Hi there. I can see there are a lot of people waiting for the outcomes of diagnostics at the moment. I was where you are a year ago. What I realised was that there are so many variables with BC and how important it is to get this stage right so you can make the best decision with all the information. And to feel grateful for this as many years ago it was not so personalized .But it is just so very tough and was possibly the worst time, very anxious and tearful… I also realised that even with all the info, some stuff I just ignored as I did not think that would be for me! So I was very shocked that I ended up needing 6 months of chemo. Joining a club that I didn’t want to join…I would have taken a mastectomy to avoid this. But a year on I have managed with the love and support of family and friends. Had chemo, wide excision and radiotherapy. Still on TDM1 and recently started Letrozole. So this IS a really hard time. Limbo land is so exhausting. So be kind to yourself. Reduce anything you can so you can stop. Once you have a plan, it will be easier than this. Very best to all those in limbo. Alison x
You are so right this is the club no one willingly wants to join
I have taken comfort in the words of other ladies in that your not alone
Sorry to hear you are having a not so nice time at the moment 
Limbo land is definitely not a place that I would wish to stay xxx
How did you get Clare at your appointment? What is your next step? X
Hi Charlie81,
So I am having surgery next wednesday , lumpectomy to remove 15mm lump and some nodes. Radiotherapy end of jan/feb, followed by tamoxifen. My consultant reckons I can avoid chemo if my oncotype score is low when they check tumour. So fingers crossed. Im happy enough with treatment plan and just want to get started. Im not researching too much at the moment, will deal with surgery first before I get my head around the next step.
Hopefully waiting is almost for you? Have you got a date for MRI amd biopsy results yet?
Oh I’m glad you’ve now got some dates and a plan. Best of luck for next Wednesday- please do let us know how you get on.
I’ve got my follow up appointment today with the consultant where I’ll get all my results and treatment plan - I’m bricking it! I know it’s really not a big deal but I just want to know the dates and plan of action so we can make some plans for Xmas.
Hi Charlie81,
Thinking of you today…I really hope appointment goes well today and you have the least invasive treatment plan. I was bricking it for mine too but certainly happier now I have my plan. I was in for pre op today and back in friday with nurses and physio, just want next wed to come…and go, asap.
Hopefully you have a clearer picture by this eve and that you can have some nice family time over christmas. X
Hi alphawhiskey35,
Any update on your plan? Hope you are doing ok and your daughter got through exams… xx
Hey ladies !
The surgeon wants me to meet with an onco plastic surgeon on wed and on this Friday discuss surgery options
They said they will take the nodes closest and test them at surgery
Mri showed nothing further in the breast it’s self
Clare your having a lumpectomy? Have they recommended onco plastic ? I’m so confused with it all they said that we can’t rule out chemo due to my age ?
Any news Charlie ? X
Hi alphawhiskey,
No mention of onco plastic surgeon for me. It is all very confusing, hopefully they will tell you all at appointment , thats frustrating for you tho…more waiting. Maybe someone else on here might have had dealings with onco plastics? Im sure you just want to know what the exact plan is so that you can get your head around it. The not knowing part is the hardest. Chemo is not completely ruled out for me yet. They will decide when the tumour is out.
You should write down all your questions before you go in next time. I did that, and make sure you dont leave without the answers.
Hopefully you have answers soon. Xx
Triah
I hope surgery went well? How are you doing?
My appointment went well yesterday, they are such an incredible team in the breast care clinic. So the MRI showed multiple cancerous areas in my right breast and the biopsy of my lymph’s was positive. So, it’s a big old course of chemo starting in Jan and then a mastectomy after that. It’s kind of what I was expecting really, and I feel ok about it all right now. I still need to have a full body CT scan as it’s in my lymphs and then an appointment with oncology around Christmas time.
I’m happy we can have a pretty normal Xmas before I start treatment.
Hi Charlie,
Glad your appoinment went well and that you have a plan. Hopefully the CT scan will be clear and you can get working through that plan in the new year. Its great that your team are instilling confidence in you, they really are amazing and so used to doing this everyday. Its very reassuring that you are in the best hands.
I hope you have a wonderful Christmas with your family. 2024 will be all about kicking cancers ass!
Hi everyone. #clare81, #charlie81 and#alphawhiskey35, it sounds like lots has happened since i last checked this thread… glad i found my way back (i seem to get a bit lost in the forums)… Clare, good luck with your surgery. I had mine last Friday and am recovering well. Had a few days where (dare i say it?),i actually felt like me again and threw myself into Christmas! Yesterday, i had a bit of a wobble…i think i just needed a really good cry… not for any particular reason, just randomly needed it. Today, i am OK again. It sounds like all our treatments are very different…i have had a wide local excision, including nipple removal. Waiting for pathology results of that and if the margins are OK, i will begin radiotherapy in the New Year. I’m trying not to think about results day because i got myself in a state going for the MRI results day and i don’t want to do that again… so, trying to just stay in the moment, take life easy and look after myself… including when i need a good cry from time to time! Thinking of you all…x
Hi Triah,
Glad to hear you have surgery over with and that you are doing well. Its perfectly natural to have good days and bad, hopefully the good out weigh the bad but you are right to just go with it.
You sound like you have the right approach. Yes try not to get caught up thinking of results, I know thats easier said than done! Hopefully you can enjoy Christmas, I have to say I am finding it a nice distraction at the moment. (Hopefully it stays that way). I just cant wait to get the surgery over with, at least then i feel like im moving forward.
Good luck with the recovery, mind yourself. Xx
Everyone here seems to have had MRI… I haven’t been offered one. I have grade 3 19mm IDC and had sentinel node biopsy on Monday.
Why have I not had an MRI?
Hey Georgie girl
I was diagnosed on the 17th of nov
I had an mri last Friday
I don’t know the stage or grade or even size of the tumour and tomorrow is the first day I will meet with the consultant after being told I had cancer
I think the mri was to help plan surgery or to see if I needed surgery or chemotherapy first ?
Triah glad to hear you are recovering well
Remaining manly positive is difficult d I find my down days really down
At night it’s the worst trying to sleep sometimes as my mind races further than it should
Hope results are all good albeit anxious wait
Hope you manage to have as lovely an Xmas as possible xx
#georgiegirl1… Everyone’s treatment is so different, i imagine there will be a reason for this that is unique for your situation… if you are concerned though, i would speak to your BC nurses as they are best placed to answer this question…
Hi Georgie girl
I had a 15mm IDC and a slnb followed by a full axillary clearance, I didn’t have an mri and when I asked my bcn she told me there was no reason for me to have one.
Sounds like it’s all about the individual plan
Sending hugs
Jackie xx
Hi georgiegirl1,
I was given an MRI because I have invasive lobular and thats harder to see on mammogram and ultrasound. They gave me an MRI to size it as MRI is the best way to see lobular.
Things may be clearer for you so perhaps you dont need one. Just ask your breast cancer nurse.
Best of luck with your treatment. Hope Monday goes well Xxx