Have held off coming on board for a few months now but am feeling more able to cope. Diagnosed with HER2+ bc in March. Have had lumpectomy and have just started FEC75 chemo last friday. Have to have radiotherapy and herceptin etc at later date.
As for all, being told you have bc is terrifying having religiously checked and attended all my mammograms I had no sign of any problems until detected at routine scan I thought I would have had some symptoms.
I have had a real problem with people telling me I need to be positive. I am positive I have breast cancer and I am positive that i hate it and I am positive it has knocked the stuffing out of me and turned my life upside down. However apart from some serious crying sessions and episodes of the terrors I have been amazed at how quickly you get on with things and life is relatively normal although it revolves around getting to know every corridor,twist and turn at the local hospital.
Hopefully I will have a good outcome from this I think the odds are in favour of that but I am also positive that I can’t kid myself that it doesn’t always work out and I need to come to terms with that too.
Hi Sheba,
Welcome, I am fairly new here also. As soon as I was told my BCN said this was the best place to come,
I found out after I went to my doctor with a lump which turned out to be a cyst, the doctor who took the biopsy phoned me to say everything was fine but her consultant wanted another biopsy under ultrasound guidance so I got another appointment through the post to go back. The day before going to the clinic the first doctor sent me a letter to ‘confirm’ everything was normal!! Next day I had more biopsies under the guidance of ultrasound and thought it strange when the radiologist said maybe I should put a marker in for the future use.
Week later I was in being told I had breast cancer. Did not expect it at all shockaroonie as they say. Lol
So after WLE and SNB I am back tomorrow for the results.
I get a bit fed up with ‘stay positive’ attitude of folk too, I’ve been quite angry last few days and almost want to shout at them to shut up!
Anyway enough of me and it’s really good to come on here to talk to others going through the same.
Carole x
it’s so strange that we are the ones with cancer and yet we hide our true feelings to protect the feelings of others. My team (dad and boyfriend) both have a very posative attitude. Great it helps but I’m the one doing the worrying.
Yes I will be ok but it’s still a long painful journey and I’m the one on road. I can deal with things but when I wobble I can see they don’t really want to hear.
When I speak to people and they ask “how are you” I am always “fine thanks” I cant deal with constantly having to reasure people I’m ok with it all. Why should I. Why do I just smile when people say stupid things,
we are not alone in taking this journey but we are all alone in our own heads, our thoughts and fears are ours and, for me, only someone else with cancer can truly understand. I want to show my posative side, but I can’t ignore the other side, hiding her away will just make me crazy so I spend a lot of time on here,
I hope you will both stick around and find the help you need here
This is a really good thread - you are all saying just how I feel about telling people and them saying how you have to stay positive etc,
I’m not very good at writing how I feel but you have all said it for me and I feel the same.
Keeks you said just how I feel about it all.
After the first couple of appointments at the beginning that my other half took me to I thave found that I am better going to appointments alone… He means well but wouldn’t read all my leaflets that I was given and seems to treat it lightly and say you’ve nothing to worry about, you’ll soon be finished your radiotherapy and done with it all.
My grown up daughter wants to know everything but I gloss over my feelings as I don’t want to worry her.
Got back from radiotherapy to an answer message on the phone from a friend I’ve had since I was 9, we talk on phone a few times a year. I hadn’t told her but knew I had to ring her back this afternoon, so I had to steel myself to phone her and tell her. I hate doing it, I kept saying I am fine.
I am new to this forum. I was diagnosed with HER2, I am 74 and had a mastectomy last September, my chemoherapy was cancelled twice and it was started in November. I am now on Herceptin, whilst the first session was fine,_ _I haven’t been too well on the last two sessions. I am on clexane for a clot in my leg and tablets for osteoporosis. I have never been on so much medication before!
Forgive my ignorance but what do the abbreviatios WLE; SNB; and BCN stand for?