Hi ladies,
I have posted before, but years ago. Not very good on computer to be honest, but gonna try again as would be good to share thoughts, experiences etc. Primary DX was ER/PR+ in 2006, but had 2nd primary in 2009 Triple Neg this time with single bone met to hip. Had FEC in 06, then Docetaxel in 2010(delayed my MRSA in wound). Just found out 2 weeks ago bone mets all over spine, skull base, clavicle, pelvis, ribs, but thankfully not compromised spinal cord. Had some Rads and now weekly Paclitaxel. Had CT scan and Doc rang last night to say I have several nodules in lungs not previously shown. She says they are lung mets but not too bad. However, hubby distraught and I am in shock and could not sleep. For first time, I feel really frightened about the future. Luckily starting counselling at Marsden Tuesday (what good timing as been on waiting list for a while!).
Just really feeling the need to offload and share with others who can understand the range of emotions we go through. Any advice or thoughts very welcome. Love to you all. Sue X
Sorry to see everything you are going through. I don’t have any advice, except once you’ve taken it on board, and know more about treatment you’ll feel calmer.
If you can’t sleep I’d suggest getting some sleeping tablets from the GP - for both of you if needed.
Just sending you and OH big hugs.
Stella xx
Hello Sue, what a shock for you. I hope you can find comfort and support from posting here. We have a wealth of information and experience between us and this is a very supportive place. Life with mets is one horrible rollercoaster ride. I’m fortunate to have lived many years with mets now, I was diagnosed with bone mets in 2003, but any progression still knocks me back and takes me by surprise. I hope the counselling will help you. I’ve found sharing thoughts here has helped me and I’ve met and sadly lost some great friends here…please keep in touch and shout out when you need to. Belinda…xx
Thank you dancing girl and Belinda for your comments. I think you are right; once I get my head around all the recent news and starting chemo etc., I will probably start to cope better. I tend to put on a brave face and bottle things up, which I’m sure most of us do. Thanks again. Sue X
Hi Sue,
Sorry to see your post and its still sinking in the devastating news last night. I know my husband found it more diffcult than me when we heard got the news. My mets are chest wall, pleura and lung.
I hope you get a good results from your chemo and there’s a plan of action for your new mets.
Belinda is so right these boards offer you hope and inspiration when you are at your lowest ebb. I think hearding others stories helped me through the darkest times.
I can totally relate to your putting on a brave face. I don’t want to upset my family and have discovered what a great actress I am.
I think after the initially period you just have to make a different life and this becauses you norm, I have resign myself to the fact this has shorter my life and in a funny way it has help and lowered my anxiety levels if that make sense?
I glad you are having your councelling and the timing couldn’t have coming at a better time.
I love the live chat and see it as my going down the pub for a drink with my good friends. Although mine now is a cup of tea.
My thoughts are with you and these boards are an excellant place for support.
Take care of yourself
Chris xx
Thanks Chris; I think the plan at the moment is to continue with a few more weekly chemo’s and then repeat bone and CT scan, then review treatment. I have been out with hubby for couple hours today and it has taken my mind off things thankfully. I hate having to tell close friends/family bad news, as I always feel guilty when I see them struggle with it and getting so upset. Likewise, I like to show the face of calm and control at home, still trying to do all the things I have always done and with a big smile slapped on my face (even though I feel rubbish some of the time). I think that’s part of being a woman, mum and/or wife though. Thanks again for the support. I shall definitely be participating in the forums more now. Love Sue X