Newly diagnosed, struggling with all the waiting for test results and uncertainty.

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Hello!

 

I was diagnosed last week with pre cancerous cells within the duct and a a few invasive cancer cells that had broken out.

 

It was my very first - routine - mammagram.

 

i was called back as they’d seen suspicious microcalcifications, but was reassured that they were nearly always benign.

I went straight from extra mammagrams to biopsy and bypassed ultrasound as they were so convinced it would be benign.

 

The biopsy came back as malignant cells in a tiny 10mm area, but no lump.

Oestrogen positive.

 

I was sent for a lymph node ultrasound yesterday as a precaution, and a biopsy was taken from a solitary ‘‘chunky’’ node.

And suddenly the diagnosis doesn’t seem as early or contained as it first seemed.

I get the results on Monday, which could potentially change my original treatment plan.

 

And I’m struggliing emotionally with the diagnosis, the nodes, the uncertainty, but most of all the waiting.

And terrified.

 

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Hi

Welcome to the forum.

So sorry that you’ve found yourself here, but there will be support and advice here from lots of lovely ladies that know exactly how you feel.

The worse part of the whole journey is the diagnosis and the subsequent waiting for a treatment plan. Once that’s in place, you will start to feel better. BC can be treated and there are many of us here who have come out the other side.

I won’t tell you to do things to distract you…that’s impossible. I certainly wandered around in a daze for a couple of weeks. But we are here to listen, if you want to share.

Best wishes

Sue xx

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mustardandgrey

 

I just wanted to welcome you as well and echo everything Sue has said, you will get loads of help and support on here from the wonderful ladies who know exactly what you are going through, so just keep coming on here whenever you need to and there will always be someone here to help.

 

Sending you hugs

 

Helena xx

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The piece of advice that has helped me most is from a hairdresser! I’d never expect my hairdresser to give me  a fabulous hair do without them taking their time, so would I really want my hospital tests reported with any less attention? There is nothing, I think, that can stop the worry. Once you know for certain what your diagnosis is and have a treatment plan it does seem more manageable.  

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I totally agree, you are in the worst phase at the moment. The uncertainty and worry can be crippling. Once you have a treatment plan you will feel more in control. This journey isn’t easy at any stage but where you are now, shocked and lost in my experience so far is the hardest. I went from being told by GP that it was probably just a bit of thickening of tissues to being told at referral appointment that they were 95% sure it was cancer, waited the longest 2 weeks of my life for confirmation had surgery 2 days later then waited another 3 weeks expecting to be told just needed a few weeks of radiotherapy to then being told it was aggressive and I needed chemo and a years worth of Herceptin. Chemo was no fun but it’s doable the fear of the unknown was horrible. Please stay here and get the support of many ladies going through similar experiences. It has saved my sanity. Take any help that’s offered and just take each day as it comes. Good times will return. Wishing you well x