Hi All,
i learnt today i have bone mets in several sites. my orignal diagnosed was nov 11, a large tumour highly hormone positive, i also have the brca2 gene. please anyone is a similar advised of what treatment has worked for them and what hasnt, also whats availble on trial etc.
Hello Danica, welcome to the BCC forums
I am sorry to read that you have had the news that you have secondaries, I am sure your fellow users will be along soon with support and shared experiences
Please also feel free to call our helpliners who are on hand with practical and emotional support, lines are open 9-5 weekdays and 10-2 Saturdays
I am posting the following link to the BCC secondaries website pages where you will find lots of information about bone secondaries and further support ideas including our secondary live chat which you may find helpful:
Take care
Lucy BCC
So sorry you have had this diagnosis.
There is an excellent thread on here for people with bone mets called ‘Bone mets - please join in’. The most recent posts are at:
forum.breastcancercare.org.uk/t5/Living-with-secondary-breast/Bone-mets-please-join-in/td-p/477048?page=165
You will also find it if you go to ‘I have secondary breast cancer’ and click ‘Living with secondary breast cancer’. The thread is usually near the top of the list there.
I have bone mets in hip and spine but unlike you no breast cancer gene. In my experience treatment usually involves hormone treatment if the tumour is oestrogen receptive (one tablet per day of tamoxifen or an aromatase inhibitor eg exemestane, anastrozole or letrozole- this depends on whether or not you are post-menopausal). Alongside this it is usual to have a bone strengthening drug such as pamidronate (a bisphosphonate) or denosumab either in tablet form or an injection or infusion.
If there is bone damage and pain radiotherapy is sometimes used, or, if necessary, surgery.
Obviously I don’t know if this is the treatment that you will be offered in your soecific circumstances, but it does seem a common course of action. Best of luck with your treatment, whatever is recommended.
Ruth
Hi danica, I’m so sorry to read of your secondary diagnosis. Just wanted to agree with Ruth’s post below, the thread she’s highlighted is the one most used by those of us living with bone mets.
I was tested for both BRCA genes because of my family history but I don’t carry either. There’s quite a long list of treatments for bone mets and we are a supportive bunch. Have you a treatment lined up for you?
Belinda.