Hello,
As you know we are currently working on the architecture for the new website and we would like to know how you would like information specific to people affected by secondary breast cancer presented on the site. Would you like:
a) The information inter-woven with the information for primary breast cancer; i.e chemotherapy treatment for primary and secondary breast cancer sitting side by side.
OR
b) A separate section on the website where all information about secondary breast cancer can be accessed together?
Please let us know your thoughts either by posting here, or by emailing the moderator: <script type=“text/javascript”>eval(unescape(‘%64%6f%63%75%6d%65%6e%74%2e%77%72%69%74%65%28%27%3c%61%20%68%72%65%66%3d%22%6d%61%69%6c%74%6f%3a%6d%6f%64%65%72%61%74%6f%72%40%62%72%65%61%73%74%63%61%6e%63%65%72%63%61%72%65%2e%6f%72%67%2e%75%6b%22%3e%6d%6f%64%65%72%61%74%6f%72%40%62%72%65%61%73%74%63%61%6e%63%65%72%63%61%72%65%2e%6f%72%67%2e%75%6b%3c%2f%61%3e%27%29%3b’))</script>
Many thanks for your help with this
Kind regards
Bertie
Head of New Media
I would prefer a separate section. - Geraldine
Please whatever you do don’t leave the issues of people like myself with incurable regional recurrence out in the cold with no recognition or information. The chemotherapy treatment I am getting is similar to the treatment people with distant mets get; my emotional issues are the same but this is barely acknowledged. I have recently written to Vicky Lane, Emma Pennery and Dora Wheeler about this issue…please ask them to forward you a copy of my paper.
best wishes
Jane
I agree totally with Jane’s comments. I don’t think it should be seen as a ‘secondaries’ section but maybe ‘advanced’ cancer or metatastic? We’re all the same, albeit at different stages of our disease, by the very fact that we’re in palliative care and a lot of women with regional recurrences are in palliative care as well.
Pinkdove
separate section for me please I agree with Pinkdove and Jane.
I agree totally with jane, Pinkdove and Debs. The psychological implications of advanced cancer are so different and the treatment challenges so much more severe in that you know that you will be dealing with side effects for the rest of your life - and that the chances of seeing an end to treatment are very remote. I would not want to cast a pall over the hiopes of women who have just been diagnosed with primary cancer so I would hope that there would be a place on the site for those of us who cannot look forward to a disease free future. The support provided by this sort of site is so important for us - and we need to be able to spek freely about our fears without worrying that we are bringing down other women for whom, with a bit of luck, this will just be a frightening but brief interlude.
Barbaral
I think a mixture. Chemo is chemo, so all together (like now) but a general section for secondaries so as not to ‘rain on the parade’ for primaries works well for me…
Susie
We need a section that can allow us to put in any trials we are aware of. I have asked my onc if sche can provide me with the trials throughout Britain and she said she can’t. So to me we need to make sure we are all awae of what’s going on so that if we meet the criteria we can push for it.
Diane