Hi I was diagnosed with ILC on 15 th August and MRI showed tumour to be 4.5 cm so had a right MX and SNB 17 September! Awaiting path report 3rd October. All been a bit of a whirlwind as for everyone but as I now wait for results hoping to link up with others for advice and support. Thinking I may need chemo and as ER + will need hormone therapy. I also now have seroma so any advice welcome. Have already felt really supported reading the messages on the forum so feeling positive and upbeat!
Hello Sal49
Welcome to the forums, I’m so pleased that you are finding them helpful.
Whilst waiting for replies maybe you would like to give our free helpline a call where the staff can offer practical information as well as emotional support. The free phone number is 0808 800 6000 and the lines are open Monday to Friday 9.00 to 5.00 and Saturday 10.00 to 2.00.
Best wishes
June, moderator
Hi Sal
i was dx with invasive lobular cancer at stage 2 and had a mx on Aug 16th. I too have a seroma but its not too big so am coping quite well with things. Just take things easy onthe affected side and i know i am one to talk, don’t try to do too much.
I have a meeting with the oncologist on Monday to discuss the next step.
Sally
Hi Sal (and hello again Sally!) I have ILC I think mine is about 5cm. I’m waiting for surgery, and don’t know what to do about reconstruction. In addition I’m still awaiting results from biopsy of other side (another smaller lump) so still not 100% sure what surgery I’m facing. It’s great to have you 2 on here as your experience is so similar to mine. Will be very interested to know if docs say you need rads or not. I can’t imagine feeling upbeat but hope that day comes. I’m trying to be optimistic, positive and find out as much as I can about the whole treatment process. One step at a time Sally I know ! Trying! it’s just that I had to see a plastic surgeon to discuss recon and don’t know what to do. Hopefully more things will fall into place soon. Love and luck to you both xxx
I decided not to have recon after mx. Not even in the future. I was 49 on diagnosis and 8 days after my op (this week) celebrated my 50th! Bit of a mixed day emotionally as it was not how I thought I would be celebrating!!! Anyway I am already okay about how I look and even went out today without my falsie as my seroma is so big it makes wearing a bra challenging!!
I do worry about whether it has spread but have to be patient for next week. I am determined to remain positive although I have my moments. Does anyone know if this type of cancer spreads? Or can they all??
I decided not to have recon after mx. Not even in the future. I was 49 on diagnosis and 8 days after my op (this week) celebrated my 50th! Bit of a mixed day emotionally as it was not how I thought I would be celebrating!!! Anyway I am already okay about how I look and even went out today without my falsie as my seroma is so big it makes wearing a bra challenging!!
I do worry about whether it has spread but have to be patient for next week. I am determined to remain positive although I have my moments. Does anyone know if this type of cancer spreads? Or can they all??
Hi and thanks for the birthday wishes!!
Poems galore your post was really helpful. How stupid was I to think some of them can’t spread! Of course all invasive a can. Well I am prepared I think for chemo and if I need it will try and work a bit too. Forum is great for advice and support and it is so nice to know that I can find other people facing or going through this journey! Grade 3 must have been scary but sounds like you are really positive !