I have listed a few times in here and I am a naturally anxious person so this situation has sent me into overdrive. However, I am am really spiralling
I have been diagnosed with 12mm IDC er+, pr+ and her- in my right breast.
However, I am now so concerned because I can feel two very small moveable lumps in my left armpit. I have been really worried about my left breast because that was the cause of all my trouble. Last July I went to the breast consultant because I had pain around my left nipple and he also discovered there was discharge. After tests on the discharge, two normal ultrasounds on both breasts ,a normal mammogram and a normal MRI ( end of August) I then had a major duct excision and was told cause of pain and discharge was a benign papilloma. I then merrily went on my way but I continued to get pain in my left breast particularly around the nipple. At the end of November I went back to see the consultant. I was sent for another ultrasound and that was when they found breast cancer in my right breast. I have had another MRI since then as well which again showed nothing on my left breast. However, the nipple pain has continued and now I have felt these two little moveable lumps. I think one of them is a lymph node that has always been palpable ( I think I can feel it because I am slim- size 6) but I don’t remember feeling two before.
I find it really hard to trust the scans as nothing was picked up just a few months ago when I had a full range of imaging.
I am just so scared that something had been missed in my left breast and it is much more advanced . I am 42 and am terrified of leaving my two little boys. My youngest who is six was diagnosed with autism four days after I got my breast cancer diagnosis. His needs are quite subtle and people wouldn’t immediately know he is autistic but it is still full on. I am just so so worried. I admire everyone who is so positive but I just can’t manage it at the moment. I am just absolutely terrified.
Dear eb13, So sorry to read your post. You’re obviously going through a very tough time at the moment with a lot of anxiety.
This is a difficult situation you’re in. I feel that you should call your Breast Cancer nurse and tell her exactly how you’re feeling, and hopefully she can point you in the right direction, as to were you go from here and what more they can offer you. Also you can also call the nurses on this site who are extremely kind and understanding.
I wish I could be more helpful, understandably, you’re feeling scared and not knowing which way to turn hopefully you will be able to speak to somebody today to put your mind at rest
Wishing you well going forward, with yourself also your son.
Hugs Tili 
@eb13 so sorry you are going through all of this and feeling this way. Just wanted to say that I have tried in my moments of panic to see my predicament as a ´project’ and try to productively walk through what needs to be done almost as though it is happening to someone else. I say this because I put off a biopsy for 4 months because I couldn’t deal with the idea that I may have cancer with all the rest of the things going on in my life (including caring for 2 young children). Totally irrational and obviously was the wrong thing to do. This is not your case but it might be helpful to try when you can to focus on what you can do about the issues that are causing you the most anxiety. So as @Tili said- contact your nurse and try to set up another scan to put your mind at rest. That is what we have control over at the moment and these are the things that I try to focus on (not always successfully but I try!). The hardest thing about this journey is the uncertainty I find. Sending you much courage.xx
Thank you so much for all the encouraging messages. This forum is so good.
Hello. So sorry to hear this and how terrified you must be. I was IDC ER and PR positive in my right breast. Nearly a year in now but treatment has been hard after surgery. I also have a little boy with Autism who’s 13 now and know how full on it is. Please try to stay positive and go back to your BC nurse and demand to be seen and tested. I had 2 lumps after my surgery but in my right breast and they were cysts after surgery. I was so worried but after an ultrasound they knew what they were straight away. Please can your BC nurse tomorrow to make an appointment and sending you lots of hugs and pray it’s ok for you x
Thanks for your reply. Can I ask what treatment you have had?
Hi, you must be worried sick and I agree try to contact the surgical breast cancer nurses who support your consultant. I finished my surgery and treatments a year ago but felt a new lump last July, I contacted the breast care surgical nurses who do the post treatment reviews and they arranged an urgent appointment. The consultant could feel it but the ultrasound deemed all ok. These nurses get things done. Unfortunately I no longer have faith in mammograms as I don’t think they pick everything up especially in women with dense breasts, in my experience the MRI scans picked up other suspect areas that mammograms didn’t, including a radial scar that had to be removed after I’d started chemotherapy. I am even considering having a regular private MRI to make me feel reassured. I hope I haven’t rambled here but I would go with your gut feeling even though, possibly like me, you feel as though they will think you’re overreacting. My very best wishes to you xx
Thanks for your reply. I think I have lost a bit of faith. I had an MRI in September and mammogram and ultrasound in July and my cancer wasnt picked up. They said they could see it when I had an MRI after biopsy in December. I would definitely push for MRI screening - my consultant has recommended it for me.
I saw my consultant and he has arranged for me to have an ultrasound - although he said the lymph nodes are tiny. I am really worried about having the ultrasound in case they see something in my left breast. Unfortunately the appointment is at 7.30 am so I have to go on my own as we don’t have anyone to look after the children so early. This really is such a hard process.
Thank you for your reply and a 7.30 appointment is most unusual. My history :Mine started on 26/3/2021 when I had the usual mammogram, at the time I was having mild pain in my breast and had a radial scar a few years before but the radiologist wasn’t interested. Clear result. This niggling pain continued and in September 2021 a 30mm lump appeared in my breast almost overnight. I have dense breasts so I know mammograms are difficult to read. In this case how can I be sure my yearly mammogram will spot anything. This is why I want MRIs and I worry as my nieces all have dense breasts. My heart goes out to you as the worry and waiting is a nightmare, and when no one listens, it feels like a constant battle. I hope for the best for you, please let know how things go. Best wishes Joan xxx
Hi. I had a mastectomy and further surgery to clear my margins. Then had zoladax and Letrozole. Also abemaciclib. Now on tamoxifen only. Possibly going to have ovarian suppression again x
Thanks for sharing