Hi
Newbie here. I was diagnosed with bilateral breast cancer 5 years ago and I am looking for people in the west of scotland, who have been referred for genetic testing. I am about to go through it and would welcome the experience of others.
Scotland for Aye! Unfortunately I am a Sasenach and live in East Sussex. I did have genetic testing after my lumps were tested and found to be Grade 2 and of no special type. The docs sent a sample of my tissue to a place in the USA where they do tests called OncotypeX which help decide if you will benefit from chemo or not. My result was that I wouldn’t benefit from chemo. So I didn’t have to talk about what I would do if I lost my hair. It’s still mainly on my head. Some hair is falling out from taking anti oestrogen medication (letrozole) so I am a little peeved. Let us know how things go.
Seagulls
East Sussex is a lovely part of the country, I’m quite happy to communicate with a Sassenach
Was yours tested for BRAC?
Yes I definitely do not have a BRAC gene
NB thanks for correct spelling of Sassenach. Just testing!
Welcome to the forum @mullberry57
We hope you find it a helpful and supportive place
Please do have a look through the various boards and topics to find those going through similar experiences or for places you may be able to share your experiences and knowledge.
Sending our warmest,
Lucy
Hi Lucy
Thanks for the info,I have found posts about genetic testing but was really looking for people in my area to connect with.