This is my first time posting. I’ve got ER -ve, HER 2 +ve breast cancer. I’m on neoadjuvent chemo. Finished 4x EC and now just had 10 out of 12 weekly Paclitaxel.
About 4 or 5 treatments into Pac I noticed my wrists itching. Over the next weeks this escalated to like prickly needle stabby pain on nearly all parts of my body (feet, legs and arms worst affected). Friction aggravates it.
After about 8 or 9 treatments I could no longer go for walks because friction aggravates it or sit down or shower. Applying moisturiser aggravates because of touching. I use aquaphor spray now.
Apparently it is nerve damage/neuropathy but not the classing numbness tingling people get. For me it’s pain aggravated by friction.
Because of that I think the team missed it and they probably should have lowered my dose. It’s now at the point where it’s unbearable. I’ve only got 2 more rounds left and I’m almost tempted to stop here rather than continue the last two on a lower dose.
Hi @jayp Welcome to the group nobody wants to join but you will find it so supportive.
I was ER+ HER2+ with Paclitaxel and had some neuropathy. I had infections and allergic reaction that caused my dose to be reduced a couple of times. My team weren’t overly concerned with neuropathy unless it was persistent and mine came and went. It has generally resolved since finishing but I do occasionally get tingling or numbness in my big toes.
As you are HER2+ you may benefit from joining this merry bunch
And during chemo there is a lot of support joining the monthly chemo starters. This is October as you said you’ve already had some EC
You may find others on the chemo groups that have experienced pain with friction.
