Newly diagnosed and frightened

Hi there

I’m 42 and was diagnosed this week with breast cancer. I am ER+ HER2-ve and my tumour looks to be quite small. The doctor has seen some other areas of concern in the same breast which will be tested this week. My big fear is whether it has spread - an ultrasound of my lymph nodes didn’t show anything abnormal but I know that is not conclusive. I have a pain in my pelvis and I am terrified it’s bone cancer. I wonder if anyone has advice on staying calm - I’m a single mother of a two year old and I’m really scared

Zanna Sorry you find yourself on here Please do ring the number on here and speak to a nurse, they will be able to :two_women_holding_hands: speak to you and give support and guidance Your trust team should also be able to offer you support with any anxiety So do always mention to them so they can support you through :two_hearts: :two_hearts: :sparkles: :sparkles: Shi xx

I don’t know if you’ve had your results back yet but sounds like you’re at a similar stage to me so wanted to reply.

I’m also 42 with a 5 year old and got my results on Friday which were exactly as I’d been warned to expect when I had my mammogram, ultrasound and biopsy. I’ve been diagnosed with stage 2 cancer which is ER+ and HER2-.

When I was initially told that they were pretty certain it was cancer I immediately jumped to the worst possible conclusion in my head but the team have been really positive about my prognosis all the way through and so I’m just going to trust in them and what they tell me. I do still have occasions when something else hurts and it crosses my mind that maybe it could have spread but finding that focusing on each scan or appointment at a time is helping me get through. Oh and staying away from asking google anything!

I’ve got an MRI booked for next Friday and then my surgery is booked in for 9 February. Luckily I can just have a lumpectomy. They’re also going to remove a couple of my lymphnodes just in case but at the moment they don’t believe it has spread.

Sending you lots of positive thoughts for the journey ahead. 

I had similar Er+ Her2- grade 2 and they scanned my lymph nodes and said it didn’t look like they contained any cancer - they were right as when I had the nodes taken out they were clear. I also had an MRI as they had seen further areas and found I had 9 more tumours. I had a mastectomy with immediate implant. Been clear ever since and that was over 5 years ago. Don’t really come on here much now as just getting on with life but like to drop in now and again especially to give positivity x

I worry about cancer spreading all the time. It is normal to be anxious. Try to live in the moment taking each day at a time and enjoying the small things that make you feel glad to be alive. I am sure your kid makes you smile all the time. Keep positive. 

Hello Zanna, and yes it’s one hellava scary time. My diagnosis was today but I have yet to receive info from the biopsy, they are pretty sure though.

The nice breast nurse I saw said that because breast cancer is the most common form, there has been heaps of research done and hence great strides in treatment. I can believe this as my mum was diagnosed back in 1998 at the age of 70 and had a mastectomy, chemo, the works. Then the former was a stay in hospital of over a week, now apparently it’s one or two nights. And, I was told, they can find out why the tumour has grown and whether hormones are feeding it (I am sure you know this). 
I can appreciate your panic, being young (I am 60) and with a little one, and I am not sure there is a easy way to stay calm BUT, there is no reason to think it’s in your bones. No reason at all. You are stressed and that pelvic pain could be down to moving awkwardly, even sleeping oddly. You have a lot on your mind and that takes a toll on your whole body. The most important thing is that it’s been found, you are “in the system” and you will be looked after and it will be dealt with. The survival rates for breast cancer are truly brilliant and you will be okay. Hang in there - hugs from me xx

Hi, 

I feel your pain, I to am recently diagnosed, IDC, but with micropapilliary growth pattern.

Doc’s are shut due to covid.

Clinic said they didn’t have results to go to MDT meeting … (when they did).

I to am extremely worried that it may (have) spread to lymph nodes. 

Currently I have eliminated all sugar from my diet, I used to eat alot I’m embarressed to say, not any more, zero. I feel alot better for it btw.

I have also cut out all diary and eggs, as my PR8 & ER7, which I understand (?) to have a high reaction to oestrogen & Estrogen.

Currently looking and doing what I can to, alkalze my system, consume antioxidants, and support my lymph system, been doing body brushing after the morning shower and self lymph massage on my neck. 

I look at it this way, I’ll do what I can, as for me every phone call it is more evident my Doc’s, and the clinic aren’t going to be any help what so ever. 

I got told I had cancer as well late this afternoon. Definitely doesn’t make for a good next couple days. I have the same fear of it not being localized to the breast. I will say a prayer