Hi everyone.
18.4.24 r.breast invasive duct carcinoma, er8 pr8 HER2 negative.
First op, 1st May removed lump and sentinel nodes clear, was explained that would go to radiotherapy afterwards.
Called back to be told margins arent clear so another op 4 wks later. Also they are using the prosigna test to see if chemo is needed, apparently in their words a grey area whether its beneficial or not…
So tomorrow im back for result’s feeling very wobbly tonight, i am trying to stay postitive but yep nervous.
Also Ive found out that osteoporosis runs in my mums side of the family. So another obstacle thrown in.
Im going tomorrow on my own as my normal support can’t come, so thats making me panic
Anyway thank you for reading.
Hope tomorrow is kind to us all.
Hi @lun04hor18. - my initial diagnosis was much the same as yours but although I had clear margins, my lymph nodes turned out to contain cancerous cells after all so I’ve just had a lymph node clearance.
I have more results on 17th so know how nerve wracking it is! Best of luck for tomorrow, hope it goes well and in the meantime try to distract yourself. Do let us know how you get on. However it turns out it’s a well trodden path I think and there will be plenty of ladies on here experiencing something similar It all still seems unreal to me! Sending love 
Dear lun04hor18,
So sorry you have had to join this club, however we are all here for you. Take one day at a time, very easy for me to say.
As for your follow up appointment, the breast cancer nurse will be there to support you, asked as many questions as you like.
Wishing you lots of going forward, please come back and let us know how you’re getting on.
With the biggest hugs brave lady. Tili 
Hi
I had similar, clear margins but in lymph nodes
so more removed, they turned out to be clear.
I had oncodx test which came back at 11 as chemo for me was unclear.
I went in to have five days radiotherapy and now have letrozole for 10 years with the nine tablets for three years.
Best of luck with your results for the both of you, I remember thinking it was just worse every time I got new results but I did eventually turn that corner for more positive ones
Sending you both hugs
Xx
Thank you, everyone for your supportive replies.
I saw my surgeon and yes my margins are clear yipeee,
My results from the test shows moderate chances of recurrence, so they are referring me on to oncology to discuss chemo. So ive been sent home with a few booklets to read.
So now i wait.
Emotional rollercoaster today, feeling calmer this evening, as ive spent a lovely evening with my daughters 
dear Luna
I had several operations after I was first diagnosed. i was annoyed because i was told i did not have breast cancer but i wanted the lump removed as i was 47 and a doctor said I was 38, so i was worried as the risk goes up with age, and i thought he couldn’t work out how old i was so what kind of doctor was he? Also on 2003 the hospital was dirty and the consultants often didn’t turn up. iended up having the lump out and a follow up appointment on 5 December.
I went to Barts Hospital for my post operative appointment which I thought woukd be routine as the seven needle biopsies came back clear.
However after hanging round unclothed in a freezing cubicle I was told that i had to have another operation as i did have cancer after all, and it had to be on 18 December 2003. I felt doubly annoyed as i had found the lump in early June 2003 and I still had cancer in me on 18 December 2003. It was a rare kind of cancer called ductal glycogen rich clear cell carcinoma of the breast.
But looking back, the long delay did not make a difference to my prognosis, I had treatment and that cancer did not come back. instead after 19 years I got a different kind of cancer in the same breast so this time I had a mastectomy and immediate reconstruction. In August I shall be 69 so I have survived. it’s a drag having cancer but at least aI have retired now and having cancer the first time made me determined to pay off my mortgage as early as possible.
i have been mortgage free since around 2006 but I still feel more irritable than before as I thought I was safe from getting cancer again… also I have less energy than last time but I just have to play the cards I have been dealt and keep myself as healthy as i can by eating sensibly, taking my medication as prescribed and doing weight bearing exercises. Seagulls
Also, im interested in scanning, i was wondering why I’ve not been offered a MRI or another thing else, to see if its gone elsewhere.
Now i guess i can ask the oncologist when i see them, but is this something that isnt offered when its not in your lymph nodes??
They can’t check whether it’s spread by doing an mri. Cancer in lymph nodes is the best indicator of it moving on so the treatments given often assume it is on the move or could be. Hormone treatments are given to some women reduce oestrogen as this hormone can make breast cancer grow. Other women can benefit from herceptin if their tumours are HER+
All this is determined through pathology tests and finding out the DNA and chemistry of each cancer.
As there are so many variations of kinds of breast cancer, and ages of people who get it, sizes of tumours etc etc each hospital has a multidisciplinary team to look at each case. All the teams in England need to follow guidance on treatment for early breast cancer published by NICE the Institute of clinical and care Excellence (I think that’s what it’s called). This means there should be greater consistency and better outcomes for women (and men, also) who get breast cancer.
Seagulls
Hi Luna
I too wanted to know if it had spread. The surgeon told me the only way was a CT scan and that having scans was a greater risk of cancer. She told me I would thus have chemotherapy followed by a course of radiotherapy. Mine had spread to one lymph node.
As it happened the time predicted for referral to the oncologist was lengthy and as we have health insurance I decided to take that route. Oh boy how things changed. I saw my oncologist in less than a week but more importantly he told me I should have a CT scan to see if it had spread. Fortunately it hadn’t but I would never have known that if I’d stayed with the NHS.
Additionally instead of going straight on chemo he recommended the oncotype test and this found I wouldn’t benefit from chemo. I was so upset that to save the price of the test the NHS doctor was going to put me unnecessarily through chemo. I think they play the odds and as it had spread to my lymph node that decided it for them.
I don’t really have any advice but at least by knowing this you can ask your oncologist. It is a very difficult process which I found to be a rollercoaster. That said I only gave 2 radiotherapy sessions left of 15 so we can all get through this with each others support.
Good luck and lots of hugs 
Hope the visit goes ok
Make sure you ask the nurse chaperone for her support and ask as many questions as you need
When you have a plan it will get a little easier
i had nhs care and have never paid for private treatment. i chose to move to a breast cancer centre of excellence. London has most of the top cancer hospitals for historic reasons (many are teaching hospitals). I had the oncotype x test although i was warned I might need chemo. Luckily I avoided this as my result was low.
The NHS is fantastic
Seagulls
Possibly treatment varies depending on where you live. Probably more choice and availability of NHS treatment in major cities. Our NHS hospitals unfortunately are amongst the worst in the country 