Dear all. Well, after 9 years with secondaries, bones and now liver, I was rushed to A and E last week after suffering a seizure. Firstly they thought it was an infection but after an mri discovered it was mets in the dura, the lining of the brain. This has completely devastated me and what I have been dreading all along. I saw my oncologist yesterday who said they are going to take me off Vinorelbine for the time being until I have had wbr, which I am waiting for an appointment for. I really would like to hear from anybody who has been through this and wether anyone knows any alternative to the wbr, which I understand can have nasty side effects. I feel as if my journey is coming to an end. I will lose my hair for the third time and of course am not able to drive formthe foreseeable future. Can anyone give me even a glimmer of hope. PLEASE!!! Xx
Oh dear. I am so sorry you are so unwell. I hope someone with some experience of this responds soon x
Hello nanofthree
Well it must have been a shock but I have the same. I started getting numb face in March. .had ct scan on head . Said all clear. Then it kept getting worst … had mri on brain in July. .brain mets in lining. I talked very serious with oncologist and radiologist and we decided mutually the wbr was not really going to help as I have lungs,liver and extensive bone mets to contend with too . This is only my choice though and you must deal how u feel you can.
At moment I’ve just finished 4th cycle of cape which they say can stabilise brain mets …I feel very well on it with very little side effects.
Hope this helps you and loads of hugs xxxx
Nanofthree, so sorry to hear your news. As everyone has said talk through with oncologist carefully until you feel you understand all options. if you are unfortunate enough to see one who stands up after a few minutes signalling to you the consultation is over, stay sitting until you are happy to leave. Also you canask about trials, there are always quite a few going on.
So sorry also for your news Carolyn, i hope the twins are still lightening your days.
much love to all as ever
Ramade xx
I hope that more ladies come forward to offer you advice as there must be many reading. Most times we take the treatment regimes our oncologist offers but personally I felt I needed to pause and do a bit of googling. It’s a big decision to take …ask loads of questions. .I felt with so.many family occasions I wanted quality of life rather than quantity.
Hope u make the right decision and keep in touch with us …we will support you xxx
Nanofthree
I’m being a bit sensible as I don’t want to prejudice you into making the wrong decision here …so not actually quoting facts and things i read on Google! I do hope you decide the best option . .keep in touch as we are all holding your hand. …
Xxx
Just wondering with you saying about a return to cape ff, are there many things we can revisit after a time lapse, does anyone out there know?
Ramade
Hi Nanofthree,
I was diagnosed with brain Mets in 2014 and my prognosis was 2x weeks… Last year, after lots of treatments, those tumours have disappeared. I have since found out this year that all the secondaries in my liver have vanished too.
Don’t give up!! Make plans and keep looking in to the future. If you want to message privately I can tell you about all my treatments etc? Xx
Hi Jodie. I have pmd you. X
Hello nanofthree
All the best for tomorrow and I hope u have made a decision but ask lots of questions and be sure. …I’m very deliberately not giving advise to sway you .it’s something only you can make which direction to take.
Sending biggy hugs from my special hug cupboard xxf???
Hi Nanofthree, thinking about you today, hope you get all the answers you need, love Kate xx
Hi Nanof3
We are all with you today. Hope your onc can tell you what you need to know.
Hugs Bon x
Thinking of you Nanofthree (((((hugs))))
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Nan of three
You have gone quiet on us …how are you doing? What decisions did you make ? Somehow I think you have had the wbr and resting .
We are all holding your hands …xxxxc
Hello nan of three …it’s so good to hear from you and that you made the decision to have the wbr …very brave but it can be very successful for a lot of ladies. Hoping you make a good recovery to enjoy Xmas. …but please keep in touch. .don’t do the silent thing as we worry about you.
Sending special hugs 
Hello nan of three
Wow 70 that’s a big landmark birthday …I’m 66 and it’s hard to cope with the treatments so easily.
Since the cape has been reduced I don’t feel so well. .not until my platelettes recover I’m on a low dose. .I would have preferred the earlier dose as I felt really well for the first 5 cycles but I must follow what the oncologist says.
Yes let’s just enjoy and live in the moment at Christmas and the New Year!! Wishing everyone lots of effective treatments and great results.
Think positive thoughts, try to help as many others as we can and enjoy time with family and friends!! God bless all of us.