Hi,
I was diagnosed on Wednesday with TNBC, grade 3, no LN involvement on USS. Had an MRI on Thursday and get results back next week.
I’m terrified. I’ve got two small boys (6&4) and I keep having visions of not seeing them grow up. I googled (reputable sites, like this one) and the stats don’t look favourable. I’ve also got MS to really make me feel like my body has failed me.
I’ve booked an appointment to see oncology privately as the wait was 5-6 weeks otherwise. This all just feels so surreal. Was completely dismissed by the consultant when I first saw them, was told there was nothing there and to take some pain killers. Thankfully still had USS but was never expecting this as the outcome. It all started with pain and that’s getting worse, so I have a constant reminder of the fact it’s there.
Don’t really know what I’m looking for by posting here but I’m scared and I can’t believe this is happening.
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I understand … my experience was pretty similar to yours. I was 38. It is so so young & I just don’t understand why this is happening so often. Sending love. X
Thanks sbee. How far along are you in your journey?
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Hang in there, it’s so daunting. I was 36 and was 20 years cancer free last week. I hope your treatment plans goes smoothly and you can get onto your new normal very soon. Best wishes.
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I finished ‘active’ treatment in november last year. 8 rounds of chemo, big surgery & 15 rounds of radiotherapy.. how are you this evening?
Glad you’re out the other side of active treatment.
It keeps coming in waves. At some points I feel completely normal and then it hits me. Have to keep putting a brave face on for the boys. I’d really like to be able to sleep tonight. Very limited sleep since Wednesday hasn’t helped things!
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I entirely understand .. what are your next steps? X
Get MRI results on Wednesday. Then see oncologist privately a week on Tuesday. Will then still have to wait for treatment (I think chemo first) but at least I’ll have a better understanding of the plan.
I actually slept last night which is a huge relief. Feel far more normal as a result! It’s 1pm and I’ve not yet cried!
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I am sorry you have been diagnosed with tnbc. Don’t get too hung up on the statistics you see about tnbc, they don’t reflect changes in treatment protocols in recent years. I have been living with metastatic tnbc since 2022 - unfortunately it was also in my liver - but treatment got me to remission and I haven’t had any treatment at all since early 2024.
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It’s so scary learning you have TNBC.
Especially when they order so many scans before they determine your treatment. It’s the waiting and worrying about results. Once you get a treatment plan, you’ll know what’s ahead and will feel calmer. It is treatable.
I’m in treatment now for it and taking each day as it comes. I’ve found meditation really helps me stick to the present moment instead of thinking about all that is ahead which can be overwhelming. Somehow we find the strength to take this on and get through it. You are not alone. Sending hugs.
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I asked my Oncologist for a treatment plan which helped me, I was 57yrs when I was diagnosed with TNBC also in my LN, I had to have all my LN on the left removed during the surgery. But nearly two years now and I had a Buddy with Breast Cancer Now that would phone me , she was a god send and helped me on my journey. Sending hugs and hope xx
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…. I’m a fellow TN and it is scary (for sure!), but a great deal of what you read via Google, for example, is outdated because whilst TN is more tricky to navigate … so much information out on the web is outdated! My sister-in-law is the Head of Education for Breast Cancer Now and she is super positive about the treatment available now and outcomes particularly with Pembrolizumab (immunotherapy) … take each day as it comes … navigate the treatment and side-effects that way … I find that not looking too far ahead helps me immensely, I know that that’s not for everyone but it helps me stay positive and hopeful 