New Diagnosis of Mets

Morning

Don’t know if I’m doing this right so please bare with me. So last week after being in hospital with suspected appendicitis I was told that I had leisons on my liver. After further tests I’ve been diagnosed with Liver ,Lung, Abdo, sternum and pelvic mets!!! My primary Breast cancer was diagnosed in 2010 and after mastectomy, ANC,radiotherapy, I have been quite fit and healthy. This has come as a huge shock. Had a liver biopsy on Monday and have an appointment with oncologist next Monday for treatment plan. I presume this means more Chemo. My heads in a whirl. I’ve not asked any questions yet…not sure if I want to know the answers. So I suppose I just want to know if anyone is similar to me. I’ve 2 teenage daughters and supportive husband who are all devastated so I’m trying to be brave for them. Appreciate any advice.  X

Hi Clairssa,

i’m in a similar situation. Primary diagnosis in 2012, chemo, mastectomy and lymph node clearance and radiotherapy. Been turing up to annual check ups and mammograms for 6 years and told all Ok. Went to my GP with a rhinitis based cough, she sent me for a chest x-ray for peace of mind back in October…then bam…diagnosis of lung and liver mets, no symptoms at all, Goodnesss knows when I would have discovered this otherwise. I’m on Docetaxel chemotherapy, along with Herceptin and Perjeta.I’m still completely stunned. At least now treatment has started, I feel like progress is being made, but the fear of what the future looks like can be quite overwhelming. I hope you get your treatment plan soon, and send you best wishes.

 

Hi Clarissa,

Your liver biopsy will confirm your hormone status and depending on the result you might be able to have hormone treatment instead of chemo. Your bone and liver mets will be treated “ systematically” that is the same treatment will treat your bone and liver.

My bone mets were discovered over 4 years ago, 16 years after my primary and I was given Exemestane ( a hormonal tablet) and a once a month bone strengthening injection called xgeva. This kept me stable until last October when a Liver met was found so have now moved to Faslodex as I’m strongky ER/PR positive. 

Now if you are ER positive too you might be offered Letrezole plus a new target drug named Ibrance as it’s your first line of treatment for metastases. I don’t qualify for Ibrance unfortunately as I’m on my second line of treatment and the NHS currently only fund it for first line.

If you are found to be HER positive you will be offered herceptin which is another very successful drug. 

Lots of info to take in but just tried to give you a bit of information I’ve learnt along the way. 

There is so much info on this forum and you will see that ladies are living a long time with Mets so take heart xxx