Oh Lesley like your chain of thought ??
There was once a Doc Martin episodes where someone had a condition where their stomach did ferment food and he always appeared drunk ??
Hi Lesley just checked, FEC 7 injections starting day 4, T 7 injections starting day 3. Haven’t been doing the clarityn but may try it this time to stop the double whammy. Had a chat with my onc about it on Wed and she started looking up studies concerning it and one study said it did help and one said the evidence wasn’t strong enough, but she said no harm do it if I wanted to give it ago and let her know
Morning lovely ladies … how are we doing today??
My feet are still painful, I’m sort of resigned to them being like this for the rest of the course plus a couple of weeks. It’s a beautiful day out there and would dearly love to go for a walk but that’s not on the cards sadly!!
I’m slathering udderly cream on at every opportunity and going to try some nurofen gel later?? I’ll let you know!!
My healer left me a leaking stone which I’ve taken to tucking in my turban… well it can’t harm!!!
I’m amazed at how fast my nails are still growing - so noticeable with the dark varnish on.
Hope all this weeks girls are ok and not struggling too much
Friday love and hugs to all … bring on the weekend!!
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Healing stone … not leaking stone ???
A healing stone is so much better than a leaking stone, Lesley! No one wants that under a turban. I hope the feet improve soon. Does anything make them better or worse? Heat, cold or having a bath? A friend who is just coming to the end of her T doses swore by slatthering on the Udderly and then wearing soft socks over a thick layer, especially at night.
Carole, I can’t believe I have only just worked out the relationship between your user name and name - what an idiot I am. I hope you’re doing okay and those aches, pains and gremlins are manageable.
Harryfiddler, great advice from JC1262 about balancing the grump with careful checking. Let us know how you’re doing. I really feel for you in the GRUMP. I spent yesterday (always a tough time for me post-chemo) trying to work but feeling really restless, cross and unsettled. I was prowling the house feeling decidedly fed up and sorry for myself. I am a bit less grumpy today, but not much. We are allowed though. It sucks this cancer and chemo nonsense and I have realised that I need to feel the emotions it prompts rather than suppress them. Strangely, I have slept better since I stopped trying to be Pollyanna (reasons to be glad) all the time and admitted that sometimes I just feel overwhelmed, fed up and GRUMPY.
I am going to try to work this morning, do some exercise (I am doing these bonkers dance-based workouts in my sitting room with a man best described as ‘a character’ called La Blast - not to self: remember to draw curtains) and then go for a walk with my daughter this afternoon to stop me doing more grumpy house-prowling.
Have a good day my friends. xx
Morning all ?
Annakarenina, yes Carole66 had been used so just went backwards ? easiest thing to do. I’ve learnt not to fight emotions too. Had my usual meet up with a friend the other Friday and just burst into tears when I saw her and I told her I just couldn’t stop crying for no reason. At which there were a few strong expletives from her followed by you have more reason to get upset than any one else I know from what you are going through you have every right to be angry sad whatever. Sometimes we are so busy being positive we don’t let out feelings out.
Maybe Lesley’s leaking stones are to release emotions ?
Well day 2 and feeling good so will be off for a walk in the lovely sunshine before SE rear their ugly heads.
Have a good Friday
Carole ??
Lesley, we sound very similar!! I’m not a gym bunny either. Walking was my form of exercise - it may be something to do with the year we were born!!
I don’t suppose we could have a group holiday to the body holiday on the nhs for convalesence - just a thought ?
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That body holiday sounds amazing!!! Lesley how did you get on with the breathalyser???
I’m reading the forum wasting time as I’m willing myself up to ring bcn with the million questions going round in my head and worrying me :0( I know as soon as I call her it’ll be fine but I’m just not sure if I’m ready for some of her answers!
Are there any November ladies still to have surgery??? I’m freaking out!x
Much to cheer me from my ongoing grump when I logged back on!
I have to be completely clear: gym bunny is far from me. I am rubbish but I do feel better when I exercise and because I put on weight so easily, I need to do something. Here is Mr La Blast. I suspect I may not be his type . . . 
Pressed ‘send’ too soon.
Bythesea, I am having chemo before surgery. Assuming I stay on track with the remaining chemo, it will be a unilateral mastectomy for me in the second part of April. I am beginning to think about it lots more now, especially as my next four cycles will be fortnightly, so the end of chemo is in sight (touching wood, so as not to tempt fate by even typing that sentence). I am, I confess, worrying about it and made a call to my BC nurse to talk about it all this week. I am such a worrier that I feel I need to see a prosthesis, talk to a surgeon etc sooner than perhaps the NHS allows. I am almost certainly not going to have reconstruction. I doubt I would be able to have immediate reconstruction anyway due to the radiotherapy needed soon afterwards but I am also not sure I want it. I just feel like I’ve been through quite enough. xx
Thanks annakaranina, I’ve still not called her, instead used my time wisely watching The body holiday film. Very nice Lesley :0)
My Surgeon has suggested a lumpectomy, she said I could have a mastectomy it was my choice but then told me all about lumpectomy. My tumour is 4.8mm so hardly a pea. Just don’t want to choose the wrong option :0(
Thanks a million ladies xxxxxxxxx. Still not called.
Congratulations Lesley!!! My sister and I did a little dance when I got negative result back. I’ll do little dance for you now xxx (means I still don’t need to make the call)!!ha
Might throw in some made up Mr Blaster moves :0)
Sorry for more downers but has anyone asked about statistics? I just buried my head and took first bite of the elephant? I was worried they were giving me lumpectomy as there not expecting me to be here in 5 years and were giving my faster recovery so I could get on with what’s left :0(
Lesley, thanks a million. I would love you to come give me a hug x. As long as you wear gold jump suit as they won’t have seen anything like that round here!!!
Not TN, I’m Her2+.
My lump is also at the side so everything you have said makes sense. Loved the thought of you butting heads with Surgeon :0)
Has anyone still had a period during chemo? I’ve had two and third one is due now. Maybe that’s why I’m so emotional but no sign if anything yet?
Lesley what are our survival rates??? I’ve stayed off Dr Google and still can’t make that call :0(
You ladies are all amazing xxx. I’m glad we all hit a bump at different times so there’s always someone to pull you up. I’m going to break the norm and hit the lottery this weekend. If I win we are all convalescing at the body holiday!!!x
Hey Bythesea, big ? to you.
As Lesley said we are all individual/different. Originally I was just having the mx and hormone tablets for 5/10 years. But when they sent my tissue off for the oncotype dx test it was decided I would benefit from a course of chemo as they were looking at the next 10 years or so.
Remember they are making discoveries and improvements all the time. They want us to be around and we will be because we are strong ? bloody minded women!!!
We’ll help you on your journey, we’ll hold your hand, wipe your nose, whatever. We’re in this together and are here for each other.
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By theses gave a quick look on Oct thread at what jay68 has recently posted to Sam who is her2+ also, think you’ll find it useful darling ???
shi xx
I truly cannot thank you ladies enough xxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxx
Just to go the whole hog on the sob story I lost my mum to breast cancer. She lasted just over her 5 years :0(
Ok positive pants back on! That was 15 years ago and as you say jc they are making discoveries all the time.
Ok time to help Lesley celebrate her good news. Enjoy popping those bubbles! Think I’ll order a takeaway and have a glass of chilled white wine for you! It will be my first so hope it doesn’t put me off it!
Have a great start to your weekend ladies. I might start tomorrow with a Mr Blaster session. Or might just sit on the sofa and watch him!
Happy Friday xxxxx
Hi ladies
I am also surgery after, in fact I am surgery before and after.
Was originally diagnosed with 28mm grade 1 lump and was originally going to be lumpectomy followed by radiotherapy. But once the lump was removed the tissue around it contained DCIS cells and while the margin was clear around the actual lump there was a section next to the DCIS that wasn’t clear. So more surgery was always going to be needed. But the lump has also become grade 3 and it was TN so the plan changed to chemo asap followed by a mastectomy.
I too am not looking forward to going under the knife again but I must confess the original lump removal and lymph nodes were all done through a 4cm insertion at the side of my breast which I was pleased with so I have ever confidence that it will be okay and it will be done 4-6 weeks after chemo so I will soon be having a meeting with the surgeon, but at the moment I want to go for reconstruction at the same time which at our first brief discussion months ago was okay with her.
Sorry for going on a bit but that’s my complicated story. So I’ll be around for hand holding surgery too
Carole xx
Oh, Bythesea, I am so sorry you’ve been having such rough thoughts and thank goodness you could bring them to this thread for a dose of LaBlast man plus assorted brilliant female warmth and perspective. Did you manage to call your BC nurse yet? I really hope if you did, it made things a bit better.
I think it is much harder when there are decisions and choices to be made. I am fortunate in a way in that from day 1, they were clear that it would be a Mx due to the presentation and that hasn’t changed. Taking the choice away makes it possible to focus on other things - you know, like dancing in front of my TV to a man from LA. I am sure though that no one would ever suggest there was an option because of wanting to save you a tougher recovery or because the outlook is gloomy. It would be unethical and unsustainable - the whole team would have to agree and the notes would be extremely difficult to write apart from anything else. Honestly darling, it will be offered as an option because it genuinely is an option. Just like it hasn’t been offered to me because it isn’t possible.
Lesley, I may have to go back and dance some more with my man on the telly. That is just the best news about your genetic testing results. I am beyond thrilled. Celebrate well my friend - pull on the jump suit, but watch your poor feet in the partying.
Thank you for offering to continue to hold our hands. I confess I already feel I might be posting in an echo chamber when everyone moves on to radiotherapy and I still have more bloody chemo to complete (curse 8 cycles instead of 6). Even though I have posted in the surgery bit of the forum, there is nothing like this place to make me feel heard and supported. I feel really sad at the prospect it might end which is super-weird given how much I want everything else to be over. xx
And Carole, can I cling to your hand too when we move onto the next phase? You poor thing having double surgery. You are phenomenal. x
Thank you see Annakarenina not phenomenal just doing what needs to be done for my best out come which is what we are all doing. And I do already know my surgeon is lovely and skilled. Will hold as many hands as I can as I know at the time I’ll be terrified again
Lesley fab news enjoy the bubbles ???
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