Hi Ladies,
I hope you’re all feeling a wee bit better now.I had 2nd chemo on Wednesday and apart from feeling queasy yesterday and sick first thing this morning I’ve been much better this time.My anti sickness drugs have been chanfed to Cyclizine which seems to have helped.We ordered new windows for the house this morning which will be fitted in 3 weeks.I think that helped to cheer me up.
Unfortunately my hair is now coming out in clumps so the cold cap hasn’t worked.Hubby felt sorry for me and took me into town this afternoon to stock up on crazy hats.I got 3 in the Tie Rack.He also bought me beautiful pearls which I had been promised for my Pearl Wedding Anniversary in May.I never got them then as I was in hospital.We then went to M & S where he bought me some wee short-sleeved cardies to hide my scars and a couple of pairs of shoes,a skirt and a jumper.Retail therapy seems to be a big help,but I’m not sure that we could afford it for every chemo session! It felt like Christmas.
Lisa,I’m so sorry about your job.Hopefully something will turn up.I have still to get my interview for the structure changes in our place so I know how you feel.I’m trying to concentrate on having the best time I can while I’m off work and hoping to feel stronger when the time comes for the interview. I’ve been meeting mates for lunch.They always give me a wee lift.
Try not to think too far ahead and concentrate on getting well.
Tricia
xxx
Lisa
Have just read about the job, so sorry you have been disappointed but its their loss not yours. I know you haven’t been qualified long and this whole C thing puts a different perspective on things so maybe you could take a rain check and decide after the chemo has finished if you want to carry on with the teaching or try something new. Maybe look on the A-Z of occupations for some ideas!!!
Not an easy decision to make at a time when there are too many decisions already and the money is always a worry. Its all well and good people saying you can’t worry about the money just concentrate on getting yourself well but bills don’t pay themselves.
I still can’t make my mind up about whether to stay in my job or do something new. I would like to reduce my hours but at the same time I want to be able to help my son and daughter get through uni without too much of a whopping great debt at the end of it so will probably stay put for the time being. The trouble is I’m very settled there and they put up with my comings and goings for various things that a new employee might not be so understanding about.
Hope you are feeling better every day
AJxxx
Morning ladies
Rubbish day yesterday - felt reasonably ok so took teenager to buy holiday stuff, was gone 3 hours with not enough water and ended up with the mother of all headaches… still hanging on today. NOOOO!!
I was talking to Debs66 who said that before her hair began to fall out she had a tereible headache, so now I’m thining that I’ll wake up tomorrow and it’ll be all gone! I put it in a pony tail last night just incase…
My onc said hair out at 10 -14 days. Day 9 today …
Big love Td xxx
HI All
Sorry so many of you are feeling rough, hopefully it will get better. I am due my second lot of FEC a week Tuesday and every morning I get up and run my fingers through my hair and it still seems to be hanging on. Am I going to get up one morning with it falling out or will I just need a stiff wind! not quite sure, I hate all this hanging around. Went to the pub on Friday night and ended up coming home at 2 am great evening, but I cant help wondering if people will start looking at me all the time when I go in next time with a scarf or bandana on just a bit paranoid really I think I keep saying I don’t care but deep down I really do.
I had a bit of furry mouth for a few days but the mouthwash seems to have sorted that appart from that not too bad only felt a bit sick and strange for about 5 days so count myself lucky.
Claire I am so pleased that you finally got started its all a bit of relief really isn’t it, I am actually finding myself looking forward to the next one.
I have just started taking Maitake D-Fraction has anyone else heard of it? it is very good for you immune system and supposed to help with chemo for keeping cancer away. Anything is worth a try It can’t hurt.
Noticed your last note Td looks like I only have a day to go before H starts falling out. EEEEK!!!
Debs x
Hi everyone
haven’t been on for a while busy with work stuff.
Claire i’,m delighted thet you finally got started. Hope your’re still feeling ok.
I have my second FEC on Wednesday . In one way iI’m looking forward to it but at the same time i don’t want that yucky sick low feeling again.
For all of you wondering about your hair I can tell you how mine has ‘gone’. Day 14 I noticed afew strands beginning to come out fairly easily. This continued for a few days then Friday it was a lot worse, hardly needed to touch it and out it came.
Saturday morning woke up to find loads of it on my pillow - not nice. I then washed it as it felt very tingly and loads came out. In fact so much that i had to wear my first bandana. I was very self concious and all of a sudden I felt that everyone would know what was happening to me. I cried for a while and then got on with it. Today there is hardly anything left. I just want it allto go now as it’s a real pest finding hair everywhere. Coping with the bandanas now but I feel that people are looking at me. I think up until now i just carried on as normally as possible and only a few people knew but now i feel that everyone will know and I don’t want their sympathy. I just want to be normal!!!
Anyway enough moaning whats a little hair compared to why it’s falling out. Come on chemo keep it up and get rid of those bl**dy cancer cells.
Take care all
Jackie B X
Hi everyone
jackie you seem to have the spirit… me and my OH have been talking about when mine fall’s out and wonting him to shave mine of oowwwwww ny goddddddddd … but like you said ,get rid of any roug cells.
well i had a good weekend went to the wedding had good time …pepole that havent seen me since i got dx …said how well i looked which made me feel good then i sat there and thought to myself yea not for long lol…
monday tomorrow last day of freedom till life gos down hill for a few months.
but it’s not for ever …thank god…
well ladies will love you and leave you and i will post after i have started my chemo and let you all know how i am
thats if you dont mind me dribbling on …
take care big hugs to all :]
lisa claire and td
just wont to say thank’s for your surpport …it;s helped me load’s. so nice to pop on hear and let off some steam and you all know how each other is feeling …it’s not the best place to have to get to no each other …but hey it’s done me the world of good …and i hope it’s been good for all of you …
well i will go now as im crying and cant see what im putting …and my spelling is not it’s best at the best of time’s …
lv sal x
Hello ladies,
Well I am feeling a bit more normal now, still have an alien feeling at night but I am getting used to it.
It is very surreal and I can’t explain it too well but I am sure some of you may know what I mean.
I just wanted to say thank you to everyone for cheering me up, although I haven’t posted I have read what you all have written and it cheered me up.
I am not too tired at the moment but I am sure that will come any day now.
Jackie - thanks for the info on the hair. I filled my chillow pillow last night so I will give it a go from tonight. I haven’t had any night sweats or anything, shivery actually but will give it a try.
I’m not that bothered anymore about the hair but I am sure once it goes i will feel very different. My Mum has clippers so might use hers but the hairdresser who cut my hair on Friday (for free) said she’ll shave it when ever I want.
Hey TD - how you doing? You are only a couple of days ahead of me I think. Are you feeling OK? How’s the hair? I hope all the icky mouth feelings have settled down hunny.
Debs - glad you are doing well, my mouth hasn’t felt too bad just in the evening, bit like tomato soup ish LOL.
Sal - I am soo glad we can be a support for you hunny, you are all a huge support for me so anytime you need a good rant throw it my way.
Tricia - I hope you are feeling better honey, the cyclizine didn’t do the trick for me but glad it’s helping you. I wish my OH was like yours I’d love some retail therapy right now. Maybe someday we will catch each other on here.
AJ - just have to say THANKS, love ya.
Anyway love and hugs to all
Lisa
xoxo
Hi all
Glad everyone seems to be doing ok, had a bit of a cry last night I was just sitting in the chair with my hubby son and his girlfriend and was saying how my hair wasnt falling out and I ran my fingers through it and out it came, I must admit I didn’t think I would be too bothered but I felt really upset can’t really explain it as we all know its going to happen still I am picking up the clippers today and I think I will get my son to shave it off either today or tomorrow. I dont wnat that feeling of it getting worse and coming out in big handfuls. I think it is like JackieB said you feel quite ‘normal’ and then once your hair goes everyone knows and treats you a little differently and we don’t want that. Still I will stop moaning and get on with it like you all have thanks for all your support it really means a lot.
Debsx
Hi ladies,
I’ve joined the baldy gang.Like Jackie,I had a wee bit of a cry this morning mainly because my mum and hbby are so upset on my behalf.I think like Jackie I’m more bothered about strangers knowing about the BC and also I think i’m a wee bit more vain than I like to admit! Back to the wig lady tomorrow for a proper fitting.Going fur lunch after then off to the hospital to visit my wee sister who is having a heart by-pass.I think she has more to worry about than I do as her op was unsuccessful a year ago.She’s only 43 and had a stroke 3 years ago too,so I don’t really think it’s fair of me to start feeling sorry for myself because I’ve no hair.
Feeling pretty good,just a wee bit tired.
I hope you’re all starting to pick up too.
Tricia
xxx
Hi Ladies,
Wow, what a lot of brave peeps you all are!!
My FEC started on Friday. Found the treatment ok, but was very scared by the big old syringes. Got home and was massively hungry, ate a big dinner and promptly threw it all up. Then couldn;t keep anything down, including the anti-sickness tabs.
Sorted itself out the next day tho, Have been eating toast and soup and craving carbs. Onto Roast pots tonight! Keep needing very cold things tho, but brought some lolly makers thanks to the tips on here.
Am not sleeping well either, but have some marzipan (temazipam) to help with that. Refused the steriods as am determined not to put on weight, so it’s probably the sickness keeping me up! Finding the wristbands good tho. Will see how I go now the big tablets have finished, just the Dom Perignon left!
The zoladex and bone marrow injections are making me feel horrid tho, everything hurts when touched and feels as though I have been slapped on my cheekbones, just had to make a ‘Go Cake’ too!
Hope you are all doing ok - Have had a wee cry for all your lovely hair. Lisa - know exactly how you are feeling. My body is from another planet at the moment. My friends Mum has just been diagnosed with DCIS after a lumpectomy, so have been pretty distracted by helping her out.
Really looking forward to keeping in touch with all you ladies, finding this all such a help to know I am not alone. Must go get the tissues now.
Love Liz xx
Hi everyone,
Hope you are all ok. Im having great trouble adding a message here today - its probably my brain!!! I have typed TWICE a long message to you all and it will not accept it so I am just writing to say hope you are all ok. I am thinking of you Mally Sally tomorrow and send you lots of good luck.
Big hugs to everyone.
Love Claire x
Hi all
I now go bald all the time. Yes I get looked at but you know I got looked at more with my wig on. Strange that I dont mind people knowing I have cancer. Ive had kids come up to me and ask me why I have no hair and I tell them but explain it’s not as bad as it looks and I’m not a leper I have an illness which is being treated and I wont hide that fact. Sorry I’m off one one of my rants again lol
Joanne
This one goes out to mallysally. Hun I cannot tell you how much I love you and how proud I am of you and that I am lucky to be your husband. I will always be there for you hun and you/we will beat this together. I know you are feeling pretty down at the minute bud but you will get better and you are a fighter, after all you have been married to me for 14 years mate :0)
I know it is easy for me to say keep your chin up but I know you will and I know you will not let this beat you. All will be behind you soon and you will soon be back on track sweet heart.
I cannot tell you how proud I am of you. I LOVE YOU SWEETHEART XXXXXXXXXXXXXXXXXXXXXXXXXXXXXXX
Now Paddy, what did you go and do that for?
You have to be one of theeee sweetest men on the planet, I now have a tear in my eye and it’s only 8.30 in the morning.
Sally you are so blessed hunny.
xoxo
Paddy you made me cry
love to you both
Bridie
Well got Sally back from hospital this morning after a sleepless night for her on the ward. She looked tired and lonely. It was great to get her home where she can relax and put her feet up and have a bit pampering which she so rightly deserves.
What happen basically was she had a huge reaction resulting in anyphalatic shock to the T of the TAC. They had to pimp andrenlin into her pretty sharpish to bring her back to the land of the living.
She is joking about it now which is great, but I could’nt imagine things without my best mate by my side. She is now on antihistimines and numerous steriods which I know is power for the course but all adds to the anexity.
Have to go back to see the Onc on Tues 08 Jul to get him to change Chemo regime so we think he will put her onto the FEC and hopefully fingers crossed all will go well when she goes back on 22 Jul for her second lot.
Once again to all of you out there who are going through this I really do mean that you are marvelous people and very brave.
To my wife and my best mate again Sal I am so proud of you hun and I will love you forever. Keep your chin up mate :0) xxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxx
Sally - hope you are feeling much better and recovering from such a big set back and where may I ask did you get this guy from. He is such a sweet heart, I had a couple of e-mails from my beloved when things were tough last year and he was working away from home but I can’t imagine him ever going so public with stuff.
Paddy you are a darling and if you keep this up Sally is just going to have to start sharing cos we’re all going to want some.
Lots of love to you all
AJxxx
OMW Sally babes you have been through the mill and here’s me complaining about talking on the big white telephone for 1 night.
I agree with you AJ we want Paddy on here more, maybe you should come on to the DDI Paddy, I think Gareth would appreciate a male to bond with rather than us lot giving him abuse.
Glad things are improving Sal.
Love and hugs
Lisa
xoxo