I wanted to alert anyone interested to the opportunity to contribute to the NICE guidelines on Familial Breast Cancer. Unfortunately, individuals cannot contact NICE directly and instead have to go through stakeholde organisations. Breakthrough Breastcancer are inviting affected/interested individuals to comment on the guidelines. Do not miss this chance to ensure that people with a family history of breast cancer get the best possible service.
You can access the guidelines via the link below and also access the survey.
I have a brca1 mutation, but was assessed as a low risk on the basis of my family history and not eligible for genetic tetsing. I learned only of my risk by taking part in a research study. I then went on to develop a second breast cancer. It is not surprising then that I should feel passionately that access to tetsing should be easier and quicker. Do not miss the chnace to give your views.
breakthrough.org.uk/media_centre/news_views/familial_guidelines.html
Thank you!
Rattles
bumpity bump lest it be overlooked