Thanks Carolyn, Moijan & all.
How are you all doing? Hope you’re all well.
Home now. Went well. ?? Reading skills are awful. Huh? Will fox apparently. Exhausted so will take it slow.
This is is probably a lot of nonsense, haha.
Humbled. Will contact when I can. Forgive it’s it’s a while.
Please tell me how you’re all doing. Want to know.
Thinking of you all.
??xxx
Hello Lisa
Just rest and let your body heal and recover. .it’s been through a lot of trauma. .but we are all here and sending huge fat hugs to you and hope u feel better soon and can dig in to all the xmas turkey and trimmings xxxx
???
Lissa, I’m ok, just came out of hospital from needing it antibios for cellulitis…
finding the xmas rush really stressfulxx
still on fulvestrantinj in the bum! Hoping for a miracle as usualxxx
lots of luv.
M???
Just ordered a small sample size online too …I’m having trouble sleeping …so will try anything …if it works will get a full size …
I have a cupboard of tried and failed things !!
Hugs xx
Moijan
I ordered a small sample spray for 4.99 on amazon today …if it works i will get the full size one from boots which is £18 …
Hugs
Hi everyone…
Reading is hilarious. ?
Here goes… I hear sleeping’s a prob. Hope you getting relief with that.
Moijan, glad treatment is working… fustrsss… (can’t spell). Yes, need that making bulletin. I have hope. PROMISE! Hope no more antiobio needed.
Thanks Carolyn, promise i’ve give it time.
Nicky, not sure about recovery. Still have clicks in hair. Been told it be few weeks at least before more stereotactic. Showing off now, hey. ?
Hope everything else doing well. Babsy, Truffle.
Think i’ll try sleep now.
Love ??xxx
Oh dear Moijan, i’ve missed you. But i’m here now. Thanks for kicking into shape.
How are you lovely ladies doing?
I’ve been Back forth to the hospital. Had my clips taken out, weehee. Getting stronger by the day but still very weak. Have all these place to do things around the house - photography or write a song… haven’t done either ? - but realising I can do one thing a day, that’s usually make lunch, then I’m done. Managed to get out for a few walks, they’re slow but the fresh air is good. Doing my best to stay awake through the day so I can sleep at night. Worked twice. Still feeling optimistic. More stereotactic to come. Don’t know when yet. Still trying to get Mum to slow down.
How’s everybody coping with sleep? Do we have Christmas trees up yet? Ours going up this week. Are you all ready? Plans - family, travelling? I love Christmas.?? We’re not doing gifts. Don’t usually. Just my sister, her husband & their kids (haha kids, they’re 23 & 18) will come over.
Let me know how you all are.
Much love… ?? xxx
Lissa again. Yes, the reading is improving slowly.
Thank you for your very kind comments, Moijan. I get a bundle of inspiration & hope from you ladies. All the trials you’ve been through & you still manage to display an uplifting form of support & ‘living’. Right now, I only have the brain to deal with. Some of you have way more. Can’t be easy. Honestly don’t know how i’d cope.
Oh for that magic bullet! Will never stop HOPING!
?? xxx
Hello bonariensis
I will rest, promise.
Fantastic, a jazz concert. I haven’t seen David Newton perform live but I’ve definitely heard of him. Excellent Just looked him up on YouTube & found his redemption of ‘Tea For Two’. Excellent pianist. What a treat. Glad to hear you enjoyed it. Thanks for telling me about him. ?
Off to bed now.
Goodnight ladies. Wishing you all a sleep filled night.
Much love ?? xxx
Hi Lissa,
''wonderful to hear your news…keep putting one foot in front of the other, as you are…steady goes it xx
sorry I haven’t been on the website for a while…I am not really enjoying this Xmas season as much as I used to! Amazon and cards flying about all over the place and I too only get one thing done each day.
wishing you well for Xmas Lissa…also everyone’s else who pops into this thread.
love and hugsxx
love to you Bon, also. Xc
Moijan???
Hi Moijan.
Please don’t worry or apologies for not coming on here. Don’t worry about one thing a day… you’ve a lot to deal with. Go easy on yourself please. The way you keep this thread is truly astounding.
It’s not the only case I’ve heard. Who needs this at this time of year. Amazon have to made a blunder. Christmas season is to fill you with joy. I hate to judge, because maybe they’re doing their ‘best’ (maybe not)… my friend was told it was because of the snow… still waiting!!! A similar thing happened to me just the other day with a simple toiletries online order from a reputable drug/cosmetic store. Had to go into the actual shop three get it sorted. My issue is no where near as important as your Christmas goodies making the rounds goodness-knows-where without any resolution. How upsetting & frustration! Doesn’t help that the situations we’re in makes everything harder to cope with. Guess they’re not aware just super wonderful we all are! ? I’m so sorry. Wish I knew of a way to fix this & make you feel better.
Please know I’m thinking of you always & seriously hope they fix it soon.
Wishing you & all of you Beautiful Ladies have the best Christmas possible. Sending you all, hugs, peace, love, laughter & the gift of HOPE!
Lissa ?? xxxxxx
Hi Moijan,
Result, thank goodness! ? You must be relieved it’s all arrive.
I’m taking it very easy so getting stronger. Thank you.
Love & hugs.
??? xxx
Merry Christmas everyonexx
Merry Christmas ladies. ??xxx
Hi Buzzing…thank you. Hope you are holding up ok? I read your post about your mets…you are in good company…xx
Moijanxx
Hello ladies, I have just been dx with brain mets & nodules on my lungs. I met with a neurosurgeon last week who says he can remove 90% of the brain met. Im just waiting for an appointment at the moment & it’s bringing it all back from my original dx in 2015, waiting is the worst. Hearing all your positive stories is truly inspiring & although I am really struggling to be positive I think once I have a treatment plan in action I will feel like I’m fighting rather than how I’m feeling at the moment. Merry Christmas to you all!
Ann x
Hello Ann.
Thank you so much for joining us. I know this is the last place you want to be but we’re here and I hope you’ll feel supported.
A dx always brings back the anxiety - difficult to avoid it. Just had a craniotomy beginning of December and I’m struggling. Perfectly natural, you’re human and you’re also inspirational… go easy on yourself. Am encouraged by your neurosurgeon’s comments. Doubt it will take them long to have a treatment plan in the works.
Please keep us posted… if and whenever you wish.
Sending you peace and an abundance of HOPE!
Merry Christmas to you too!
Lissa ??xxx
Hi Lissa& Moijan.
Thank you so much for taking the time to reply to me. I am feeling a lot better today, more positive & have rang the hospital to chase up my op. You are very right in what you say Moijan about trying not to over think as the outcome will still be the same.
How long were you in hospital for after your op Lissa? I hope you’re doing as well as can be expected. I am nervous but want it done. So strange to have these feelings.
Thank you again for both replying. I hope to let you know more when I find out more too.
Big hugs xxx
Hello Ann.
Relieved you’re feeling better. Up and down days will come but again, that’s normal as you already know. I was discharged from hospital after four days. Took me a while to settle back at home. Learning to be patient. Realising I’m still need more rest than I’m giving myself… the .
Do you have adequate support? Hope that’s not a silly question.
Moijan, I like your ‘step back’ process. Makes sense.
Best of luck getting things sorted, Ann. Thinking of you.
?? xx
Hi Lissa and Ann.
Ann, am glad you managed to get in touch with the hospital…hope that was helpful…
i know know what I suggested is helpful to me… when I can do it. Especially re results.
with an op in sight, I’m sure you will have mixed feelings…glad it’s happening soon and hopefully will be all you wish it to be…
however, I know from my own experiences…had a partial hepatectomy, a mastectomy, gall bladder out etc, etc, Operations are a little more difficult to stand back from. With the first two…I was convinced I would die…esp the liver one…I saw a hypnotist who kindly recorded the session, and I played that over and over on a Walkman…even on the way to theatre…you must prepare yourself in your own way…
also Lissa has had experiences similar to those you face…maybe Lovely Lissa might share how she prepared herself. ? You will see from her posts that she has been recovering slowly…so afterwards, if you have symptoms which worry you…try and remember what Lissa has experienced xxx and also keep chatting to us if you can…or reading the thread, if you can’t.xx
Moijan???