Hi folks,
I have been nosying on here for a few weeks just reading posts and trying to gather together some info but now things underway im feeling a bit lost and alone and thought it would be nice to have poeple to talk to.
Im 33 single mother of 2 boys age 7 and 11 and was diagnosed a few weeks back. Had lumpectomy and axillary clearance and going back in next fri to get more removed from the lumpectomy site.
Did I read somewhere there is a closed facebook site? Would like more info on this if anyone knows about it.
On reading alot of the posts I am amazed with the positivity and strength alot of you have, Been finding positivity is the key to getting through this.
Clare
Hi Clare
In addition to the support here, you are welcome to call our helpliners for further support and a listening ear on 0808 800 6000, lines are open weekdays 9-5 and Sat 10-2
I am posting a couple of links to more support ideas and information on our ‘Just diagnosed’ and ‘Treatments’ web pages which I hope you will find helpful:
Here’s the link to the thread about the younger women’s facebook page you mentioned, I am sure someone will be along soon with the details if you post on here:
Take care
Lucy
Hi claire im 47 with 3 older kids 18,15 and 11 just wanted to say hello i was diagnosed in late march had op and sentinel node biopsy found out need 2nd surgery as didnt get clear margin in breast and also in lymph glands ,the docs have decided to start chemo first but not going to be until mid may will you be having chemo yourself?.Its a hard time for everyone involved i hope you find a lot of support here and on the facebook for younger women
If you go down the left hand column you will see" in your area" and you may be able to find some support within your local area from women going through bc treatment .all the best for your surgery xxcaz
Hi Claire I am also 47 i was dx in March,I had my op and sentinel node biopsy on Monday.I get my results on Wednesday hoping they get clear margins as i don’t want to have to go back.This site has been a friend to me the last couple of months and I’m glad I found it.Take care meggy x
Thanks girls, at 37 and no family history it has come as a huge shock so its great to have people to talk to in the same boat and its so nice people take the time to reply and give advice. I said I was 33, that was a wee typo, im 38 in a week or so lol
Caz yes im having chemo, radiotherapy and hormone therapy. Just taking it a step at a time and not thinking about the chemo etc too much. Lucy thanks for the link, hopefully will find that facebook page.
Thanks again for your replies.
Clare x
Hi to you all. I had breast cancer treatment last year and got through it much better than I ever imagined. I didn’t get a clear margin either and had to have another operation. I had the last op in June last year and the surgeon did such a wonderful job that you can now hardly tell I’ve had much done, even though he had to go in a second time. The chemotherapy affected me personally very little and I’d have the treatment and then was out shopping or walking the dog. When I first had the treatment I sat there petrified that something would happen, I’d feel sick or ill but I didn’t. The worst thing with the radiotherapy was the trip every day down to the hospital but having the radiotherapy itself was the easy part. It is all over for me now and I am having my first mammagram next week, so hoping everything is still fine. A lady at work is having a mammagram shortlyand there is breast cancer in her family and she gave me a huge compliment saying that the way I coped with the treatment has put her at ease and she is now not frightened of going for the test. So ladies this is very do-able and you will get through it, sometimes it isn’t always easy and my whhite blood count went down so I had to have injections after treatment and this was the worst part because for a day or two I felt like I had been in the ring with Tyson but a couple of painkillers and a box of chocolates and I felt much better. I’ve had worse hangovers! So if you can cope with one of those, you can cope with this. It now all seems like a lifetime away. Good luck to you all on your journey and wish you all the best.
Well done Caroline, it’s very encouraging reading your blog. I have just finished rad treatment after two operations to remove tumour and 15 rads plus Anastrozole now for 5 years. It was primary grade 2 Invasive mucinous carcinoma with high and intermediate nuclear grade DCIS. I think I was lucky as it was 35 mms long!!.
i agree that daily trip for rad treatment was a chore and as it was at the the end of the day I could not rest. All over now though and you are right it is a journey and each stage is a challenge. Found this website really helpful reading others stories. Best of luck to you also. Katy.
Hi Clare, yes there is a young womes FB group if you search for younger breast cancer network you’ll get the public page, send a private message from that and yo can be joined to the secret group xx
Hiya, that’s the link for our Facebook page. It’s the public page, so if you send us a private message on it we can add you to the private chat group. There’s over 360 of us younger women there now so I’m sure you’ll find someone to chat to pretty easily there! Just tell us your age, where youlive, a bit about your diagnosis and where you heard about us. We ask everyone this to ensure they meet the criteria for the private group and so we have an idea where new members are up to, which helps us support people a bit better. Xxx
Caroline how great that was to read that. It brought a tear to my eye and thank you so much. Your an inspiration. Great to read so much positivity and thanks for sharing your story. All I have had from people is that fact I will feel terrible and pretty much not function for months so it has cheered me upo! Good luck with your mammogram next week.
Clare x