Hi my name is Sue I was diagnosed with breast cancer at christmas, went early January to have markers put in it was the worst thing ever they had to do, put wires in the bottom of my breast but put it in the wrong place couldn’t remove it when I came out of there I was crying it was like a torture chamber. 2 hours after that I had half my breast removed. A week after opp I had extremely bad infection so had to have a drain fitted to collect the puss had to empty myself 2or3 times a day that eventually cleared up. Had to go back for a follow up appointment they had removed the cancer I was all clear then they said but they had found some more so a week later went in and had my lymph nodes removed going next week for follow up appointment to see what this biopsy says and what they are going to do next. I am in my 70 and I don’t know if I can go through any more xxx
Good morning Sue, I’m so sorry you’re going through all of this. There is so much going on for you. It’s a small comfort but there are people here for you and in my own experience talking helps. Be kind to yourself and come here whenever you need to. You are not alone. Sending you a warm hug. Shirley x
@millie7 what an awful time you have had. You are very welcome here and can always say just how you feel. There’s lots of information too and you can give our nurses a call if it would help to talk. The waiting is so hard. Hugs xx
Sorry not sure how to use this site but it is so good to talk to someone outside the family. I am in so much pain with having the lymph nodes out, can’t sleep it burns, sore it doesn’t matter if I wear a bra or not it just rubs all the time it’s so sore. Has anyone got any ideas please xxx
Hi @millie7 I see you have asked our nurses a question on the forum, which is a good thing to do, but I wonder whether you might get more out of it to speak to them on the phone. Their lines are open now and will be until 4pm today and I do think you’d get some comfort and reassurance from actually speaking to them. They are kind, patient and experienced breast cancer nurses who won’t rush you. If you’d like to call them, the number is 0808 800 6000.
Hello @millie7
So sorry to hear your story and that you have had such an awful time of it . Just in relation to the rubbing / soreness I’m wondering if putting a silk or bamboo scarf between your skin and your bra might help . When you move instead of rubbing against your skin your bra would rub the against the material and the material should glide over your skin . With less rubbing maybe your breast area might become a little less sensitive - forgive me if you’ve already tried something like this and it hasn’t worked .
Sending love and hugs xx
Yes will try that every time I move my arm it rubs the scar and the lump seems to be getting bigger. I have tried guaze, padded plaster but then it covers the wound up and I think it needs to breath. Just brought some sports bras front fastening for breast cancer. I need something that is soft to put where it is rubbing x
Just need something padded my bra is for breast cancer post opp but it’s rubbing so much it’s not going to heal. I am just fed up with it all now my last opp I had to remove some cancer in the milk ducts last month I had a really bad infection and had to have a drain in I was so ill. I also find there isn’t enough support my clinic is always so busy they just don’t have the time I would like to be able to talk to them tell them how I feel ect xxx
Use silk or bamboo as they’re natural and breathable and kinder to the skin - bamboo has some natural antibacterial qualities as well . If you’re able to double the material up it may work better to prevent friction. Yes finding the right bra is important - I had the past surgery gras from M+S and also the Flexi fit crop tops which give fairly good support and have soft pads in them . Have you spoken to your GP surgery about pain relief or something to help you sleep ? It isn’t something I would normally ask for but I would if I was at the end of my tether and many people on here have done . Also I would echo @Tigress advice re speaking to the Nurses on the helpline - particularly as you feel that your BCN service is too busy to give you the support you need . Xx