Yesterday was another day, were we(family members) all were worriyed about but also were hoping to get more results to pending tests of our daughter. The most incredible and HUGE relief was, that the CT scan results came back as NOT spread !!! I cant describe, how MUCH of an relief those results were…i was so, so damn scared and worried for my daughter…i so wanted to just hold her tight… just feel her… sooth her( she is in the UK and we, her parents , are since nearly 5 tears in Denmark). A not so positive other result is, that she now knows that she alsi has TNBC- and that is very scary ! So Grade 3, TNBC, NO spreading. She will be doing the genetic test- which i think is so amazing, that they can test on all these things. Unfortunately cancer is VERY high running on my fathers side of his family… so depending on the genetic test, my son (26) and myself will definitely be following with doing the test also. But the test will take a few weeks to come back and im not sure , when it will be done. Then she mentioned that she will have a marker set… which i understood. She is worried about having a port placed. But i told her, that i read on the forom here, of many woman who also had it placed, who themselves were scared and worried, but did say it was actually fine…slightly strange sensation but nothing to be scared of. I hope, that with time she will may use this forum herself and will be able to find support and re assurance from all this incredible and wonderful people on here ! The next step is now to start her chemotherapy and on Monday she will have an MRI scan… Going back to the port… my daughter is incredible scared of needels and anything to to with it… so getting injections, or having blood taken is a HUGE fear and uncomfort for her( my husband is the same) i so feel for her( and my husband AND gir everyone who has this fear) so this port would be such a relief for her, knowing it is one procedure and then can be used over and over again for blood taking but even more for the chemotherapy. Still… i AM very worried… That our daughter has grade 3 and now also TNBC… they are both not good results as( and im trying very hard to understand all these medical terms and what they do mean ) they are a rather agressive form and a fast growing one ( hope im correct here now in super basic terms) But our daughter was told ( and ladies on here also mentioned the same) that even if it is a fast and aggressive form…that that and her age (28) often respond to the therapies much better… regarding the marker… is that an operation… i believe it must be, to get it placed near the cancer in her brest ?! If someone could give some info and share experiences would be very much appreciated! But i also will post the marker question out there… and try to find reliable info… this is why i love this amazing forom so much… i totally feel safe on here…can trust the info on here… you ladies dont have any idea, HOW MUCH strength, hope and determination you give to me, by reading so so many of your post…and for that im unbelievably grateful!
Much love… T
Sending you and your daughter lots of strength and healing wishes. Be very assured she will kick this cancer’s ass and come out a winner. It is going be not so straight a path BUT she is going to emerge a strong healed and healthy woman. Just hold her hand and put on your strongest armour and you will all get through this. The medical world has made so many advancements and continue to do so, you got this!
Hi there.
I am pleased to hear there was no sign of spread on your daughter’s scan, and I hope the genetic testing doesn’t lead to wider family concerns.
The marker will be put in using local anaesthetic. It will be put where the tumour is. It means that if the chemo reduces or completely eliminates the tumour, they will know where it is / was when it comes to surgery.
I have had a port for 3 years (I have metastatic TNBC). I don’t notice it at all. One of the best decisions I made.
hello coddfish !
thank you so much, for reaching out to me and sharing your info and personal experiance- very much appreciated
unfortunately there IS quite a bit of cancer in the family on my fathers side- most of them fatal. so right now, we are all holding our breath, first of all for our daughter but also for my son (26) and myself.
thank you also for clarefying on how the marker is been fitted !
regarding the port fitting… i suppose the port has a proper lid (sorry for putting it this naff) to prevent water from the shower, bacteria and dirt aso to get in to- correct ?! i had the feeling, that our daughter was rather positive regarding that option but yesterday she had a appointment with the oncology team and they did mention also another option… personally i would go for the port option but of course- it is the choice of my daughter allone.
hope you will be able to enjoy a great weekend ! please stay stong… sending you happiness …
T
hello sms
thank you for your uplifting and positive note… loved your wording !!!
im not sure, if you are actually aware of it BUT these notes, replies aso of you mean honestly so very much- they honestly DO !
wishing you a great weekend… hopefully you can enjoy it, in the way right for you !
lets kick this damn cancers ass… hell yeah !
The port is under the skin so it’s completely waterproof when not being accessed. It’s accessed using a special needle for chemo. Cancer Research has a good article on what they are and how they work. Portacaths | Cancer Research UK.
Hello, I was diagnosed last Nov TNBC, family history, so waiting for genetics, I had lumpectomy and 3 nodes removed in Jan, thankffully all clear, a magnetic marker was inserted, to locate the tumour, didnt feel a thing. Ive had 2/12 chemo so far via canular, my first one I was scared and cried while having my stats done but the nurses were amazing and explained everything, do keep asking questions, its a very strange situation where we end up knowing medical terms. xx