Thanks for posting Blondie…seeing all the posts by long term secondary ladies really does give us newbie secondary peeps a lot of hope when we need it the most:)
May NED continue for a long time for you
Late to this party! Congrats, Blondie - long may NED continue! I’m trailing 8 months behind you, ever in hope and cheering us all on. xx
Congratulations Blondie. So pleased to hear you are still doing well. Let’s hope it continues for many more years for you and the rest of us xxxx
hi blondie,
nice to hear your good news, was dx with lung mets four weeks ago having taxol chemo and back on herceptin, hoping i am just has lucky as you.
best wishes lorraine x
Hi,
I logged on for some support and found this post!!! Well done !
I have reached the first year of bone mets diagnose and am feeling really well 
love to you all xxx
Hi Liz and welcome
I’m glad you’re doing well, long may it last. I was dx with bone mets 4 years ago (on April Fools Day would you believe) and continue to do well, touching wood as I say this! I see my oncologist this week for my six monthly check, if anyone had suggested to me 4 years ago that I’d only see a medical professional twice a year I wouldn’t have believed them, I expected to see them all the time. This time round, as I don’t have any results to find out about I won’t be nervous and will probably end up having a chat about his holidays as we usually do
Nicky x
Absolutely brilliant! Thanks for sharing xx
Hi Your news is very inspiring and fills us all with hope. I have secondary to my liver and just completed 6 rounds of chemo (3 with Herceptin). I will now continue with Herceptin. My CT is next wk but results not til 16 May, I am going out of my mind really with worry wondering if it has worked. I seem to get constant discomfort under my rib cage and wonder if it is my liver - did you experience this at all? Would really appreciate your comments. Thanks LIW
Hi Liw
Sorry don’t come on forums that regularly and just seen your post. Yes I did have pain under my rib until the taxotere/herceptin combo did its trick and reduced the swelling and tumours in my liver. I am only on herceptin now but do still get occasional discomfort in the rib/liver area but I was told that herceptin itself can irritate the liver and so I put it down to that, especially if after treatment.
I know you are worried and that is normal and to be expected but don’t forget that your body has been working very hard with all the chemo etc it has had to deal with, and especially your liver which has the job of processing all the toxins it has been handed - for its own good! It is hardly surprising that you ache and are extremely anxious. Focus in on those drugs and visualise the tumours melting away. I had extensive ‘specks’ of cancer throughout my liver (so not a candidate for excision or anything like that) a several sizable tumours that had me at death’s door and now - nothing! So, hang in there and be gentle with yourself.
blondie
Have just come on to this thread and am inspired by your stories. I was originally diagnosed in 2000 with bc and axillary node involvement. Had MX and ANC, then rads and started Tamoxifen. Was taken off Tamoxifen in 2006 and had first recurrence in 2009 - I’d noticed a lump in my neck and scans showed bone mets. Started on Letrozole and Zometa.The latter is doing its job well but grew another lump in my neck in Feb this year and it was further recurrence and progression to triple negative. Commenced chemo - Taxotere - in April and am due no 5 today and then have one more to get. I am already back in remission and onc has told me yesterday that once I finish with my chemo I will be in remission for a long time. I don’t know what a long time means but it sounds very hopeful.
Regards to all of you hanging on in there, doing well and getting on with your lives.
xx
Hi Thanks for this news. I am waiting to have an MRI after an abnormal bone scan. The ammount of pain I am in gives me a bad feeling. You make me feel less frightened.
Good luck and enjoy the next nine years.
Jacquix
Fantastic News and very welcome!
I was thinking of opening a post about secondaries to see how common it is on here and what the time scale and prognosis is in the case of anyone who replies as a recurrance in the future is 1 of my biggest fears at the moment. That original post and subsequent replies has eased my mind a lot so thankyou very much indeed to all that posted here. May u all live long and well.
Sian x
What a great and inspiring post - and long may you continue Blondie 
My original diagnosis was in 2002, with secondaries diagnosed in January 2010 - on my DPs birthday of all days! Originally in my bones, liver and lung. I have just been diagnosed in my brain too and am half way through a course of whole head radiotherapy and waiting for my newly regrowing hair to fall out again! I have been on chemo since 2011, which is continuing, but doing the trick as all my other tumours are inactive.
Stories like these are so inspirational as I am not planning on going anywhere any time soon, and it is good to see I am not necessarily living in Cloud Cuckoo Land!
Thought I would let you know that I have had my 150th Herceptin and going in for number 151 next week - amazing isn’t it. I was at death’s door in 2003 and I am still here and going strong. I will post again when I get to 10 Years - not long now!
Blondie
Hi Blondie
That is great news, and very inspiring for all of us secondary ladies as well as primary ladies who fear the worst. Roll on to that 10 year mark.
Nicky x
Hi blondie
Thank you for inspiring posts. I have just joined the forum. I had liver mets diagnosed in March 2004 so I have been on herceptin since June 2004. I have MRI this Tuesday results on 29th Oct so as usual the nervous wait - it does not appear to get any easier - the wait For scan results. But reading positive stories online definitely help. So many thanks.
I just wondered does anyone know what is the longest anyone on Herceptin in UK?
Fi x
Hi Fiona and welcome to the BCC forums
In addition to the support you have here our helpliners are only a phone call away if you feel it would help to talk any concerns over, lines are open 9-5 weekdays and 10-2 Saturdays on 0808 800 6000
We also have other support services such as secondary live chat which is held on Tuesday evenings 8.30-9.30 and information on this site which you may find helpful, here’s the link :
http://www.breastcancercare.org.uk/secondaries
Take care
Lucy
Blimey Fiona, that’s good going. I’d say your story is pretty inspiring.
I heard that one of the ladies from the original herceptin trial was still going strong after 18 years, but that may be a myth!
Good luck with the scan
Moondog x
Hi Blondie
Thank you for the inspiring post (and the good luck that it has just floated to the top of the list).
I am nervously awaiting a bone-scan and results after 2 months of back-ache and something looking “a little odd” on an x-ray last month. My bc was HER-, but is ER+, so while I won’t be on long-term Herceptin, I can see hope if I do get bad news next week.
Sue
18 years sounds a bit odd to me as Herceptin is not that long around as far as I know. I don’t know exactly when they started trialing it but I thought around 10 years ago? It’s only given to primaries as a matter of course for 12 months since six / seven years? Maybe someone else knows more about it.
Great post, nine years, amazing, soon be ten, all being well. I’m HER2 +++ as well, just had my 13th Herceptin of 18, dread stopping it as planned in Jan, still have Tam to hang on though.
All the best for everybody,
3N3 xx