I have neuropathy in my feet following chemo on paclitaxel (which finished 3 months ago, then went on to EC). The oncology nurses said that this was not uncommon to last for a while but the oncologist said it could be permanent. It is driving me mad and I’m really worried about it as there doesn’t seem to be any treatment I can access. Does anyone have similar experience or any advice please?
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Im 4 years on from chemo…still have neuropathy in my hands …but not as bad as initially …i had the same chemo protocol as you…the pac dose was lowered by 20 % for last 3 treatments to stop neuropathy getting worse …i have been on gabepentin for pain releif …dont need ot now though…several other things suggested as well so plenty in the tool box, so to speak…hope it eases for you
Hello Kate
I had similar issues with this during and after my chemo that finished four years ago. It gradually subsided and I don’t have it now. It came back later but my Oncologist didn’t think it was related to my cancer treatment and asked my GP to do blood tests for other things that can cause neuropathy. I’m now on tablets for hypothyroidism which can cause neuropathy as well. It may be worth you asking your GP to check with a blood test.
I hope it gets better for you, it was very difficult for me during treatment. I found a little relief by gentle stretching and regular walking and a pillow under or between my knees at night.
Take care, Lisa
Thanks Lisa, glad to hear that it gradually subsided for you. I actually had hyperthroidism about 5 years ago and had an operation on my neck which resolved the problem. I have always had poor circulation in my feet but really hoping this will subside in time.
Hi
I.have it in both hands…its neen 5.months since my last chemo. It hasnt gone yet…i find it frustrating…x hope it eases for you…