Hi there. I’ve been watching this forum for a few weeks now since my mum was diagnosed with bc (grade 3 idc, Er+, Her2- with node involvement). I’ve been coping okay up until now, but on the day mum was due to start the FEC part of her chemo, there was a knockback in that something showed up on her CT scan. There were “small anomolies” in her bones. Two on the shoulders, one on the pelvis. Apparently they are too small to tell for certain from the CT whether these are mets , so instead of chemo, she was sent for an MRI to try and identify them. I’m so worried now… I’ve been searching around trying to find another explanation, but it’s not looking great. The onc said that if they are mets, her disease is then “incurable” and that they’d offer a “gentler chemotherapy”. I’m scared this means they’re giving up on her. I’m only 19, and too young to lose my mum and best friend. She is only 50. I don’t really know what I’m asking here… for comfort, advice, stories hope I think (or a miracle). Thank you for reading, I’m starting to feel really desperate. x
Hi
Sorry to hear about your Mum and obviously how this is affecting you. My 2 daughters were 17 and 19 when my bone mets were diagnosed over 7 years ago and I know how that diagnosis affected them even though, at the time, they kept a lot of that from me. I did have FEC chemo for the bone mets, I was 46 at the time, and then went on to hormone treatment which kept me stable for nearly. 5 years. Unfortunately since then I have also developed liver mets 2 and a half years ago but I am still going strong and my secondary BC doesn’t affect what I do in general, it tends to be the harsher treatments such as chemo that affect me the most. Although secondary B C is not curable it is treatable and there are many treatments out there, lots have come on board since I had my primary in. 2003 and also since my secondary in. 2008. I hope that you, and your Mum, feel able to cope more once a treatment plan is in place, most of us have. Also do feel free to ask any questions about treatments, it’s all so new to all of us when we are first diagnosed, and if your Mum is happy using computers then get her to join in with us on the Bone Mets thread. She’ll soon realise she’s not alone!
Take care
Nicky x