Maria Louise,
i pray that the scan goes well for you…and that you get really good results.???
if my thoughts were of help, I’m so very glad…we are all in this together…and I have had some wonderful support from ladies on here…, sometimes something a person posts in a certain way will resonate with me
too.
lots of love to you and a big hug xx
Moijanxx
Good morning ladies.
Thank you again for replying, it really helps to read your experiences & prepare me for how I might feel after treatment. Thank you Lissa I will take it easy on myself & take it slowly. I was called to the hospital yesterday morning at 7.30am, an hour drive away but by 12.30 I was sent home as no high dependency beds available. So we are doing the same again today as they hope there will be a bed. Lissa can I ask how long your surgery was & how long you were in hospital for? Keep resting up & although I haven’t got any helpful advice I will be thinking of you & hoping you are recovering well. To your other question yes I have lots of amazing support. My husband is just being absolutely amazing, he cannot do enough for me. I have my amazing parents & 4 sisters all incredibly close to me & live within 5 minutes. We are a very close family & they are around every day cheering me up & spurring me on & So I am very lucky. I don’t know what I would do without them. I have 2 boys 13 & 9 but at the moment I am not telling them the extent of the situation. They know I’m going for an op & will be in hospital for a few days but I’ve been in & out so many times they are unfortunately used to it. My last op was for double diep flap reconstruction so I was in hospital for 4 days & a 9hr op.
Maria Louise, all the very very best of luck for your scan today. I will be thinking of you. Such good advice from Moijan, sometimes it’s hard to keep a hold of the good advice when panic sets in. I think I will jot down all these bits on paper & chant them to myself when I need a kick up the bum ?
Anyway, hopefully now you won’t hear from me for a few days as I will be having my op & recovering. Let’s hope 2018 brings us all health hope & happiness.
Lots of love xxx
Hello Ladies,
Apologies for slow reply, having a difficult time with a UTI, grrrrrrr…! Hopefully, I can get some relief soon.
Will try to catch up with latest posts on threat and reply by later today.
Apologies again.
Thinking of you. Much love ??? xxx
Ann, so sorry to hear the op has been delayed again. I realise it’s more anxiety you can do without. However, I doubt they’ll put you in any danger. My neurosurgeon actually gave me the option to think about it but I chose not to. Feel free to vent away! That’s why we’re here.
I think the neurosurgeon said the op would take a couple of hours (can’t remember exactly) but once they include them waking me up, sorting me out to get me to HDU (or it it ITU… whichever unit it is anyway… I never get it right), etc, it would be a good few hours before I got back to the ward. I was eating almost as soon as I got back to HDU. I was admitted to hospital on the Thursday, the op was the Friday morning, I was discharged the following Tuesday… five days in all. Thank goodness, always a relief to hear you have terrific support. Brilliant. It makes your life that much easier. ? How Beautiful.
Marie Louise, hoping for encouraging results from your scan. Thinking of you.
Moijan, seems your coping procedure is proving to be successful.
Wishing everybody the best New Year’s possibly. Sending you all, peace, love, laughter & an abundance of HOPE.
Roll on 2018! ??? xxxxxxx
Hi Lissa,
we need another swear day…don’t we!
What a bu**er of a nuisance having a uti…oh.b*m!
I know that you know all about uti’s…I find I don’t drink enough…then the uti happens…am forced to drink loads and loads of water which relieves the symptoms but keeps me peeing anyway!
i live in constant dread of uti s as am heartily sick of taking antibiotics! I hope yours clears up
lots of love to All of you.xx
Moijanxx
Carolina 33. How ironic that I see your post. My youngest son 's football number 33. He even as it tattooed in his arm w fb and eagle. He as been playing since the age of 7 yrs old he is now 24 and plays semi pro. Long story short Ive been battling Her2 + breast cancer for yrs Oct 2013. As of Oct 6 2017 they found 11 tumors on my Brain. W/O Radiation to my brain 2mths to live and I would die from a neurological death . With 10 treatments to brain which I had in Oct 4 to 6 mths to live.Whats your update ? R u having the surgery ?
Oh wow im just realizing these post are from last yr
Can someone let me know if there is a update thread ? Thank.u.
Hi Kimberly,
Nicky’s right, most of the posts are from November or December… just before Christmas. Hope you find them useful.
How are you ladies doing?
Apologies if i’m not on here for the next few days. This UTI is sending me potty! I’m in too much pain, I can hardly walk and the antibios are clearly not working!!! Have to go into hospital for tests, blood test, etc… hope it gets sorted. Feeling very down.
Hope you’re all well. Thinking of you all.
??? xxx
ANN hope all went well and you feel you are recovering.
Lissa, same for you…hope the uti has been thrashed.
Kimberley, hope you find what you need, but above all, some peace of mind xx
Mo8jan???
Hello everyone just a quick update! I’m home, feeling quite fragile, have an intense headache that comes on every 10 mins but lasts about 30secs. Can’t work out if it’s my eyes, head or brain. Was feeling so good on the day after op so am a bit down about this. Surgeon says it could be everything going back into place. All in all think I’m doing ok. Trying to rest as much as I can. Any advice would be greatly appreciated, rest rest & rest! Hope all you ladies are doing well, as well as can be expected. Thinking of you all xxx
Kimberley, how are you?
Lissa how are you too? And Ann?
hugs,
Moijanx ???
Hi Ann,
Congrats on getting through the surgery successfully. It’s extremely daunting not know what you’re going to wake up to. Don’t know if you’re home yet but let the neuro team know of ANYTHING that concerns you. Keeping everything crossed nothing does. ? Take whatever time you need to recover.
Apologies everybody, I’ve been missing though you’re never out of my thoughts.
Came into hospital last week to sort UTI. Horrendous pain that had me hollering & crying. Myriad different antibios didn’t work, pain increasing, can’t walk or talk properly, no energy. Eventually on Monday, urology dept did a CT scan… showed a blockage in my left kidney. They operated directly into the kidney that very night to unblock it. Oh so painful procedure but successful… kidney unblocked! Hooray! Antibios helping a bit more as infection now draining away. But they discover it’s a bigger infection than first thought so now need different way more powerful antibio which they give immediately!!! That & we’re still not sure the cancer hasn’t spread. ? Need to see gynae team next, then back to neuro or oncology team, not sure. Oh well… honestly don’t know what to say or do. Two years of no progression is a success story to me & I intend to continue being a success story for as long as possible! That’s all I can do.
Cancer needs to learn that we lifers are made of stronger stuff. Apologies again but defiance & hope are the only tools I have.
Thinking of you Ann and all of you lovely ladies.
Peace, HOPE & Love…
??? xxxxxxxx
Hi Ann,
How are you doing? Any improvement on the headaches? Feeling any stronger? Don’t reply until you’re strong enough to or if you even feel like it. Take it easy. Thinking of you.
How is everybody doing?
??? xxx
Hi there Stars of the thread!
Love and warm hugs to all of you…no word from any of you, so hoping all is well?
moijan
Bumping this thread up for newly dx Maria. .hope ladies here can offer her some support
Hi Carolyn,
lovely to to hear from youxx
yes,Maria, do pop in, this is THE place xx
Moijanx
Hello everyone! Sorry I haven’t replied for a while, I’ve been suffering with double vision & a painful neck/head which hopefully is part of the healing process. I’ve been referred to the Royal Marsden London for stereotactic radiotherapy which will hopefully happen in the next couple of weeks. It will be 4 weeks this week since my craniotomy! Where has January gone!! It’s ridiculous. How is everyone else doing? Lissa how is the UTI? Any improvement? Sorry to hear you’ve been in so much pain with it 
Well hopefully I will check in in a few days, I will try not to leave it so long!
Sending you all big hugs & lots of love xxx
Hi Ann,
So happy to hear from you. Please do not apologise for the delayed reply. You needed the time to cope with the vision & pain… even if you didn’t, take all the time you want. I didn’t want to bombard you until you were ready to make contact. Yes, January is almost over, haha!
The UTI turned into a kidney infection & became a much bigger issue. However, it’s been dealt with by the urology team, operated on, infection released & is being blasted by powerful antibiotics. Just over two weeks later, I escaped hospital - been home over a week now - & am trying to build strength & recover. Medics confident cancer hasn’t spread so I’m more than pleased.
Sorry to hear about the pain & double vision. It’ll take time to settle but I know it must be frustrating for now. Very encouraged that you’ve been referred for stereotactic. I had it two years ago & it proved a success. Have been referred again because this brain tumour was in a different location from the last one so they can do it again. Been 2 months since this latest craniotomy. RM consultant wants to see me in next couple of weeks but giving me time after kidney issue. Am keeping fingers crossed you’ll hear from them soon. In the meantime, I hope the vision improves & the pain eases. Take it easy. Thinking of you.
How are all you ladies doing? Praying all’s well as can be.
Sending you all peace, love & boundless HOPE!
??? xxxxxxx
Hi Moijan
I did not realise your treatment has been changed from the having injections once a month. If you don’t mind me asking when did the last treatment fail as you do not seem to have been on it very long.
Hope the new treatment works well for you.
Linda
