Hi my fellow warriors 
I’m newly diagnosed with breast cancer.
They found a mass which I thought the dr told me was 2.5 mm but turns out she said 2.5cm.
Had to go back for contrast mammogram only to find out it’s actually 6cm & I have another tumour in the same breast hiding itself.
As you can imagine I’m devastated & so distraught.
Biopsies done on the first one but then a week later had to have biopsies done on the 2nd one plus a clip put in.
Now I’m just waiting for my full results & then a treatment plan.
I keep thinking the longer the days go into weeks my cancer will spread. I’m only a c cup in this breast (the other ones a D cup & clear) & I’m fortunate it’s not in my lymph nodes or chest wall so is contained (for now)
I have no idea of my treatment plan but every option was discussed.
The strange thing is I had bariatric surgery last year and I’ve lost 4 stone in weight and I noticed a change to my breast shape. Honestly put it down to weight loss/fat etc & even going for my mammogram I thought I was wasting everyone’s time. How wrong was I !!!
My surgery may of just saved my life
Hi @ginger1 welcome to the forum. Yes, it’s a punch in the guts when you get used to thinking one thing about your lump and then they tell you it’s something different and you have to go through the whole ‘coming to terms with it’ bit again. But it is quite common for the goalposts to move the more they find out. I think we all imagine the cancer running riot in our bodies whilst we’re waiting for a treatment plan but generally this isn’t happening. Some cancers are more aggressive than others it’s true but the most common BC by a long way (around 70%) is oestrogen-fed and they are the least aggressive of the common types. Whatever it turns out to be, you will be offered a treatment plan which the experts on the MDT deem most appropriate and effective for your cancer. It will then be your job to agree to it or not so make sure you get clear answers to all of your questions so that you can give informed consent. You’ve already had one major surgery with outstanding results, this will be another one. Keep posting when you need a bit of support.
Thankyou so much for replying. Yes I’m so glad I had the surgery. It’s done wonders for my mental health & im slowly learning to live again then this pops up. Trying to convince myself it’s just a bump in the road for my onward journey. X
Hi @ginger1 welcome to the forum. You have already had some great advice and I agree you have already had major surgery so that puts you in good stead.
The waiting is horrible, we all get it, but once you know your treatment plan you will feel much better knowing how and when you will be cancer free. I had one lump and the MRI sizing for that found another primary tumour in my other breast. It was smaller and lower grade so my treatment was based on the larger of the 2, at 20mm which was confirmed after my lumpectomy. It’s not unusual for the ultrasound and mammogram to differ so an MRI with contrast can be more exact.
If you need to speak to anyone the wonderful BCN nurses are available on 0808 800 6000 Mon - Fri 9-4 and Sat 9-1.
MacMillan also have a helpline 7 days a week.
Take care of yourself.
Thankyou so much for your reply. I guess my fear is of having an mri next and then more waiting. Every twinge or pain your mind goes into overdrive and your convinced it’s spread or is already in other parts of your body.
Trying to keep busy but it’s hard x
I get it. I was 12 weeks from finding the first lump to having my surgery, the first part of my treatment.
I was advised that cancer grow quite slowly and if they thought something needed doing quicker they would. Getting the right information first means you have the right treatment plan. So try to trust the system, I know it’s hard, I’ve been there thinking is growing and spreading. But trust the specialists within the multi disciplinary team.
It’s hard to plan things because you never know when you’ll get a call or a letter asking you to have a test or visit the clinic. The weekends are better to plan for knowing they generally don’t work then. So try to do something nice to make you feel better. I appreciate the little things more. The weather, all sorts, I know I’m alive even in a torrential rain storm, listening to the birds, watching the clouds or just having a walk and appreciating the trees and flowers.
So quick update … I was called in yesterday for a treatment plan (or so I thought) but they wish to give me a CT scan. The one good thing is my 2nd smaller lump is benign.
I’m grade 2 estrogen positive her2 negative but still awaiting results if it’s ducktal or lobal (think I’ve got that right) once I’ve had my CT then I’ll have a treatment plan. A lumpectomy was discussed with reconstruction but I’ll also discuss my option of a mastectomy with reconstruction later down the line. My boobs are really small now due to my weight loss. Praying 
for a miracle and it’s not spread x x x
Hi I’m newly diagnosed as well I had three biopsies one is a benign lump there is an area of calcification which is cancerous and I have four or more nodes involved under my arm I’m invasive lobular cancer stage 2 er positive progestogen positive and hr negative I don’t have a treatment plan yet he did discuss the possible options I’ve got to have an mri scan and a ct scan and it’s such a scary thing isn’t it and the overthinking and the anxiety is awful I’m trying to stay busy I’m off work I’m a community nurse and worried my head would not be on my job and I’d do something wrong I’m really panicking over the ct scan finding some spread snd can’t say I’m looking forward to the mri have had mri before did deal with it im trying to work out if face down is better or not just want to offer my support to all the other people who have posted here as well and guess it may be better when we know what our journey will be xxx
Oh @daisy69 I’m sorry we’re in this position. I’ve taken a cancellation appointment so I’m having my CT scan tomorrow morning & im terrified like you that it’s already spread. I just hope they then don’t say I need an mri after the CT as that would mean more waiting. The wait is terrifying, the not knowing is just as bad.
I currently have no lymph node involvement that they can see but that could all change after tomorrow’s scan. I’m trying like you to keep busy but it’s so hard trying to carry on as normal when this is at the forefront of our minds … sending hugs 
Hi @daisy69 Welcome to the forum that no one wants to join but is so supportive.
I also stopped work as soon as I knew I had cancer, my head teacher said I needed to get my head around my diagnosis and she was right. I also had lots of tests and waiting for results as well as last minute phone calls which I wouldn’t have been able to take while teaching in class.
I had a breast MRI and found it better than previous leg or arm and more recently neck/spine. With my head down I could see underneath and a little around the room, not as claustrophobic as being inside the tube looking upwards.
Once you have your plan I’m hoping like most of us you will feel better.
Take care
Thank you for your reply hope your doing well on your journey xx
Hi ginger1, welcome & yet sorry you find yourself here. But I hope that my journey will calm your fears. Diagnosed Jan 23; I noticed a change while showering. My diagnosis was stage2 invasive lobular BC ER+ HER2+, with 2 nodes impacted. The size was 7cm+ on diagnosis scans confirmed no mastastises. Following 2nd mammo, US, & pathology & was told it was “large”, had neo-adjuvant to reduce size & simple mastectomy. The letter written by consultant radiologist set it out in clear English “the tumour had impacted 80% of breast tissue” - invasive included spreading to ducts. I completed all treatment in June 2024. Just had my 2nd anniversary review & remain health & clear. On going treatment is annual mammos & FtoF check, daily Letrozole for 7 years (possibly 10). So despite size, modern treatments are very effective - 
full of side effects, BUT for me (& my family + friends), life is good & at age 71 have the delights of dementia to look forward to. Courage, 
, & all my love. Anna xx
Your post made me smile @barca541, speaking as myself not as a Community Champ. I was diagnosed with BC aged 66, am now five months away from turning 70, and had recently ceased being my Mum’s carer as she lived with dementia (she had a short time in a wonderful care home before succumbing to the disease). She had been a carer for her Mum who had dementia, as did Mum’s older sister. I have lived with a kind of inevitability of developing it myself. I could go on but I am sure you already know everything I would say! I’m never quite sure if my cognitive decline is due to the Letrozole or the Dreaded D. Living a good life, in the moment, is the way to do it!
Hi Tigress - yep decided to live life in the moment. My father started with Alzheimer’s (diagnosed), ~68 & died aged 72 having developed pneumonia (from flu). He spent 3 weeks in a coma before recovering. Once back on medical ward his cognitive status had deteriorated; he survived 1 week before passing away in his sleep. For my mother a shock & blessing in equal measure. She lived 20+ more years with very slow age appropriate cognitive deterioration; independent living until age 92.
Alzheimer’s/dementia is my particular bête noir. 
Anna 
Thankyou @barca541 for taking the time to reply & sharing your positive story. I’m hoping my story will be a positive one but I’ll need to wait and see. I’m so glad your doing so well x x x