Babsy
Just seen that you have been holidaying on the Isle of Wight- that’s where I live! What a shame that we didn’t get to meet. I hope that you enjoyed our lovely island and you had previous family time. All the very best with your treatment and I hope it works its magic on you.
Love Helen x
B****y predictive text ! Should read precious family time -Sorry!!
Hello Helen
I too have enjoyed some lovely hols on the Isle of Wight. .such a calm and relaxing island …you are lucky to live there …although I live in Devon which is also very nice !!
Truffle, im no expert, but its my guess that there wont be a ct of your brain for a while…I think there will be effects from the wbr over a period of time and they will want to wait a while…to revieiw after that period…but do ask. The other thing is,
and again have no knowledge,but they might choose mri rather than ct, to save more radiation to the area…again, I would ask…I did have a brain mri once to rule out a growth and brain mri’s go into great depth.
Best wishes and yes -overdose in ice cream and anything that appeals…why the hell not?
love Mojan???
Babsy, veryvery best wishes for the treatment -you can compare notes with truffle later xx
we are all thinkng of you.xx
Moijanx
Truffle, a P E? Pulmonary embolus- drink loads. Follow their instructions-did they give you aspirin?
Try not to worry- they must be closely monitoring? Apparently we all have the odd tiny clot which dissolves itself, but do ask them why they aren’t treating it-must be a good reason .love and best wishes
Moijanxx???
Hello babsy
Phew you are going to be very very busy over the next few weeks …just the thought of.moving house makes me tired …and having treatment too so look after yourself and rest as much as you can.
The henna tattoo sounds good and yes I think more media coverage into mbc is a brilliant idea … I think I read somewhere that survival rates for bc are 84% now but then that’s for five years …there does seem a lot of us here for the other 16% and I think more research and funding is offered for better treatments .
Hugs xxx
Yes Babsy…dont be too quick to think you mght fly away early…lots of research going on and i say,
never giv in nor give up!
love to you and yes it sounds very busy at your end!
rest as much as poss x
Moijanxxx
Babsy …sorry to hear of another hospital trip but hopefully you got patched up and sent back home. You are lucky having a hubby with some medical knowledge although bc is probably not his thing …more piles, blisters and gun wounds maybe !! Ha ha.
After I had finished my primary treatment I did follow Jane plant diet for a while but I’m only human and it fell beside the wayside after a while !
Hugs xxx
Babsy, so sorry to hear you had a bad fall. You’ve a lot going on with WBR plus the move & even though you clearly have a lot of help, all the activity can rearly take it out of you so I hope you’re able to get some rest.
I read an article on FaceBook yesterday about an oncologist who’s carrying out a study being done on women who have been living with MBC long term - a couple of the ladies featured for approximately 40 years! The researcher is hoping it will give a better insight as to why they’ve survived so long & whether the information gathered can unlock answers “medicinally or environmentally” that can help other MBC patients survive longer. It’s not clear how long the study will take - hopefully it’ll be continuous with questions answered. I’m grateful for any research done as I do agree MBC awareness is limited in the mainstream because, as you say, the potential reality of one’s BC returning & spreading is too scary to think about.
I’m with you… am indulging myself in the arts. Plan to spend the summer months in museums & learning how to take better photographs with a ‘proper’ camera, haha!
Please take care, Babsy.
Much love ?? xxx
Hi Truffle, keep heart & hope.
Always thinking of you.
Much love ?? xxx
Oh Babsy-- sorry about the fall -I get dizzy sometimes and falls are an occy hazard for mature ladies Xx
I too am a bit of an artist ( no rude jokes ladies) I believe there’s a lot in what Lissa says… why am I still here 18 years after my bc got missed? I am about 4 yrs mbc now -liver and bones but there’s a lot in the theory that Barton quoted recently - support from others with cancer helps us to live longer Xx
Please try to believe you could have a lot longer than you fear - it’s a good way to be-- tho I know the mind plays up - wants to protect us from
Surprises by predicting worst case scenario - thus evening I have diagnosed myself with
Fleas, thyroid disease, kidney disease, liver deterioration etc etc all due to having backache from poor posture and itching all over ! See what the mind does ?
I have been known to make long lists for myself and then say ‘well, I can’t have ALL these things wrong with me at once’!
Best wishes, no more falls now xx
moijanx
Yes… truffle
How are you tooxx
M???
Love to you too Lissa my dearxx
Moijan, I’ve done exactly that… diagnosed myself… time & time again! Often it’s been something but usually treatable & not worst case scenario. I’m a real coward, the slightest thing would set me off. Am finally learning not to panic with every twinge, ache, blink & tickle I feel. It’s taken a while for me to ‘calm down’ (for want of a better term) & the mind ‘games’ are so real. Cancer does that.
You’re still here 18 years after your BC was missed… I continue to be inspired & encouraged by you. ?
Please stay well.
Lots of love. ???xxx
Lissa, Carolyn, Moijan and Marnster
Thanks for the support guys it is SO appreciated ???love emojis ha ha x
Marnster sorry that you’ve ended up in hospital, but it’s the those bugger germs that get circulated on planes. I’ve often worn a surgical mask in these situations or in waiting rooms etc. Get funny looks but who cares? Husband possibly, but tough Titties. I must be easy to live with eh?? When we had our family holiday on IOW to celebrate my 60th and the ?Hit the fan, I’m separating the good from the bad and cherishing those memories. Others in the family are finding it more difficult but that is their journey. I have grown so much as a person since MBC diagnosis.
I also love seeing your pictures so I’m going to indulge myself and post two. Sorry folks!!
Truffle, my thoughts are with you. Take care xx
Ooh dear! You are all leading such exciting lives! Mine isn’t as lovely currently - but meeting a large group of old friends-and one pain in the a, among them! But am sure overall will be a good experience - seemed quite cool last night after all our very warm days- hope you continue to recover Marnster - too much high living !
All of you have a great day and thank you Lissa for your comment too.
Am hoping truffle is feeling a bit better Xx
Moijan
??Xxx
Marnster, hope you got home without any hiccups & that your temperature has settled down.
Here’s to a quick recovery & more desserts.
??? xxx
Hi Truffle, best wishes for your treatment and am sorry about your hair, but hopefully it will return again later. If they are now going to go ahead then they must feel it’s safe to proceed … keep us posted xx
Marnster … you’ve had a bit of a tough time, hope things even out a bit now for you… and yes it makes sense that the cyst might reduce as swelling goes down as the cyst. Is part of the brain tissue and if that shrinks-then the cyst should shrink ! Very frustrating for you -a bit in limbo for a while xx fingers crossed now for you both Moijan xxx ???
Hello truffle shuffle
Sending u loads of squishy hugs and hope u feel better soon…cape is a powerful pill so hoping it will do what it says on the tin.
Xxxx