ladies,
i dont know where we last left off my moms had a lot of downs! in sept she had been on erubilin for 3 months and we had scans…scans came bavk work and her liver bilirubin was elevated very elevated around a 7. so she was admitted to the hospital to see if a stent could be put in and it couldnt be. so the doctor had a very serious talk with us that he is going to try steriods, cisplatin, and falsodex to see if it works. if it doesnt it could be a matter of weeks for her. So the first week her liver bilirubin went all the way up to 11.6. but after the second dose of cisplatin it went back down to 3.4, then week by week it dropped hitting 1.3 last. and the. all of a sudden last week it went bk up to 6.3. this was about 6 weeks after starting cisplatin. So dr ordered scans last thursday. we got the results today. cancer is less in lungs, but more in the liver. bilirubin is 10. he is going to try xeloda now, but he is afraid shes dying…
i dont know what to say what to expect. i guess my question is
- have ur oncologists told u it might be the end but things reversed???
- im praying xeloda is our miracle medicine
- any miracle stories? because i sure believe in them.
sorry for the horrific grammar, but im trying to keep it together and keep her strong
Hello joellek
Good morning …I was only thinking of you and your mum yesterday …well let’s hope the Xeloda works and helps your poor mom …there are ladies here that have had good results from it …there is a very good thread that will give lots of help.
She is very lucky to have such a caring family to support her and we here will all be thinking of you and sending lots of hugs …
I think if I remember you are in the US and so we will all be holding hands across the pond …
Hugs xxxx
Hi Joellek
Never give up hope!
I have advanced secondaries in my liver and when diagnosed in April I was told that without treatment i only had a matter of weeks to live. I then had 8 sessions of taxel. When that stopped working I started capecitabene (xeloda) and I am doing well - still here I have a good quality of life. My BR was 118 in April and was 21 when last tested 6 weeks ago ( i think your Mum must be measured on a different scale to me).
Encourage your Mum to stay positive and calm
I have my review tomorrow and hope I’m still on the right track
|Big hugs
carolyn and phoebe,
thank you so much for you hugs and support. they are much appreciated and much needed.
phoebe, i tried to search up my mom’s bilirubin and conversions to yours. I think my mom’s is higher and she is turning more and more yellow. im hoping yhr xeloda works and we are praying for a miracle. because we all still need her sooo much!
my mom lost her battle on saturday night and we lost her…my heart is broken. i really thought we had this and she would live with it…
Dear Joellek
So sorry to hear that your mum passed away …sometimes the drugs just don’t seem to fight this cruel disease …
You were so kind and supportive and try to remember the good times …keep hold of the memories and remember all the good times .
Hugs xx
Evening Joelleck
So sorry to hear about your mum. It must have been such a shock it happened so quick.
I am thinking and praying for you and your family at this incredible difficult time.
Linda