I finally found something that suited to drink - hot chocolate for a hot drink and lemonade with a bit of squash in for a cold drink.
My session with the healer was interesting… she spoke about auras and energy etc and I just sort of went with it. She ‘worked on me’ for about an hour and I have to say I don’t think I have ever been as relaxed as when she finished. I was completely zonked out of it. She’s going to come back every month so that will get me thru the rest of chemo and radiotherapy and then the healing process. As the OH said, if it’s not doing any harm and it makes you feel good, stick with it!
I’ve not suffered the pains that others have, only had a couple of paracetamols and nurofens. But I did have a temp spike again last night. Same time as the previous evening. Between 6pm and 11pm and then it settles down again. Not sure what is going on there.
I have also had sharp pains in my ears every so often - any one had this? No sign of an infection, just wondered what is going on??
Other than that I feel ok … but very very old! And fragile. I’ve read that the T can take up to 4 weeks to leave your system, so by the next treatment we wont be free of the previous one … anyone else heard this.
To be honest, I think I have got off quite well with this one, so no complaints.
Hi ladies
Just got back from onc appointment but forgot to ask her about the 4 weeks, chemo brain ???
We did talk about the temperature spikes and she did say that the injections can cause that as well as achy joints, she also said that it was also possible the first few days after treatment.
She tried to reassure me that reaction during treatment was rare and that none of her patients had ever experienced it, and followed it up with a fingers crossed ? and that the nurses at the unit would know what to do so don’t worry ?
So that’s me ready for first T tomorrow, just got to do a few freezer meals in prep for bad days
Happy Wednesday xx
Hi girls, don’t worry about the t, I’ve just been one of the ones where my body went no to the t. But just be vigilant every time you have it. My onc has switched me back to fec for my last one tomorrow which I very ???about, so happy I nicked Lesley’s gold power ranger suit, nipped into her bath tub and pinched a wig (meesh has nicked one to Lesley and stuck it on her lady garden) and did a ?:female_sign:?:female_sign:?:female_sign:?:female_sign:Off the t roof of Oct ?back into the carriage with the rest of the fec girls ???shi xx
Hello November ladies! ???Shi you are so funny! Ladies I noticed last night in the bath that my lady garden is starting to grow back wasn’t sure if I should be ?Or ?! About to have fec 6 on Friday. Was supposed to be Tuesday but it was delayed due to bad cradle cap on scalp. The doctor wasn’t keen for me to cold cap again but as it is my last one and I have quite a bit of hair the onco team took pity on me and asked the dermatologist to take a look. They’ve given me a lotion and shampoo to use. Just thought I’d let you fellow cold cappers know that if you get a flakey scalp let them know asap as you may need some treatment. ?
Another vote for Shi as the mistress of maternal madness and joy. Personality, spirit, compassion and generosity radiate through all those emojis on the screen. There’s an army of women who’ll be cheering you on through this final FEC, Ms Shi of many chemo threads.
Lesley, I am glad that so far T has been pesky but not overwhelming. Long may it continue. How are you doing now?
Elorac, sending all the luck and love for tomorrow. May you make the transition brilliantly. Let us know how you go.
I have been well and truly in the SE slump today. Not surprising as it is always my worst day in the cycle, but I am much cheered by dropping in here and knowing the team is out there. I was working at home and realised I was so grumpy that I needed to draft replies, but not send anything. The effort of being professional, constructive and measured was too great and I wrote a lot that must be eaten or exploded rather than shared. It was therapeutic though in many ways to write it. Must remember to delete, delete, delete though . . .
Have a good evening my friends - rest up and see you back here soon. x
Thanks girls ???and Lesley, you are the gold onesie wearing power ranger luv, you are a fine one to talk ???we are all a bit ??? come on we were not going to be teenagers in the 80’s and not be ???shi xx
a friend of mine told me once about a piece of advice they had been given years previously… if something is bothering you or you are bottling things up… write it on a piece of paper and burn the paper… that way your problems are no longer on your shoulder… a bit like shifting the monkey off your back!
Doing ok AnnaKarenina, would like a bit more energy and vitality but I will get there slowly!
My son keeps reminding me of how far I have travelled so far and how close to the end I am now … just need to keep that in mind.
Has anyone suffered with the soles of their feet feeling as if they are blistered?? They look fine, no damage, dry skin etc Just incredibly painful to walk!
I’m in the unit this am having my PICC flush so I’ll ask whilst I’m there … dreading the walk in though … the unit is the furthest point from the car park!!
Thanks otter, they don’t feel hot bit really painful to stand on … nurses are going to speak to the onc but they suspect a drop in dose next time to avoid permanent nerve damage.
They said there’s nothing that can be done to alleviate the symptoms ?
Hi Lesley darling, sorry you are having trouble with your feet, I think some of the Oct ladies walk on a cold floor to help, jump on our thread and the May thread and ask, I’m sure one of the experienced ladies on either thread might know a trick to help you ???shi xx
Morning - nice & sunny here
Lesley, did you try the udderly cream with extra urea? I’ve been rubbing into my hands & feet, when I remember. So far they have been ok.
I think my worse se’s , apart from 5 days where I couldn’t get out of bed have been lack of energy and lack of tastebuds. Water still doesn’t taste great.
Good luck with your day ladies
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Morning Lesley sorry to hear about your feet. My aunt had the same and they didn’t reduce the dose and 2 years later she still struggles so definitely great to see your unit being proactive. Don’t forget about gabapentin for neuropathic pain if it gets really bad - there seems to be a real mix of whether oncs use it or not but it works!
Carole good luck with first T ?
Otter JC fmb (sorry if I missed any other t birds?) hope you are all on the up. I feel that today I am finally closer to being back to myself. Tired eyes which is a wierd feeling - and seems to be accompanied by losing eye lashes ? I have accupuncture today and planning to ask them to get those steroid hot sweats out of my system if they can ?? Here today too hope it is too wherever you are and not too much ???
I think I’ve got a virus. Burning throat and ears and achy chest. The throat was already brewing before Tuesday’s chemo, but my body just seems to be more highly sensitive and exquisitely attuned to pain. GRUMP GRUMP GRUMP.
I’m off to take a little helper and will be back in 8 hours, hopefully not so grumpy. Good to hear the first line of Ts coming out the other side a bit. Every day is a bit closer to done!
Good they are looking after you Lesley. When I was doing my reading up I noticed the F (5-FU) can have a few peripheral SEs. I think my visceral SEs and photosensitivity on cycle 1 were F but thankfully it settled down for cycle 2. Take care XX
Harryfiddler hope you get to rest up and do take care - T will take no prisoners so get medical help if you need it ?
First T done !
At home chilling. A bit concerned that the chemo nurse ask what pain relief I have as it may/could be bad. Oh great just the encouragement I needed. Everything crossed she’s wrong…watch this space
Carole x
Thanks for the heads up Lesley and JC will watch and wait. Usually get achy with the injections day 5 so hopefully no double whammy ?
Keep you posted, everything crossed
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