Hi,
I am very newly diagnosed with invasive lobular ca of the left breast. It is grade 1, and I am waiting for insurance approval for a double mastectomy. I am 41, have 2 girls (8 and 6) and live in the UAE. It has been 4 weeks from finding a lump to diagnosis and I have to stay I feel like I’ve been hit by a tonn of bricks… I am also waiting for a bone scan and a MRI prior to surgery but I have convinced myself that the constant ache I have in my shoulders, elbow and knees means it has spread and I am going to leave my girls without a mum… I am trying so hard to be positive and failing badly… Is this a usual initial reaction?
Hi mummy2dolly,
Welcome to the Breast Cancer Care discussion forums where I am sure you will get lots of good, honest support from the many informed users of this site. If there is anything you need to ask there’s always someone who can help. BCC have a wide range of publications which you also might find helpful, I’ve put you the link to the publications page below. As you are out of the UK it will be more difficult for you to access BCC’s services, but when you find out more about your diagnosis you might find our Live Chat service on Thursday evenings useful as long as this fits in with any time difference between the UK and UAE. Live chat runs every Thursday evening between 8.30 and 9.30pm, it is hosted by a nurse and facilitated by a moderator so there’s always someone around to ‘chat’ with in real time. I’ll put you the link below for you to have a look at.
www2.breastcancercare.org.uk/publications
breastcancercare.org.uk/community/chat
I hope you find this helpful. Take care,
Jo, Moderator
Hi mummy2dolly
Sorry you’ve joined our horrid club.
I have invasive ductal, diagnosed in sept and half way thru chemo now. It is very scary at first and you will think every ache and pain means the cancer has spread. I was very achy and sore post numerous biopsies and scans etc. Hopefully it will just be this. Your mind will settle in time tho it doesn’t feel like that now.
Wishing you the best of luck and sending love your way xxx
Hi there,
I was diagnosed last week with grade 3 invasive ducal of the right breast. Needless to say it came as a shock and was only 2 weeks from GP appt to diagnosis, via an ultrasound and biopsy. I’m 31 and have a 4 year old boy. So far I’m having a good day followed by a bad day so think all we can do is to take each day as it comes. Get as much information as possible and ask questions of your team at the hospital. I don’t know how it works out in the UAE but the UK NHS has been excellent so far.
Everything aches at the moment but I’m putting this down to stress and being pretty tense right now!!!
I wish you the best of luck on your journey and will see you on the other side.
Xx
Oh my goodness, I am in exactly the same boat. I have a backache which scares me, waiting for bone scan too. My babies are 5 and just 12 weeks old and I feel exactly the same as you. Hugs xxx