I posted this on Surgery forum first given my situation but moved it over here since I’ve an appointment with the oncologist on Wed and haven’t a clue where to start, what questions to ask etc. I really hadn’t expected this outcome, so a bit blindsided by it all at this point. I’d really appreciate input regarding questions I should ask at the meeting etc. All other comments on my situation, similar experiences very welcome as well. ( I’m alternating between not going throught with it UNLESS of course I’m told it is going to be great benefit and thinking it will be in my best interests regardless.) Am in fifties on BP meds but considered fairly fit otherwise!
Hi everyone! Been reading the wonderful advice here so decided to join up myself. Given I’m recently post surgery, I guess this is the most suitable forum at present.
Diagnosed with IDC -mass of 37mm (shock of my life!) at end of September. Grade 2, ER+ so put on Letrozole in October to shrink before surgery. Tolerated meds very well with tiredness as only side-effect. Surgery on Feb 2nd, which went well-mass at 2mm at this point. Had all the usual nerve-wracking tests before this-breast US, MRI and full CT and bone scan, all of which at this were clear. Bone scan revealed an older leg fracture which cause a bit of a stir for a while, but all others fine. Had some investigation or other every week for 8 weeks until December!
Apart from brief return to hosp few days after op owing to bandages pulling on node incision site making area sore and painful, recovering well from surgery. Arm mobility gradually returning to normal etc. very neat scar. Saw consultant a few days ago, who revealed margin/s weren’t clear and 2/5 sentinel lymph nodes showed meths-one micro and the other macro-another shock as hoped to put all this behind me once WLE over. Yet to receive full pathology report. Basically surgeon went over some options, eg chemo, rad, or further surgery but nothing conclusive, though she appeared to be veering towards chemo. Have appointment with oncologist next week who I’d imagine will shed more light on the situation. Personally would dread chemo, based on other ppl’s experience so would like to hear from others who experienced any of the treatments mentioned.
Thanks in advance,
Helz