I’m happy to hear your have good responses for your chemio. I heard from my nurse the EC is very nasty, with lots of side effects. I’m going to have it from the beginning, every 3 weeks for 4 cycles.
What side effects do/did you have?
I’m trying to be ready for hair loss but I think we are never ready for it. I don’t want people to look at me and see that I’m ill. I don’t even know why I’m worried about that. I’m going for wig fitting session on the weekend. I hope I can feel more ready.
Also how do you cope with your family. I still feel so guilty because of me they need to go through this. They all very supportive but I don’t want to tell them how I’m scared or what I feel especially when I can see how this is hard for them.
I took only three weeks off work. I think I’m quite optimistic.
My oncologist appointment is at 5pm, still waiting with my thoughts spinning.
I have 2 grown up sons that have left home, that are great moral support and my husband is doing all the shopping+cooking ATM. It’s hard with family as I get very emotional at times, but they’re used to it now, I can’t hold things in. This isn’t your fault, so don’t blame yourself. I cold capped for 4 infusions but then had a horrible headache so stopped. I’ve got a great wig that I wear out, better than my own hair was, I’m completely bald now, but no one would know outside the family. Do what works best for you. Getting a wig early is a good idea. Having no hair to look after is strangely freeing, I don’t worry about it now, just pop my wig on. For EC, I took all the anti sickness meds and I wasn’t sick, just a bit nauseous. I had a bit of a temperature the day after, and was very shaky, but that was for about 12 hours. They’ll give you steroids as well, which I find difficult to sleep with. So you’ll likely have 3 sleepless nights until you finish them. The day after chemo I felt like I was wearing a lead suit, my arms and legs felt really heavy. You’ll likely get constipated so I eat lots of veg, and drink alot. I take an antihistamine before the injections they give you and I’ve not had any bone aches so far. I was very tired, but today have alot more energy again. You’ll probably be much better than me as I’m already 13 weeks into this and the chemo is wearing me down, it gets more tiring as you go. Hope this helps, good luck tomorrow x