I have seen my oncologist this morning and discussed my options re ongoing treatment and have decided I do not want to have hormone therapy and bone infusions as the percentage benefit was very minimal and I am high risk for severe side effects due to other health conditions.
My oncologist has given me the name of a clinic in where I can go for advice on how lifestyle, diet, exercise and supplements can help me stay as healthy as possible for as long as possible.
In the meantime I still have to finish phesgo injections and these will end in July.
I’d really like to make contact with other people who have either refused hormone treatment or had to stop it and hear what you do to keep as healthy as possible and whether you take any supplements etc.
Thank you
Have you read about cross-talk in relation to Her2, ER + breast cancers? There is a possibility that treatment of 1 receptor type, when you have both types stimulating growth, can lead to the other pathway being used instead to stimulate growth.
I stopped taking tamoxifen after a few months of lots of side-effects, for that reason as I’m in a rare situation of not being classed as needing treatment for the Her 2 ( its a rare form with unusual her 2 +++). As you had chemo and phesgo, it would be optimal to block the hormone receptors also.
Having said all that, if there is room for improvement with lifestyle changes, then that can knock a few percent off the chances, sometimes more than hormonetreatment would. I’ve always eaten fairly healthily and fairly active, so I’ve continued with that and drink a lot less alcohol now ( it went up a lot during covid tbf).
If overweight, there’s loads you can change to improve chances. Focus on a new healthier future in general.
Hello!
It is probably worth you having a look at he canceractive website https://www.canceractive.com/
There is lots of useful advice on here about lifestyle, diet etc to reduce your cancer risk, including recurrences especially with regard to oestrogen positive BC.
Good luck x
Thank you so much for the information. Really appreciate it.
Hope you are doing ok x