still here. It’s very scary sometimes, I won’t lie to you, but trust in your team & always have things planned to take your mind off the cancer.
I wish you the very best in the future.
Helen x
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