Marnster ,
Thank you for that detailed and touching post.
I’m so gutted for you that you went through all that and are still going through it . This horrible disease is truly evil .
Your story has made me realise that I just need to get on with treatment and recovery is most important thing , especially for my children who are under 11 .
Thank you for taking the time to reply I knew that experience is sometimes better than advice from doctors who mostly know theory’s and haven’t been through it .
Much love 
Just came out of hospital tonight. Admitted yesterday at 5.30am . Had another stroke like incident but lost my speech for hours. They’ve given me Dex to release the pressure on the frontal lobe. Still haven’t got my speech or thinking back to normal. Cancer has spread into lungs, liver and lymph nodes. Another consultant told me by mistake. Seeing the oncologist tomorrow morning. Had to cancel family holiday to Majorca but gave away to a family of 5 in need. May be booking a family holiday in England tomorrow for my 60 th xx find out newcplan tomorrow xx that care all
Hi Babsy,
Poor thing! How very scary. So sorry about your holiday xx but just take some deep breaths and tread water for a while … a lot to absorb
You said another consultant told you stuff ‘by mistake’ was that incorrect? Because nowadays cons won’t keep stuff from you … in fact sometimes they over stress the neg side! They have a duty to keep you informed.
Being n hospital is often yucky… I find it makes me feel
Powerless x
Glad you are out xx
Let us know your new care plan.
Love and hugs
Moijanxx
Oh and if it helps… your writing and account of stuff seems pretty good so
Your thinking is getting back to normal x
Mx
Hello babsy
So glad u r enjoying a family holiday. .isle of Wight is perfect for chilling out and relaxation.
I quite enjoyed going to osborne house and felt quite nostalgic thinking of Queen Victoria and her family.
Enjoy xxxx
Hello peachy pal
That looks lovely and makes us realise what a beautiful country we live in and now with this illness it makes sense to stay in the UK limits just in case! !!
I live in Devon and have lovely beaches just ten miles away and some pretty scenery and moors.
Xxx
Hello ladies,
so pleased to hear about all your exploits! Babsy and peachypal, enjoy your break away…mmmm champagne is quite my favorite beverage.
have been suffering a bit with my knees…not due to bc, but think i had the car seat a bit too near the accelorator.
anyway, have seen the chiro, who has manipulated them for me. They feel a bit better today. Havent been doing much as its still pretty warm! Talk soon to you all…Carolyn have you a holiday booked? And if so where? Or do you just enjoy a permanent holiday?
xxx Moijan???
Hello Moijan
Sorry about your knees …hope u sorted now. No holiday booked as living here in Devon. .everyday is a holiday!! Like my own comfy bed …memory foam and topper for the achy bones suits me.
Xx
Hello truffle shuffle
Just enjoy some rest and relax until the wbr has passed through your system. …
Put on some dvds or watch some daytime TV, and hopefully you are being spoilt by the family xxxx
Sending loads of hugs from us all.
Hi Emma I’ve sent you a message with my email address.
Marnster, sorry you’re having a rough time. It was scary stuff but the dexemethezone has returned me back to normal and hopefully WBR will reduce the swelling on a more permanent level for a while.
Truffle, I’ve got the fear of the unknown at the mo concerning WBR. my oncologist talked about doing Two longer sessions rather than five shorter ones. However it helped there were things that I could possibly do to help myself. Keep on onward and upward xx
Carolyn , you’ll be happy to know I’ve been indulging in chocolate every day. Well I am on holiday ha ha.
Hi everyone.xxx
could we praps have the link to the article re reducing side effects of wbr? Please?
The reason I ask this, is that lots of shy people scan these threads and brain mets are pretty scary, as are brain tumours…everyones pet dread, after ‘vision loss’ so if you could post the _ link _
Youd likely be helping loads of future ladies…when this thread started with Carolina…I scoured and scoured the internet and this site and there was very little info at all which would help/reassure her.
so please, please share on here and all the silent stalkers can also benefitxx
thank youxx
Truffle, …hope things are slightly easier now…have not been on site for a while…sorry. I hink the steroids do help…my friend with a brain tumour has had a reduction in side effects, it works to reduce the brain swelling
( from the treatment). Lots of love to youxx also to Babsy and lovely Marnster, who has been having a ‘bum ride.’
Moijanxx???
Hi everyone.xxx
could we praps have the link to the article re reducing side effects of wbr? Please?
The reason I ask this, is that lots of shy people scan these threads and brain mets are pretty scary, as are brain tumours…everyones pet dread, after ‘vision loss’ so if you could post the _ link _
Youd likely be helping loads of future ladies…when this thread started with Carolina…I scoured and scoured the internet and this site and there was very little info at all which would help/reassure her.
so please, please share on here and all the silent stalkers can also benefitxx
thank youxx
Truffle, …hope things are slightly easier now…have not been on site for a while…sorry. I hink the steroids do help…my friend with a brain tumour has had a reduction in side effects, it works to reduce the brain swelling
( from the treatment). Lots of love to youxx also to Babsy
Moijanxx
Truffle shuffle
Well done for getting the wbr …let’s hope everyday gets better for you now …loosing mobility is cruel as we take for granted these things.
Hugs xx
Hi Babsy
I usually start the send to process as if I’m going to email it- the proposed email then appears with the link in it - I copy the link and then past it into my post on here
Mx
Hello everyone,
Well, thank goodness I copied this message to a word file (part of a safety practice of mine) as it completely disappeared soon a I pressed ‘Post’. Lesson learned… phew!
So sorry, I have been missing for a good few weeks but you’ve never been out of my thoughts. Have been going through stuff but, after catching up on this thread, am realising it’s nothing compared to what some of you ladies are dealing with.
The heat a few weeks ago arrived the day after my chemo and literally knocked me for six - I seem to have turned into a wimp where hot days are concerned, never quite recovered from that… my bad arm seems to be getting heavier and more tingly and is affecting my balance… eyes are blurry… I found a lump in my other breast but relieved to eventually discover it’s nothing sinister… suffering with severe constipation and swollen feet, both of which have been painful (of course, the painkillers cause even more constipation, haha, so I’m armed with a combination of prescribed laxatives ?)… water works are on overdrive… and my blood pressure has skyrocketed!!! And yes, apparently the new BP medication can cause, you guessed it, constipation and swollen feet. Cannot sleep at night but I can snooze for England during the daytime. Loverly. ? Other than fatigue, I shouldn’t complain because I’m slowly improving. All tests are fine and am encouraged because my latest brain MRI shows no sign of progression. Mum and sis are nagging me to slow down. Have to admit they’re right, I need to listen to my body more. Honestly didn’t realise I was overdoing it until I burned myself out.
Truffle, glad your wbr is all done. Take time and rest lots. Are you on Dexamethasone steroid? I used to joke that dex made my mouth move, I just couldn’t stop eating. Hoping for a good outcome and you eventually being able to walk unaided.
Babsy, that photo is idyllic! Belated birthday greetings to you. What a wonderful way to celebrate, you deserve a decent break. Sorry you’ve had such difficult, scary time. Glad a plan’s in place and keeping everything crossed that wbr and chemo prove successful.
Marnster, stereotactic radiosurgery can make you super exhausted and for a good long while after treatment. Happy to hear vomiting has ceased and, wow, your bloods are excellent. Fantastic news! Best of luck with chemo.
PeachyPal, lovely photograph. Hope you enjoyed your time away and also that you’re beginning to notice your legs getting a little stronger now that you’re off the steroids.
Moijan, great idea re the link. Are your knees getting better?
Hope everyone else is doing well… Carolyn, Zena and Nicky. Hope I haven’t missed anybody.
Think I’ll look into a spa weekend/few days away somewhere. I’m a self-confessed city girl and I love this town but right now feel I can benefit from a short relaxing break.
Much love. ??? xxx
Well. Normally cautious Moijan threw common sense to the wind and accidently got sunburnt on her arm two days after chemo!
It was a lovely afternoon in Lyme Regis by a sandy beach. With an occasional paddle, very little sun. … hadn’t noticed any readness. Just a mild headache-goes to show
Then noticed temp going up -sunburn does that. Drank loads of water and took paracetamol - put e45 on my arm and we headed home today!
Am fine just now … but a lesson for me -I often forget and think I’m just like everyone else, but of course we aren’t are we? ??
MX
I did know how to do it, ha ha. Just forgotten that I did. This is an interesting article about ways of helping yourself through the effects of WBR. My GP has prescribed 2mg Melatonin and queried the amount and said 2 mg is maximum allowed to prescribed. I’m just gonna take that.
I’m already taking most of the other stuff, but not all. Not going to add anything extra cos of what I’m already doing. I get my green/ veg fix by blending them and haven’t had in ages so that’s starting again tomorrow by making a four day batch.
Just got to decide when to buzz hair short, probably tomorrow afternoon. Should have bought a water based dye …still time. Going into my former school tomorrow, (was head) as one of my mates is retiring. Will be nice to see everyone.
Take care all xx
Babsy, thank you so much for that xx will help future readers
Glad you are managing to gad about a little Xx enjoy
Moijanx
Truffle shuffle
Keep enjoying the ice cream and chocs. …probably steroids that are making you into a gremlin !!I’m not sure from your posting if you have had the wbr yet though ?
Sending loads of hugs xxxx