I was diagnosed with invasive lobular cancer 12th feb I was told I would be having an op 4 weeks later due to the snow which delayed the mri scan and them finding another lump which needed a biopsy, me and my husband have spent the last 6 weeks in turmoil not knowing which op I was due to have l never knew that I could have so many emotions,
at the result clinic we arrived an hour early and the consultant was good enough to see us before the afternoon session had started, it was good news of sorts yes I still had cancer but the second lump wasn’t cancerous so I was offered a lumpectomy, so at the mo I get to keep my boob, I admire any one who has to have a mastectomy, I was so scared that that was what was going to happen,
we were advised by the breast care nurse not to talk to other sufferers as everyone’s journey is different.
i didn’t realise what she meant at the time, yes every one goes through the same sort of treatments but it is the emotional journey that really hit me. It has brought me and my husband closer together, I still have the op and radio therapy to go through, and i imagine I will go through many more emotions.
Welcome to the forum, Trudy & glad you found us.
Well, I think we can all certainly relate to what you’re saying.
Going through this is an emotional rollercoaster as it is such a shock. Then there is the uncertainty in the early days of diagnosis, before the treatment plan is finalised, which does send the mind into overdrive somewhat.
It does settle down & feel better once you have your treatment plan & you know where you’re going with it all.
It’s so good to hear that you’re both handling this so positively in being there for each other.
We do get through it, there are many of us here through it all & getting on with life as usual.
Do come back & chat or vent when you need to.
ann x
I’m not sure I agree with your BCN. Everyone’s journey is different, but the emotions they feel, and the ups and downs, are pretty much the same. I just remember feeling so alone and desperate for reassurance, but I didn’t know anyone else going through this. I finally found this site about four or five months later, and it transformed how I felt about things. So I would say that you can get a lot of support from other women going through the same things at the same time, and it’s also great to hear from the women who’ve been there before you, got through it and are on the upward track.
So welcome here, I hope things go well for you, and feel free to ask questions or just vent when it all seems too much.
I can only enforce what ann and Dizzybee have said.
Yes our diagnoses are all different but boy I could not have got to where I am today without the wonderful help and support from the fabulous ladies on here, I wished I had found the forum when I was first diagnosed and not 6 weeks later, I would have learned that I was not alone, because regardless of what our diagnosis is and how different it was from other ladies, that emotional support has been second to none.
We are not experts but what we have is experience of a journey with breast cancer and just knowing that there is someone there to just rant, rave, cry and laugh, yep we do a lot of that on here as well.
Hi Trudyjane, sending hugs. This disease really is the pits but you get through it and I agree with the other ladies here and not your BCN. Everyone’s journey is a bit different but we all go through simlar anxieties and need others we can relate to. We have a good laugh or rant on here and pick each other up again when we fall down. I don’t see anything bad about that. Here’s my blog about my BC journey and I hope it cheers you up: lifeafterlola.blogspot.co.uk/
i had a full left sided mastectomy - not what anyone wants at the age of 48 but I am grateful to still be here to tell the tale. Wishing you all the best, you can do this and we are all rooting for you. Xxx
Hi Trudy, a warm welcome to you and I would like to echo what the other ladies have said about being in disagreement with your BCN , I’m really surprised she told you this and pretty disappointed also!
Yes we may all go on a slightly different medical journey throughout all this but we certainly are on the same page when it comes to the emotional side of things and it’s only those of us who have been there who can really understand!
It was my BCN who pointed me in the direction of this forum from day one and she couldn’t have done me a bigger favour! As you can see already we are here and willing to chat and support you in anyway we can Xx Jo
It’s lovely to read that you and your partner are closer. I have found that sharing the experience with others has been so helpful. This forum is great