New primary breast cancer in the previously healthy breast 9 months after first diagnosis

Hi,

I am 32 years old female and was diagnosed with TNBC in my right breast in March 2023. At the time of diagnosis I was staged at Stage 3 with alot of my lymph nodes positive for metastasis. I underwent neoadjuvant chemo with keytruda. The treatment was really rough and landed me in the hospital thrice due to keytruda induced colitis. I had to stop my treatment and go for surgery (single DMX) early because colitis was at a point where my body couldn’t take any more systemic treatment and the doctors couldn’t keep waiting. By some miracle despite the early surgery I was PCR at surgery and I went back to take remaining 4 ACs. 2 ACs landed me back in the hospital and I willingly opted out of taking the remaining AC cycles. Did my radiation and hoped it would be enough. Finished all my treatment by Dec 2023.
Fast forward to May this year I went for my annual mammogram which picked up a small suspicious finding in my left breast (healthy breast) and turns out it is TNBC again. I was shocked and devastated to find out I had cancer within less than a year. Fully body scans revealed no distant spread. Because the tumor size was small they decided to do surgery first followed by chemotherapy. Because the imaging showed no affected lymph nodes I decided to go for mastectomy to avoid radiation later. I just received my surgical pathology today and while the tumor size is still small 1.3 cm, 1 out of 4 lymph nodes removed has macrometastasis. Reading the report just sent me into a spiral especially words like extensive lymphovascular invasion and a high Ki 67. I feel so defeated right now. I am a hopeful person but today it feels very hard to hope. It feels like this cancer is so aggressive it will take me out eventually. The doctors say it is a new primary tumor and not a recurrence but they haven’t seen this case alot in their experience that is a new tumor forming so early after treatment. Usually it takes a few years. Is it really that uncommon? Do I still have a shot at beating this?

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So sorry that this has happened to you after all that you have been through already - no wonder you are feeling so down . I think maybe you should get someone on your team to go through it all again with you properly to allow to take everything in . It sounds like a complex case so it may be worth you asking for a second opinion . You could also contact the helpline on 0808 800 6000 tomorrow . I don’t know enough to answer all your questions but maybe try to hang on to the fact that there is no distant spread .
I am a night owl but I know it s quite late which makes me think that you can’t sleep for worrying and I just wanted to let you know that someone is out there and thinking about you .

With love xx

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Hi @nshah. It sounds like you’ve been through an absolute ordeal already. I don’t have any words of wisdom, but I just wanted to say good luck and stay positive. You beat it once and you can again. You have had masectomy and there was just 1 lymph node, so technically it’s all gone. They will monitor you closely. Sending love xxx

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Thankyou for the well wishes. I will consider contacting the help line

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So sorry you are going through this my first was 2008 and then 2023 , you will get through it yes contact the team get them to go through everything again stay positive , we are here on the forum as well take care and look after yourself xx

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I’m so sorry you’re having to go through all of this yet again, and at such a young age.
I just want to send a virtual hug and wish you all the very best in your treatment.

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