Hi Chaffinch sounds like you’re doing pretty well this round, hope it continues for you. I usually spend day after chemo on sofa and very sloth like. I usually get OH to fill up a 1.5 litre bottle of water so I don’t have to get up off the sofa to refill my glass, I then ask him to refill it when it’s all gone! I know I could do it myself but I like to make use of him. My only movements are usually to get something to eat or go to the loo.?
Lesley, I’m always concerned about falling off it backwards and going through the window! It doesn’t help that I like to time myself on my phone but can’t see the countdown and I like to see the minutes countdown, so have had a few near misses and shaky moments! ?
Lesley it’s ok to foot stomp too we all do it then go online and have a shopping steroid binge ???
Shi xx meesh, stickbto your yoga lovely no window swatting you are not a fly, you are our gun toting ?drivers mate ???
???Shi, you really make me laugh! I normally do the fly swatting first for 6-7 minutes and then finish with the yoga and meditation! It’s now part of morning routine, oh and to make it more interesting I do it in semi-darkness as I don’t like to turn bright lights on fir the yoga first thing in the morning so go by light in hallway, perhaps I am crazy like OH says ??
Hello lovely ladies, good to see how well you’re all doing ? Lesley, be kind to yourself x listen to your body, and if it goes in the idle mode that’s perfectly fine xx
I have another question: can your veins hurt? It’s in the right arm where I had my first infusion, first it was just a spot where the cannula was, but now my arm hurts when I straighten it, as if my veins or muscles ( not sure where this pain comes from ?) were too short… if this makes sense. There’s no redness or bruises. My left arm used for the second round is ok.
Just checking in after a long day, but I emerged with a portacath in place (eventually). Great to find giggles here to soothe the aches, pains and general bleurgh.
Lesley, really sorry you’re feeling low and fed up. I have been much more emotional this cycle, although I do think some of it was about anticipating today’s procedure. I am beginning to feel a bit more robust, but I have decided that there is as much emotional unpredictability as there is physical. I reckon we are allowed to feel what we feel - this too shall pass is my mantra at the moment.
I am pretty relieved today has passed. After arriving as instructed at 7.30 this morning, I am not long back. The poor day unit was swamped with patients, some of whom were pretty sick. I finally went to theatre at lunchtime but alas the process wasn’t smooth. First attempt at the subclavicle ended in failure, so they had to start again in my neck. I am now the proud owner of two bruised and swollen incisions, but at least one of them leads to a port! Once I’d been x-rayed, prodded and generally given a looking over, they released me back to my sofa. I am shattered now, but also grateful that I got through it. I think a few gentle days beckon for me and thank goodness the post-chemo nausea seems to be passing. I reckon I might sleep well tonight.
Chaffinch, I really hope the relatively smooth post-chemo state remains steady and Shi, what would I do without you to make me smile, smile, smile? Sleep tight my friends. xx
Annakarenina, the nhs really know how to spoil you!!
Rest up and get over your ordeal
I’m feeling much more festive this evening - but I suspect the Guinness may be the cause!!
Anadan, id give the unit.a call about your veins just to be on the safe side
Jay, thank you xxx ?
Lesley, sorry to hear you’re having a tough time - I did too. It took me longer coming out of the fog and feeling ‘normal’ again. It was pretty rough last week, I’ve had a ?ride this week. Just watched Mr Bean film, it really made me ?
Keep strong, you are such a positive lady ??? xx
Hi Abadan, as jay says the fec is a vein badger, I’ve used microwave heat pads and my arm at home and ibruprofen gel and also the post op physio exercises to help and one of those hand squeezing exercise things to try and get some strength back into arm. As Lesley says always phone unit just do they can go through list of questions withbyou to make sure it’s not a blood clot. My onc said it will take time for veins to recover, it’s so art of the chemo. I’ve just 2 t to go now and tn isn’t as harsh on veins, so hope I can avoid a pic or port and my veins hold up, it was a bit touch and go yesterday though so keeping ???That arm will last. ??shi xx
Vein basher, sorry typo ?
They had to use my left arm this time because of sore veins in left, I’ve only had 2 lymph nodes removed so they said that it would be fine. I’m on 6 x FEC so sore veins all the way for me, the one that has been used twice is already saying thanks for not using me again and is feeling a bit better ?
Hope we can all have a better day today, doesn’t look like the weather is going to be on our side though, looks like another duvet day!
Blue skies and sunshine 
here! But very nippy 
But I’m going to be wrapping up warm and getting some fresh air in my lungs!!
Enjoy otter … a glass of vino collaspo to go with lunch??
Sounds like a good day then, enjoy. Sadly 1 degree grey and drizzling here. Would really like a walk to the post office later but will see how I go.
Hi everyone, just looked out if the window and it’s snowing, being haunted by frozen.
Thought I’d just say I’m still here but feeling ??? was so very nauseous last night and the drugs didn’t seem to work. Drinking water and eating bread sticks now ?
Contact your team or GP if anti sickness not working they can change it or too it up, don’t suffer in silence. I was able to double up my Ondansetron so long as I think ok stool softener along side, which I must remember to take today didn’t take yesterday because tummy was a bit gripy. I also take metaclopramide as a top up along with Emend with chemo then 1 per day for 2 days after. FEC 4 for me on Wednesday and so far nausea way more manageable. Eating little and often helps with small normal meals as soon as you can manage them which is sooner than you think if someone else makes them and puts them in front of you.
Best of luck, hope you feel better soon x
Oh Carole sorry that you’re feeling ??
Give the unit a ring to sort some meds out for the nausea, I struggled on for 3 days without saying anything but once I’d raised the flag it only took an hour to turn things around … lets us know how you get on ???
Thanks Lesley and chaffinch, I feel slightly nauseous now but no biggy. It just hits me a few hours after treatment and then seems to hang around until I’ve had the morning EMEND then all good, but I will see about upping the does of Ondansetron for next time. If nothing else OH would get a good night sleep instead of me waking him at hour intervals to see if I can have more drugs
Hi Carole, definitely ask about changing your meds fir chemo day if that’s when you feel bad. I suffered on chemo day a bit on cycle 2 and then more so on cycle 3 (although wasn’t sick) thus time they told me to adjust my meds slightly so I took a few more beforehand and after and have been much better this round. So as others say don’t suffer in silence.